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gossy29
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Joined 5 years ago
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Re: Cooling cap
Hi @NelSky, I've just finished (July 20) 6 months of chemo and did the cooling cap all the way through. Phase one was 4 sessions of AC and then 12 weeks straight of Paclitaxel. My hair definitely thinned out alot, especially in the first phase but I did manage to keep most of it and at no point did it look so thin that it needed shaving. The cap was really cold for the first 5 to 15 minutes but after that I didn't find it painful. It does add a bit of time onto your treatment though. I would definately do it again although I'm never going to have to :) Good luck with it.8Views1like0CommentsRe: Radiotherapy
JMC26 I actually found something that helped me alot today, I took a few deep breaths, in and out, before the treatment started. So just while I was laying there waiting for them. I dont know why it helped, maybe it made me feel more calm or something, but it didnt seem as hard to hold my breath. I also count in my head and it never seems to go longer than 10 or 15 seconds. Anyway 8 of 25 done now :) you must be almost there, awesome!! cheers Danny10Views1like0CommentsRe: Radiotherapy
Hi JMC26, I am having radiotherapy every morning at the moment as well, this morning I did session number 6 of 25. I also hate having to hold my breath and making sure that little white line stays within the borders!! They keep telling me I dont have to do it in one hit though. Good luck with the rest of your treatment cheers Danny13Views1like0CommentsRe: Male Breast Cancer
Hi June and Sister, Thanks for your messages, yes June I feel very fortunate to have got my lump checked again. I had the lump checked a while back and had an ultrasound on it, at the time they told me it was just a cyst....harmless. Fast forward a couple of years and while it didn't feel any different, it was still there. While I was at the docs for something else, I asked him to check it again, "just to be sure". Another ultrasound and this time bad news. In a sense I feel extremely lucky as I could easily be walking around right now blissfully unware, and I feel I may have just got it in time. I am studying to teach in secondary schools and am about 3/4 of the way through a Masters of Teaching. Its taken a bit of a back seat this year though as I went through treatment. Thanks again for your messages, its really nice to see people who have been through what I have (so far) and are living healthy lives again. To be honest, when I was first diagnosed I thought I was cooked :( Cheers Danny27Views1like0CommentsRe: Male Breast Cancer
Thank you so much for your replies, it is so good to read them and read about people who are still living long and happy lives after their diagnosis/treatment. I have read everywhere that regular exercise can have a profound effect on recurrence so I am keeping busy walking and I do have alot to keep me busy, a young family, work and study. I forgot to mention that I am already on Tamoxifen, I have been on that for approx 1 month and so far only very few side effects. I might be a little bit headachey but will need more time to be sure its from the tamoxifen. I have also seen a Psych a couple of times to help get my head in a good place. It has certainly helped, but I'm not sure I'll go again, I feel like faith is important for me from here. Thanks again for each of your comments, its such good advice and I will have a look around the forums and try to contribute where I can.24Views1like0CommentsMale Breast Cancer
Hi All, I feel a little out of place here, and yet it feels like the right place to be chatting. Its very unusual in men but I was diagnosed with what I now know was a stage two breast cancer on Christmas eve last year. I've since been through 6 months of chemo, mastectomy and axillary clearance and am 5 days into a 25 day radiotherapy course. My oncologist tells me my prognosis is quite good really, she showed me a prognosis tool called "Predict Breast" that says 10 year survival rate for a cancer of my type and size is 90%. I have to say though that the biggest challenge for me so far has been in my head. The fear of recurrence is so persistent. Does anyone have any good tips for coping mechanisms? Thanks Danny
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Men living with breast cancer
This group is for men who are living with breast cancer, as well as their loved ones who are walking this path alongside them. We recognise that breast cancer is a uniquely challenging experience for men, with a healthcare system that may not always feel inclusive. Here, no topic is off limits. You’re welcome to ask questions, share advice on treatment, vent your frustrations , or raise anything else that matters to you. Whether you're looking to connect, form friendships, or just know you're not alone in a world that often overlooks men with breast cancer, this is your space.
