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Help BCNA Online - Melbourne focus groups
Hello all, jess from BCNA here. BCNA is currently working to revise and redevelop our website and we need some help. We wanted to ensure that the information and services available to those affected by breast cancer is easy to access and understand. To help us do this, we are looking for people to attend a focus group in…
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Research
Please see link below. PA Research Foundation Brisbane Christmas Appeal. Their research involves discovering why breast cancer cells leach from the breast to settle in other parts of the body. If they can find out why cells behave like that, treatments will be better targetted and hopefull a cure for secondary breast…
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Meeting with Pharmaceutical Company Eisai
On Tuesday 16 September I represented BCNA as a Consumer Representative as a guest speaker at a luncheon being part of an internal conference run by Eisia, Eisai is a global research orientated pharmaceutical company committed to improving the health and all individuals worldwide regardless of wealth or geography. A drug…
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Why do I even need this test?
Hi everyone, I trust you all arrived home safely and had a quiet weekend. At SATT I mentioned the above resource. Some of you missed out on a copy ( i took too few). I have just found a report I wrote for BCNA about this. It has the Consumer Health Forum's link to the brochure. I am pasting the relevant section below. "…
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Register 4 research
Are you aged 18 years or older? Have you been diagnosed with breast cancer? Have you completed active treatment between 6 months to 5 years ago? If so, you may wish to participate in the Register4 research project. The study will compare the unmet needs and perceived self-efficacy of women who had access to a Breast Care…
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Breast Cancer Clothing Survey
Hi Everyone! I am currently in the process of developing a clothing line targeted at women that have undergone breast cancer surgery. My collection is aimed at providing a sense of femininity and confidence back to women. Please see bellow for the link to my market research survey.…
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Trials
Hello there lovely Triple Negative Sisters. Has anyone here been involved in clinical trials during their treatment ? There seems to be a lot of press about PARP inhibitors and I wonder what your knowledge of them are. I live on the Gold Coast, how many others live in SE Queensland? Who would you recommend to see about new…
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Update on Fund Raiser
Hi everyone, Some of you may have seen my earlier post on having a fund raiser for breast cancer research so I thought I'd let you know how it all went and post some pics. We were very proud of being able to give a little back to the Cancer Council who helped me this year with counselling and support. We had about 35…
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Love Your Sister
Hey all, Pretty cheeky of me to jump right into posting this after being AWOL for so long and just lurking, but I'm nothing if not cheeky. Samuel Johnson's charity Love Your Sister has been staging events all throughout Australia, and he's currently doing the Gold Coast Area and making his way down the NSW coast. I'm…
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EMPathy BCN: Research into secondary breast cancer continues ...
As a BCNA Consumer Representative with the EMPathy Breast Cancer Network, I hear about some amazing research into advanced breast cancer. This Australia-wide team of scientists, surgeons and oncologists are dedicated to researching cellular changes that may underpin secondary breast cancer. Please visit the EMPathy BCN…
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A day in the laboratory
In my role as a BCNA Consumer Representative I have been fortunate to be linked with Dr Kara Britt, a Research Fellow in the Faculty of Medicine, Nursing and Health Sciences at Monash University in the Melbourne suburb of Clayton. It was my privilege to recently be taken on a personalised tour through the university’s…
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Influencing change - Risk reducing medication journal article
You may remember in the Seat at The Table 2011 Year in Review, Amanda mentioned the work that Heather Drum and Gerda Evans did in getting health professionals to use the term risk reducing medication, when talking about medication that can reduce your risk of breast cancer developing. As a result of this work, Gerda was…
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Building a better bra!
Bra study If you missed it earlier, you might be interested to read the post by Kathy Wells about the research being undertaken by the University of Wollongong into developing better exercise bras for women living with breast cancer. Members of BCNA’s Review & Survey Group contributed to the research. * Read Kathy's post…
