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BRCA1 / Category 3 / Waiting list...is this normal?
Hello All, I'm hoping for some advice and feedback. After being diagnosed with HER2 positive BC, I was treated at St.Vincent's public (Melbourne). I was sent to Peter Mac, genetic clinic where I was found to carry BRCA1. I was told to finish my treatment (radiation) and then to return to Peter Mac to deal with the results.…
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Mastectomy bra
Hi All, I have just joined and would like to see if anyone knows if there is somewhere I can donate 2 x mastectomy bra's - they were my Aunties - 1 used and the other new - I know that these bra's can be expensive so happy to donate. Any suggestions would be great - I live in Brisbane but happy to post .
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Need for Lyphodema Arm sleeves
I don't actually know who needs these sleeves. Is it potentially anyone who has had a Mastectomy? Or only those who had axillary clearance? I've had both. I have been measured for Lyphodaema with the SOZO machine, and do not have it yet, 11 months after surgery. Has anyone else been recommended to get one, especially for…
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Post Mastectomy Pain
Hi I had her2 negative in left breast in 2019. I had chemo, lumpectomy and sentinel node removal, radiotherapy and Herceptin. Got the all clear then in November this year they found cancer in situ in what remained of left breast so I had a double mastectomy and some nodes removed on 4th Dec. The scars go from under my arms…
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Bespoke Bikini
Hello Beautiful People. It’s been a while since I posted. 3 months since mastectomy and starting tamoxifen. im healing well and almost back to full exercise. It’s been getting very hot and I’m trying to get comfortable at home without baring my remaining boob ( hubby and I call it bob.)Sarongs aren’t really comfortable…
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New Diagnosis - DCIS - trying to decide on which surgery to have
Hi Everyone, I'm new here and it's so lovely to see the support here. I was diagnosed last month with non-invasive DCIS and now need to have a mastectomy (I have very small breasts so there's basically nothing to save). I'm 39 and have no family history, so I don't have any friends or family who have been through this. My…
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husband not coping with my physical appearance since failed reconstruction
Hi I had a mastectomy and immediate reconstruction on breast that was prev radiated - I was aware of risk might fail and unfortuantely that has happened. 'I am left with a mound with nipple and v confronting to look at as sort of collapsed on itself. My husband is really struggling with my appearance and cant bear to look…
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Sentinel Node Localisation
Is there anything I should know to prepare myself for what they will do on Tuesday for my Mastectomy surgery the next day. Or is it better not to know. So far all I know is I have to go to a Nuclear Medicine Dept
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Decisions on my nipples
Hi All, I have recently had a double, nipple sparing, mastectomy and reconstruction. However, I have to have more of the teat removed as there is still cancer in it. Therefore, the surgeon has asked if I want to remove the other teat from my non-cancer breast, so they look equal. I just don’t know what to do, should I make…
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Early Stage Breast Cancer and Scleroderma
Hi, I'm 53 and I have just been diagnosed with Stage 1 breast cancer. Unfortunately due to having Scleroderma, a connective tissue - autoimmune disease, I cannot have radiotherapy, which would be the usual course after excision of the lesion. It has been recommended that I have a mastectomy and possibly breast…
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Is reconstruction right for me -
I am very new to all of this and the site. I had a diagnosis in May. Surgery within 3 weeks and then straight into chemo in June. I was told by my surgeon because my margin surgery was still not 100% that following chemo, there would be a mastectomy of my right breast. And that included a reconstruction and reduction of…
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To remove or not to remove..... that is the question
Hi all, I am 2 years post diagnosis. Left Mastectomy, Chemo, Radiation, Oophorectomy and taking Exemestane. I looking for advice from anyone who decided after treatment was finished instead of a reconstruction have the other breast removed for "evenness". I believe that the reconstructive surgery would be a pretty long…