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Lymphoedema Support Group of South Australia 25/9/2019
Hello everyone, my apologies for the late post, you can view Ms Bonaros speech from yesterday 25/9/19 via the link below. Lymphoedema Support Group of SA (LSGSA) Dear All, Following on from Ms Bonaros's speech in SA Parliament recently, The LSGSA has just received confirmation that Ms Connie Bonaros MLC (SA Best) who…
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Lymphoedema Sleeves
I don't have lymphoedema but in my internet noodling today I came across these. Thought they looked rather fun. No idea if they're any good but the woman I saw wearing one has had cancer three times and seemed pretty happy with her sleeve. https://lymphedivas.com/
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Lymphoedema podcast & general
Hi, I just wanted to say thank you for organising last nights pod cast. I have lymphoedema and the biggest thing that came out of it for me was that many of us don’t have that initial measurement done pre surgery. I have some wonderful physiotherapists looking after me but it has been hard when there wasn’t an initial…
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Recurrence in lymph nodes
Hi everyone, I was diagnosed with TN Inflammatory BC in late Oct 2017. Treatment was 5 mths of Chemo ( 8wks fortnightly A/C, followed by 12 weeks weekly Taxol) then modified radical mastectomy (rt breast and 3 lymph nodes) which showed only a tiny amount (1.3mm) of residual disease with excellent margins. There had been…
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Surgery Option or Not?
Hi Everyone, I was diagnosed de novo Stage 4 with breast, lymph node and bone/spine mets in Oct 2018. I've had really good response to treatment with Letrazole/Ribociclib/Denosumab whereby the breast lesion and lymph nodes are barely visible on my last CT/Bones scans in May, they've shrunken significantly. My bone/spine…
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Melbourne Lymphodema event 23 May 2019
Hi Melbourne ladies FYI this thurday 23rd May @ the Think Pink Living Centre is the lymphedema information session.(lunch provided) please click on the link below for further infor so you don’t miss out . Don’t forget to rsvp see you there 😁 https://www.thinkpink.org.au/centre-programs/reclaim-your-curves-23-may/
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Breast Cancer surgery - the gift that keeps on giving
Hi all. Feeling a bit down about just being diagnosed with lymphoedema. Thought I had dodged that bullet, but alas, no. The Lymphoedema specialist gave me a booklet by Cancer Australia, but it lacks practical advice from women who have been there, done that. Lymphoedema affects my fingers, hand and arm. Grateful for any…
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Baseline Measurement for Lymphoedema
Due to cording issues, I see a specialist physio on a reasonably regular basis. The clinic treats cancer survivors and obviously, lymphoedema issues. Last visit, the physio decided it was time to measure and scan me again for any swelling in the arm. My scan came out high (but it's a new machine so possibly that could be a…
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The gift that keeps giving 😞
http://liz.oriordan.co.uk/CancerBlog/moving-on/?post=one-door-closes I just received this blog post in my email What Liz has to say is all so true and so devastating. I've been navigating loss of job & identity since before my BC diagnosis nearly 4 years ago, but bc continued to take. I developed lymphoedema very soon…
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Lymphoedema Support Group of SA (LSGSA) ILF Survey: Chronic oedema outcome measure
The LSGSA hopes this email finds you well! We would like to share information with you about the ILF (International Lymphoedema Framework) Chronic Oedema Outcomes Measure survey - if you have not yet had the chance to participate there is still time. Open to Consumers, Health Professionals and Industry, it only takes a few…
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Jigsaw puzzles
I don't know why my physio didn't suggest it to me earlier but I have stumbled upon jigsaw puzzles for therapy. The repetitive movements of sorting pieces has done my lymphedema arm the world of good. Sitting around with not a lot of energy is boring and I put on movies to watch but I still like to be doing something to…