Hi, I just wanted to say thank you for organising last nights pod cast. I have lymphoedema and the biggest thing that came out of it for me was that many of us don’t have that initial measurement done pre surgery. I have some wonderful physiotherapists looking after me but it has been hard when there wasn’t an initial…
Hi everyone, I was diagnosed with TN Inflammatory BC in late Oct 2017. Treatment was 5 mths of Chemo ( 8wks fortnightly A/C, followed by 12 weeks weekly Taxol) then modified radical mastectomy (rt breast and 3 lymph nodes) which showed only a tiny amount (1.3mm) of residual disease with excellent margins. There had been…
Hi Everyone, I was diagnosed de novo Stage 4 with breast, lymph node and bone/spine mets in Oct 2018. I've had really good response to treatment with Letrazole/Ribociclib/Denosumab whereby the breast lesion and lymph nodes are barely visible on my last CT/Bones scans in May, they've shrunken significantly. My bone/spine…
Hi Melbourne ladies FYI this thurday 23rd May @ the Think Pink Living Centre is the lymphedema information session.(lunch provided) please click on the link below for further infor so you don’t miss out . Don’t forget to rsvp see you there 😁 https://www.thinkpink.org.au/centre-programs/reclaim-your-curves-23-may/
Hi all. Feeling a bit down about just being diagnosed with lymphoedema. Thought I had dodged that bullet, but alas, no. The Lymphoedema specialist gave me a booklet by Cancer Australia, but it lacks practical advice from women who have been there, done that. Lymphoedema affects my fingers, hand and arm. Grateful for any…
Due to cording issues, I see a specialist physio on a reasonably regular basis. The clinic treats cancer survivors and obviously, lymphoedema issues. Last visit, the physio decided it was time to measure and scan me again for any swelling in the arm. My scan came out high (but it's a new machine so possibly that could be a…
http://liz.oriordan.co.uk/CancerBlog/moving-on/?post=one-door-closes I just received this blog post in my email What Liz has to say is all so true and so devastating. I've been navigating loss of job & identity since before my BC diagnosis nearly 4 years ago, but bc continued to take. I developed lymphoedema very soon…
The LSGSA hopes this email finds you well! We would like to share information with you about the ILF (International Lymphoedema Framework) Chronic Oedema Outcomes Measure survey - if you have not yet had the chance to participate there is still time. Open to Consumers, Health Professionals and Industry, it only takes a few…
I don't know why my physio didn't suggest it to me earlier but I have stumbled upon jigsaw puzzles for therapy. The repetitive movements of sorting pieces has done my lymphedema arm the world of good. Sitting around with not a lot of energy is boring and I put on movies to watch but I still like to be doing something to…
Proudly supporting Breast Cancer Network Australia (BCNA). The SWIISH WALK4BCNA will see registrants participate in a 4km walk around Metcalfe Park, Sydney followed by a family friendly festival. The festival will include food vendors, health and fitness retailers, SWIISH and BCNA merchandise, children’s activities, yoga,…
More info about the Information Forum including speakers, location and to register can be found here. If you are unable to attend in person, you can still join us virtually. When registering, select ‘Information Forum – Attending Virtually’. The virtual session will be delivered via Zoom, and you will receive the access…
Come along for the Public Lymphoedema Information Day on Saturday, 4 November 2023. Register via the link https://www.lymphaustralia.org.au/_events.registration/step1/eventid/19893
Carman's Fun Run is back in 2024! Carman’s Fun Run will be held on Sunday 18 February 2024. Held at the picturesque Elsternwick Park, Brighton (located at the doorstep of the popular Elwood shops). Runners, walkers and joggers of all abilities can lace up, run your best and have fun doing it. Half-marathon, 10K or 5K…
