Lymphoedema Sleeves

kmakmkmakm MelbourneMember Posts: 7,614
I don't have lymphoedema but in my internet noodling today I came across these. Thought they looked rather fun. No idea if they're any good but the woman I saw wearing one has had cancer three times and seemed pretty happy with her sleeve.

https://lymphedivas.com/
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Comments

  • AfraserAfraser MelbourneMember Posts: 2,561
    I‘ve been tempted to get one a few times but as far as I can tell they are only available online so I can’t check the pressure level. Some excellent designs though. 
  • VangirlVangirl Melbourne CBDMember Posts: 311
    I have got one of their sleeves, they are okay but don't come in a wide range of sizes like the one ordered by my physio which was a Jobst brand one.
  • AfraserAfraser MelbourneMember Posts: 2,561
    That’s what I thought - I’ve got a Jobst made to measure. But would be fun on occasions! 
  • VangirlVangirl Melbourne CBDMember Posts: 311
    Yes they are nice in the different colours and patterns. I am going to check with my physio if they are okay to wear regularly given the not-exact sizing.
  • AfraserAfraser MelbourneMember Posts: 2,561
    Mine said not to, but fine for a special occasion. But it will depend on the individual case. 
  • GlynnisGlynnis Member Posts: 281
    @kmakm they are gorgeous patterns on some of them, I have lymphoderma would be great if anyone knew of somewhere in Oz that has them
  • AfraserAfraser MelbourneMember Posts: 2,561
    Mine said not to, but fine for a special occasion. But it will depend on the individual case. 
  • FlaneuseFlaneuse BrisbaneMember Posts: 868
    Very expensive for a special occasion. Think I'd rather spend it on an outfit and wear my free public health flesh-coloured one. 
  • AfraserAfraser MelbourneMember Posts: 2,561
    Which is why I haven’t bought one yet! And the ones I like best won’t match anything I own! 
  • GlynnisGlynnis Member Posts: 281
    @Flaneuse free public health one?? I’ve had to pay for both of mine
  • primekprimek Broken HillMember Posts: 5,182
    My lymphodema physio measured me and worked out which was okay for me. I don't always have lymphodema but have experienced it after traveling so have one for then. 
  • lrb_03lrb_03 Member Posts: 1,164
    They are sold in Australia under the name Lymphedonna
    The website is:

     lymphedonna.com.au

    My lymphoedema physio recently took over management of this product in Australia. They are said to be class 2 garments but certainly they are not as strong as my jobst garments. They certainly couldn't replace those. Liz has said it may be ok for me for occasional wear only, but not as a replacement for my usual garments.

    There are some great designs
  • SisterSister Adelaide Hills, SAMember Posts: 4,410
    @glynnis The lymphoedema rebates vary from state to state.  I live in SA and I believe that it is the only state that currently has no rebate.
  • GlynnisGlynnis Member Posts: 281
    @Sister Thank you, I'm check with my physio next month I seem to remember doing a form to perhaps get them cheaper but will look into it
  • lrb_03lrb_03 Member Posts: 1,164
    @Glynnis, the ALA (Australasian Lymphology Association) website has some information about what rebates are available for each state, as well as other useful information 
    Here's a link to the rebate page

    https://www.lymphoedema.org.au/about-lymphoedema/compression-garment-schemes/
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