Lymphoedema Support Group of SA (LSGSA) ILF Survey: Chronic oedema outcome measure

Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 849

The LSGSA hopes this email finds you well! 

We would like to share information with you about the ILF (International Lymphoedema Framework) Chronic Oedema Outcomes Measure survey - if you have not yet had the chance to participate there is still time. 

Open to Consumers, Health Professionals and Industry, it only takes a few minutes and the findings will be used to help improve patient outcomes!  Warm Regards,

LSGSA :)

 International Lymphoedema Framework Chronic Oedema Outcome Measure


INVITATION to participate in ILF international study on Chronic Oedema Outcome Measure

The Chronic Oedema Outcome Measure (ILF-COM) project is aiming to develop an internationally agreed set of outcome measures for patients with chronic oedema. As part of this project, the ILF is conducting an international survey. We invite patients, health care professionals and industry representatives worldwide to take part in this survey which can be accessed via this link: 

https://www.surveymonkey.com/r/CYSCKKT

Undertaking the international survey serves several purposes including identifying:
  • The range of outcome measures used in different countries and how these are viewed by the reimbursement and/or health care systems.
  • The issues that are important to patients as outcomes of care.
  • The challenges faced by the medical device industry in gaining reimbursement of products.
  • Outcome measures appropriate for use by reimbursement and health agencies, and for use in chronic oedema research.
Your input is important to help us understand the effects of lymphoedema treatment. With this information we would hope to set international standards. Read more about the ILF-COM project here.




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