Sutherland Shire Breast Cancer Support Group
Sutherland Shire Breast Cancer Support Group Anyone who has ever had a breast cancer diagnosis is most welcome to come along to any of our meetings. 1st Wednesday of the month 7-9 pm at Tradies Gymea 57 Manchester Rd Gymea *5.30 pm Pre-group dinner in Willow Restaurant 3rd Saturday of the month At Camelia Gardens Tea Rooms 9.45-11.45 am President Ave, Caringbah As March is Lymphoedema Awareness month we have guest speaker ,physio specialist and very experienced in all things Lymphoedema We have a Facebook page and an email group for newslettersLymphoedema Information Day
Registration has just been extended until 13th March Come along to Tamworth for the Regional Lymphoedema Information Day on Saturday 21st March. To attend this wonderful day of learning about lymphoedema, the best practice to treat and manage this condition, latest research, and opportunity to see and talk to our sponsors about their lymphoedema products! 7.30-10 am Session for medical and health care professionals only 10am -4.30 pm Sessions for public-everyone consumers ,medical and health care professionals https://www.lymphoedemasupport.com/upcoming-events/information-day-2020 Send your registration form in by 13th March Go to www.lymphoedemasupport.com and follow the links to register. Don't miss out! Please go to the Lymphoedema Support Group of NSW Facebook page and like and share their posts. This conference is priceless opportunity for anyone who has had breast cancer surgery, or who cares for people who have had bc surgery . (family or service industry) or other cancers especially head and neck, genital /urinary/gynaecological , melanoma,. Gp's,physios, occupational therapists, massage therapists, podiatrists,- lots of people who could benefit from top notch advice to be able to help the estimated 40,000+ people living with lymphoedemea in Australia & New Zealand You can also be born with lymphoedema or a predispostion to it , or it can result from an injury, can be a side effects from many other diseases also . Not restricted to breast cancer . Up to 20% of all breast,ovarian and prostrate cancer survivors develop lymphoedema. Early treatment leads to better outcomes. It is essential for patients to have education and adequate support to ensure compliance and self care to reduce the impact of this chronic condition and reduce associated complications due to inadequate self management of lymphoedema.Sutherland Lymphoedema Support Group
New Lymphoedema face to face Support group for anyone Southern Sydney,St George areas as well as the Shire etc/ 'Under the umbrella' of Lymphoedmea Support Group of NSW For all types of lymphoedmea, not just breast cancer related, but there are quite a few BC related lymphies in the group and on the email list already. Everyone welcome, whether you have Lo or not, carers of people with LO, curious, service providers, guys, girls... Lovely location with beautiful beach view. No need to RSVP , just turn up and grab a coffee at the cafe and join us around the table in the semi private dining room. More directions and images on the Facebook page. Primary contact to group coordinators is via phone and email at the moment Note: A special Introductory night time meeting on Tuesday 25th Feb 6 pm Cronulla RSL. This is a first time a night meeting has been organised. Or every Third Tuesday of the month 10.30am
Lymphoedema Sleeves
I purchased my first sleeve through the breastcare surgeons rooms and cost $79 for Jobst sleeve. However as I was made aware I would now need to wear this EVERY DAY for the rest of my life I checked around for better prices. I found a site in the US that sent very quickly and they also had a silicone topped sleeve which was a couple of dollars dearer but it grips and stays up and doesn't roll down so its my "good one" or "going out" one. I also found a place in Vic who send sleeves out and cost was $53. FYI Here is the screen shot of my order. HOWEVER, HUGE BUG BEAR OF MINE IS THAT IF YOU GO THROUGH THE PUBLIC SYSTEM YOU ARE GIVEN THREE A YEAR FOR FREE!!!!!! However, it is nigh near impossible to get into that public system once you've had surgery in private. In fact I am yet to get a breast care nurse - A year yesterday since diagnosis. Ive emailed, phoned local hospital and McGrath foundation, and even had my GP write and phone the local public hospital - yet to no avail. McGrath nurses listed aren't still doing it and there is NOT ONE McGrath nurse on the Gold Coast - Unbelievable. There is one at Tweed Heads, two at Ipswich and many more in Brisbane. Anyway that's another story. I did get a letter from the Gold Coast university Hospital responding to my GP's letter and phonemail saying they hope and estimate I should get an appointment within say 90-120 days!!!!!!
