Lymphoedema Information & Events
Lymphoedema can develop after breast cancer surgery or radiotherapy treatment. If lymph nodes are removed – usually from the armpit – fluid can build up and cause swelling known as ‘lymphoedema’. Find out what causes it, ways to reduce your risk of lymphoedema, and what to do if you develop lymphoedema. Signs and symptoms of lymphoedema Reduce your risk of lymphoedema Lymphoedema treatment Compression garments for lymphoedema Coping with lymphoedema Watch Ask the Expert 'Living well with lymphoedema' - with Maree O’Connor
Lymphoedema Information Day
Registration has just been extended until 13th March Come along to Tamworth for the Regional Lymphoedema Information Day on Saturday 21st March. To attend this wonderful day of learning about lymphoedema, the best practice to treat and manage this condition, latest research, and opportunity to see and talk to our sponsors about their lymphoedema products! 7.30-10 am Session for medical and health care professionals only 10am -4.30 pm Sessions for public-everyone consumers ,medical and health care professionals https://www.lymphoedemasupport.com/upcoming-events/information-day-2020 Send your registration form in by 13th March Go to www.lymphoedemasupport.com and follow the links to register. Don't miss out! Please go to the Lymphoedema Support Group of NSW Facebook page and like and share their posts. This conference is priceless opportunity for anyone who has had breast cancer surgery, or who cares for people who have had bc surgery . (family or service industry) or other cancers especially head and neck, genital /urinary/gynaecological , melanoma,. Gp's,physios, occupational therapists, massage therapists, podiatrists,- lots of people who could benefit from top notch advice to be able to help the estimated 40,000+ people living with lymphoedemea in Australia & New Zealand You can also be born with lymphoedema or a predispostion to it , or it can result from an injury, can be a side effects from many other diseases also . Not restricted to breast cancer . Up to 20% of all breast,ovarian and prostrate cancer survivors develop lymphoedema. Early treatment leads to better outcomes. It is essential for patients to have education and adequate support to ensure compliance and self care to reduce the impact of this chronic condition and reduce associated complications due to inadequate self management of lymphoedema.Sutherland Shire Breast Cancer Support Group
Sutherland Shire Breast Cancer Support Group Anyone who has ever had a breast cancer diagnosis is most welcome to come along to any of our meetings. 1st Wednesday of the month 7-9 pm at Tradies Gymea 57 Manchester Rd Gymea *5.30 pm Pre-group dinner in Willow Restaurant 3rd Saturday of the month At Camelia Gardens Tea Rooms 9.45-11.45 am President Ave, Caringbah As March is Lymphoedema Awareness month we have guest speaker ,physio specialist and very experienced in all things Lymphoedema We have a Facebook page and an email group for newslettersSutherland Lymphoedema Support Group
New Lymphoedema face to face Support group for anyone Southern Sydney,St George areas as well as the Shire etc/ 'Under the umbrella' of Lymphoedmea Support Group of NSW For all types of lymphoedmea, not just breast cancer related, but there are quite a few BC related lymphies in the group and on the email list already. Everyone welcome, whether you have Lo or not, carers of people with LO, curious, service providers, guys, girls... Lovely location with beautiful beach view. No need to RSVP , just turn up and grab a coffee at the cafe and join us around the table in the semi private dining room. More directions and images on the Facebook page. Primary contact to group coordinators is via phone and email at the moment Note: A special Introductory night time meeting on Tuesday 25th Feb 6 pm Cronulla RSL. This is a first time a night meeting has been organised. Or every Third Tuesday of the month 10.30amWarrnambool Information Forum: Recording now available!
BCNA hosted an Information Forum in Warrnambool for people living with breast cancer and their supporters. You can access the on-demand videos below: https://youtube.com/playlist?list=PLpvVCfUeAqMBu1pz4rP8kXZtxfriszl2e The Information Forum covered a range of topics including the latest in breast cancer treatment, strategies to enhance physical and emotional wellbeing, early detection and management of lymphoedema, and how you can live well during treatment and beyond. Guest speakers included Medical Oncologist, Associate Professor Ian Collins, Lymphologist and Director of the Lymphoedema Clinical Research Unit, Flinders University, Professor Neil Piller. Specialised Lymphoedema Physiotherapist Alicia Boyd , Oncology Social Worker Carrie Lethborg, Breast Care Nurse Rebecca Hay and BCNA members Katie Monigatti and Iris Bar
Lymphoedema Support Group of South Australia 25/9/2019
Hello everyone, my apologies for the late post, you can view Ms Bonaros speech from yesterday 25/9/19 via the link below. Lymphoedema Support Group of SA (LSGSA) Dear All, Following on from Ms Bonaros's speech in SA Parliament recently, The LSGSA has just received confirmation that Ms Connie Bonaros MLC (SA Best) who continues to support the LSGSA's advocacy efforts, will be raising a motion TODAY calling for: - Compression Garment Scheme and - Dedicated Public Lymphoedema Services in SA. Ms Bonnaros will be speaking in the SA Legislative Council sometime after 4 pm today (25/9/2019) You can watch Ms Bonaros's Speech here: https://www2.parliament.sa.gov.au/broadcast/LiveBroadcast.html?fbclid=IwAR37QLPmjMz5SXbx1TSmJc2rlmXTs-Gc8zRQXArscgqiQznMg9xRwp52-Zo The LSGSA continues to work hard to bring about meaningful and sustainable change for the SA Lymphoedema Community and we need your help. How can you show your support? 😊 Share this email with anyone you feel would be able to help. 😊 Attend the Public Gallery at Parliament House (25/9/19) 😊 Contact your local MP - let them know how the lack of a compression garment subsidy and dedicated public services affects YOU. Ask them to support the LSGSA and join the call for better health outcomes for the SA Lymphoedema Community. 😊 Become a member of the LSGSA - the more members we have the stronger our voice. Best regards, Lymphoedema Support Group of SA (LSGSA) Monique Bareham Alison Neilson Jill Whitford June Bird President Vice President Secretary Treasurer Ph: 0408 263 994 Postal Address: PO Box 220 Georgetown SA 5472 Email: lsgsa.adelaide@gmail.com
Melbourne Lymphodema event 23 May 2019
Hi Melbourne ladies FYI this thurday 23rd May @ the Think Pink Living Centre is the lymphedema information session.(lunch provided) please click on the link below for further infor so you don’t miss out . Don’t forget to rsvp see you there 😁 https://www.thinkpink.org.au/centre-programs/reclaim-your-curves-23-may/Lymphoedema Support Group of SA (LSGSA) ILF Survey: Chronic oedema outcome measure
The LSGSA hopes this email finds you well! We would like to share information with you about the ILF (International Lymphoedema Framework) Chronic Oedema Outcomes Measure survey - if you have not yet had the chance to participate there is still time. Open to Consumers, Health Professionals and Industry, it only takes a few minutes and the findings will be used to help improve patient outcomes! Warm Regards, LSGSA :) International Lymphoedema Framework Chronic Oedema Outcome Measure INVITATION to participate in ILF international study on Chronic Oedema Outcome Measure The Chronic Oedema Outcome Measure (ILF-COM) project is aiming to develop an internationally agreed set of outcome measures for patients with chronic oedema. As part of this project, the ILF is conducting an international survey. We invite patients, health care professionals and industry representatives worldwide to take part in this survey which can be accessed via this link: https://www.surveymonkey.com/r/CYSCKKT Undertaking the international survey serves several purposes including identifying: The range of outcome measures used in different countries and how these are viewed by the reimbursement and/or health care systems. The issues that are important to patients as outcomes of care. The challenges faced by the medical device industry in gaining reimbursement of products. Outcome measures appropriate for use by reimbursement and health agencies, and for use in chronic oedema research. Your input is important to help us understand the effects of lymphoedema treatment. With this information we would hope to set international standards. Read more about the ILF-COM project here.Lymphoedema Today Friday Saturday 27 October 2018 South Australia
The Lymphoedema Support Group of South Australia (LSGSA) Warmly invite you to join us for our 2018 lymphoedema information session Lymphoedema Today Including the LSGSA 2018 AGM Guest Speaker Dr. Vani Prasad — Plastic Surgeon/Lymphoedema Consultant PLUS a fun Yoga Session by Dawn Marsh - Dru Yoga Teacher ‘Always You Yoga and Relaxation’ When: Saturday 27th October 2018 from 11 am—3 pm Where: Cancer Council SA — 202 Greenhill Road Eastwood SA • $2 Raffle • Light Refreshments • Displays • Nutrition Demonstrations LSGSA Members FREE • Non LSGSA Members $5 *Renew or join on the day and get in for FREE Please RSVP by Friday 19th October to: lsgsa.adelaide@gmail.com See attached flyer
Lymphoedema Sleeves
I purchased my first sleeve through the breastcare surgeons rooms and cost $79 for Jobst sleeve. However as I was made aware I would now need to wear this EVERY DAY for the rest of my life I checked around for better prices. I found a site in the US that sent very quickly and they also had a silicone topped sleeve which was a couple of dollars dearer but it grips and stays up and doesn't roll down so its my "good one" or "going out" one. I also found a place in Vic who send sleeves out and cost was $53. FYI Here is the screen shot of my order. HOWEVER, HUGE BUG BEAR OF MINE IS THAT IF YOU GO THROUGH THE PUBLIC SYSTEM YOU ARE GIVEN THREE A YEAR FOR FREE!!!!!! However, it is nigh near impossible to get into that public system once you've had surgery in private. In fact I am yet to get a breast care nurse - A year yesterday since diagnosis. Ive emailed, phoned local hospital and McGrath foundation, and even had my GP write and phone the local public hospital - yet to no avail. McGrath nurses listed aren't still doing it and there is NOT ONE McGrath nurse on the Gold Coast - Unbelievable. There is one at Tweed Heads, two at Ipswich and many more in Brisbane. Anyway that's another story. I did get a letter from the Gold Coast university Hospital responding to my GP's letter and phonemail saying they hope and estimate I should get an appointment within say 90-120 days!!!!!!
