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Lymphoedema Information & Events

Mez_BCNA's avatar
Mez_BCNA
Community Manager
23 days ago

This discussion thread can be used by members to add any lymphoedema information and events that may be of interest to other members!

Lymphoedema can develop after breast cancer surgery or radiotherapy treatment. If lymph nodes are removed – usually from the armpit – fluid can build up and cause swelling known as ‘lymphoedema’.

Find out what causes it, ways to reduce your risk of lymphoedema, and what to do if you develop lymphoedema.

Signs and symptoms of lymphoedema

Reduce your risk of lymphoedema

Lymphoedema treatment

Compression garments for lymphoedema

Coping with lymphoedema

Watch Ask the Expert 'Living well with lymphoedema' - with Maree O’Connor 

Published 23 days ago
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8 Comments

    • Kristen's avatar
      Kristen
      Member

      No. They did an Information day and trade show not long ago in Melbourne & also SA last year/2024.  QLD in 2023. These events  are as rare as hens teeth. Very expensive to put on and lot of hard work . LAA is all volunteers and sponsors. They try to keep membership cost down so more accessible to everyone. So do not have resources to do these events very often at all.

      But the Sydney event on 26th July  is online as well as face to face , so anyone can watch from anywhere. Recorded too. Previous Information day recordings are very informative and available to buy in the online shop.    https://www.lymphaustralia.org.au/resources/online-shop/

       

      NB The only VIC support group is in Warrnambool. Each support group relies on volunteers willing to pick a place and be there each month or second month.Its not hard to do and very rewarding .

      • Kristen's avatar
        Kristen
        Member

        Yes I do know of those great organisations, and many more.Thanks.

        No, no other LAA events planned  for Melbourne  as far as I know , as i explianed on reply to Zelda. Not enough  volunteers. (Hence importance of getting as many peeps registered to the very rare live Sydney in person and  /online  event)

        List of Lymphoedema Support groups, including an online zoom one,  are on https://www.lymphaustralia.org.au/get-involved/support-groups-/

        They have a calender of events https://www.lymphaustralia.org.au/events/calendar-of-events/

        eg I have Sutherland /st george  lymph  group tommorow at Tradies Gymea.Our group does bi monthly , weekday afternoon because thats what suits us three regulars/coordinaters. 

        Some Previous LAA Lymphoedema Information Day multi speaker event recordings are available to buy in the online store. https://www.lymphaustralia.org.au/resources/online-shop/

        There are several other members events which  were  recorded webinars, ( Feel good enabling patient self management,Myth busting, Orthopaedic surgery... )  , also  newsletters and more, are all available in the LAA members section . Membership is only $40 per finacial year.Anyone can join. Consumers, carers, health professionals.

        The more members - the more we can stand together and be counted and data/ numbers  help a lot for advocacy with government bodies etc. 

        https://www.lymphaustralia.org.au/membership/become-a-member/

         

        If i see any other new special Lymphie specific events that may be suitable  for BCRL , i will pop them here as well as my socials .

        Lymphoedema Lymphatics Stuff

         

         

         

         

         

        ps Image as an example of LAA content, here is a screen shot from one of the 2024 presentations ,( which coincided with the ALA conference. )Cherly presented a heap of summaries from many research papers and was specific to 'at risk of lymphoedema ladies'. So was a little different to other content .

         

        PSS ALERT annual March event is always a good one.

        https://youtu.be/GBWq6rsB0hY?si=PJXfYeymCRT7qztL

    • Kristen's avatar
      Kristen
      Member

      Do join LAA as a member first , to then get half price registration for the information day. Virtual too, recordings only to those who register. !! Don't miss it.  https://www.lymphaustralia.org.au/membership/become-a-member/

      I started going to these info days 15 years ago when i just started getting a puffy arm and my therapist encouraged me to learn  why i need to take action to slow the swelling no and not wait a day longer- best thing i ever did for myself.  Learn and take away the fear. Get empowered  so you can control your lymphoedema.

      Other information in my older thread eg our zoom support group , my personal Lymphodema Lymphatic Stuff socials. Lymphoedema Information Day | BCNA Online Network

       

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