Sydney Lymphoedema Public Information Day
Hi All Lymphoedema Association Australia is an organisation of volunteers aiming to support anyone living with lymphoedema. On 26/7/25 we are holding an information day in Sydney. Details below. For full disclosure, I am the current board President https://www.lymphaustralia.org.au/eventdetails/29672/laa-sydney-public-information-day-nsw
Lymphoedema compression bra cost
After months of trying to use a sports bra with a lymph flow pressure pad my lymphoedema physio has just recommended I move to proper lymphoedema compression bras and am gobsmacked at the cost. I rang the State Wide Equipment Program who fund lymphoedema compression garments in Victoria who advise bras are not covered under this program. Does anyone have any other suggestions for how to get these at a subsidised cost? I don’t have $700 laying around to get 2 bras and a night time compression band.
Do you have lymphoedema?
The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey which will help them to develop appropriate patient information resources. You can complete the survey via this link: https://mquni.au1.qualtrics.com/jfe/form/SV_721VztSK5hUBU8K
Sutherland Shire Breast Cancer Support Group
Sutherland Shire Breast Cancer Support Group Anyone who has ever had a breast cancer diagnosis is most welcome to come along to any of our meetings. 1st Wednesday of the month 7-9 pm at Tradies Gymea 57 Manchester Rd Gymea *5.30 pm Pre-group dinner in Willow Restaurant 3rd Saturday of the month At Camelia Gardens Tea Rooms 9.45-11.45 am President Ave, Caringbah As March is Lymphoedema Awareness month we have guest speaker ,physio specialist and very experienced in all things Lymphoedema We have a Facebook page and an email group for newslettersLymphoedema Information Day
Registration has just been extended until 13th March Come along to Tamworth for the Regional Lymphoedema Information Day on Saturday 21st March. To attend this wonderful day of learning about lymphoedema, the best practice to treat and manage this condition, latest research, and opportunity to see and talk to our sponsors about their lymphoedema products! 7.30-10 am Session for medical and health care professionals only 10am -4.30 pm Sessions for public-everyone consumers ,medical and health care professionals https://www.lymphoedemasupport.com/upcoming-events/information-day-2020 Send your registration form in by 13th March Go to www.lymphoedemasupport.com and follow the links to register. Don't miss out! Please go to the Lymphoedema Support Group of NSW Facebook page and like and share their posts. This conference is priceless opportunity for anyone who has had breast cancer surgery, or who cares for people who have had bc surgery . (family or service industry) or other cancers especially head and neck, genital /urinary/gynaecological , melanoma,. Gp's,physios, occupational therapists, massage therapists, podiatrists,- lots of people who could benefit from top notch advice to be able to help the estimated 40,000+ people living with lymphoedemea in Australia & New Zealand You can also be born with lymphoedema or a predispostion to it , or it can result from an injury, can be a side effects from many other diseases also . Not restricted to breast cancer . Up to 20% of all breast,ovarian and prostrate cancer survivors develop lymphoedema. Early treatment leads to better outcomes. It is essential for patients to have education and adequate support to ensure compliance and self care to reduce the impact of this chronic condition and reduce associated complications due to inadequate self management of lymphoedema.
Early stage lymphoedema
Hi everyone. So I’ve just come back from one of my lymphoedema clinic appointments and they said my sozo measures and arm measurements were a bit high. I’ve been given some extra exercises and self lymph draining massage instructions to do but I was just wondering for anyone who has had reversed it fro this stage had any extra tips that I can do to maximise my chances of turning this around ive got another appointment in 5 weeks and if it hasn’t changed they want to look at compression which I’m keen to avoid with the weather warming up I’m a busy mum of three and work from home on our own business too so there’s no time for gyms or yoga or anything like that, just looking for extra things I can incorporate into my already packed days. Appreciate any tips and tricks that you may have just for background I’ve had left side mastectomy, full auxiliary clearance, 3 weeks radiation and 16 rounds of chemotherapy all completed. Still doing immunotherapy and taking anastrozole Thanks and have a great day 🙂
Risk of Lymphoedema following skin cancer punch biopsy?
I was diagnosed in June 2018. I had 6 months of chemo, then surgery, followed by 3 weeks of radiation. I have avoided needles and having blood pressure measured from the arm where the nodes were removed. I now have a suspected squamous cell carcinoma under my index fingernail and a suspected melanoma on that arm. I have been referred on to a dermatologist as the skin cancer specialist at the clinic was reluctant to do it due to risk of lymphoedema. Anyone had anything similar?Sutherland Lymphoedema Support Group
New Lymphoedema face to face Support group for anyone Southern Sydney,St George areas as well as the Shire etc/ 'Under the umbrella' of Lymphoedmea Support Group of NSW For all types of lymphoedmea, not just breast cancer related, but there are quite a few BC related lymphies in the group and on the email list already. Everyone welcome, whether you have Lo or not, carers of people with LO, curious, service providers, guys, girls... Lovely location with beautiful beach view. No need to RSVP , just turn up and grab a coffee at the cafe and join us around the table in the semi private dining room. More directions and images on the Facebook page. Primary contact to group coordinators is via phone and email at the moment Note: A special Introductory night time meeting on Tuesday 25th Feb 6 pm Cronulla RSL. This is a first time a night meeting has been organised. Or every Third Tuesday of the month 10.30amWarrnambool Information Forum: Recording now available!
BCNA hosted an Information Forum in Warrnambool for people living with breast cancer and their supporters. You can access the on-demand videos below: https://youtube.com/playlist?list=PLpvVCfUeAqMBu1pz4rP8kXZtxfriszl2e The Information Forum covered a range of topics including the latest in breast cancer treatment, strategies to enhance physical and emotional wellbeing, early detection and management of lymphoedema, and how you can live well during treatment and beyond. Guest speakers included Medical Oncologist, Associate Professor Ian Collins, Lymphologist and Director of the Lymphoedema Clinical Research Unit, Flinders University, Professor Neil Piller. Specialised Lymphoedema Physiotherapist Alicia Boyd , Oncology Social Worker Carrie Lethborg, Breast Care Nurse Rebecca Hay and BCNA members Katie Monigatti and Iris Bar
Some neat programs available on Counterpart ..... you can sign up to them
There are some programs on Counterpart (which is based in Vic, but hopefully members in any state should be able to sign up) - on Scanxiety (particularly for those with Mets) ... Lymphoedema, you can do Yoga, even belly dance - and meditative painting ... and also peer support. Check the programs & events here - and bookmark it for the future too. https://counterpart.org.au/events-programs/events/
