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robsue's avatar
robsue
Member
14 years ago

still have chemo brain

hi all just wondering how long does it take for the foggy head and confusion etc go after chemo l finished 22 dec some days l find it really hard to stay focused on task or even have trouble telling people things or rembering things names ,

l even manage to burn dinner atm , l get tired very easy,and find the tired l get the worst my brain gets is this normal cause l seem to not know what is normal atm

my finger tips are still very sensative and some days they tend not to want to work  drop things easily ,

 

but the most exciting thing of all is that my hair is growing back  its come back salt and pepper color  and is very different to normal my color blonde but thats ok l quiet like it .    regards robsue

9 Replies

  • hi.. great to read a few comments from everyone.

     " Friends are like knickers....Some crawl up your arse.. Some snap under pressure......Some don't have the strength to hold you up..Some get a little sideways.. Some are your favorite.. Some are holey..Some are cheap and just plain nasty.. And some actually do cover your arse when u need them to...!! "

     

    regarding chemo brain... some people can have ongoing cognitive effects after treatment.

    regarding your friend robsue... sounds like she relied on you and now things are different. i hope you can explain it to her, and she listens. if not then you could see a bit less of her. relationships do change..everything changes over time.

    looking after your health and your family, would be number one priority at the moment?

    re lymphoedema.. i hope you get to see a good physio or manual lymphatic drainage massage person soon. i think there are some people who have better knowledge than others. i hope you find a good one.. kathy.

     

     

  • Hi Robsue,

    Have you consider "writing" to your friend regarding the new you and what you need from her to support you?

     

  • thank you to all for you help and thank moria for the saying l love it , l have posted it on my facebook so thank you very much see how we go ???

  • I will be copying this little paragraph and will be passing it on to my workmates.  They all know where they fit!!!!XLeonie  PS  The one who don't know where they fit - I might have to explain it to them - very nicely of course.

  • Hi robsue,

    My chemo brain lasted for many months.Now I think I've moved onto Tamoxifen brain! I am very forgetful and easily distracted. If I have a friend or relative who upsets me,I just take "time out"from them.I try not to be available for awhile.This gives me time to calm down and see things more clearly. None of us are perfect and we need our friends even though they irritate us from time to time.

                                  Tonya xx

  • A we have said many times one here, unless you have gone through the journey, you dont quite understand, i think we are from an age, where you are ill, you keep plodding on, and you get over it... all good normally, but we all on here know bc is a different case from any illness we have had in the past, yes some of us are lucky enough to finish treatment, but like chemo brain, and the psychological side of this, and not to mention the fear of it returning we are still living with it.  i know when i was first diagnosed my first question was AM i going to Die. and i think we have all thought the same at some point during our journey, did you give your friend the leaflet from the bcna my journey kit? if so, next time she tries to make you feel guilty, ask her if she has read it, and also mention she could maybe do some research on helping and understanding the emotions you have to put up with at the moment. friendship work 2 ways.  My niece from scotland posted this on my wall on facebook so thought i would share it. APT!!!!

    Friends are like knickers....Some crawl up your arse.. Some snap under pressure......Some don't have the strength to hold you up..Some get a little sideways.. Some are your favorite.. Some are holey..Some are cheap and just plain nasty.. And some actually do cover your arse when u need them to...!! Send this to all your best knickers :)

    Keep thinking of yourself, and let your friend know this is the new you. take Care Moira

  • Hi, Isnt Chemo Brain frustrating? I have times when I cant string a sentence together and it is very embarressing! I am still having chemo, nearly finished, and hope it doesnt last too long as well, I have been told 6 months to a year, but I guess everyone is different. My hair has started to grow back and is also nearly all grey instead of brown. Is this common?

    Good Luck Jacqui

  • thought would just , my close friend was ok in the start of chemo and then during seemed   to change as in  like telling me to  do things go, out , she  has a flower shop and expected me to be there everyday , we hubbyand l have told her that l just cant do what l used to and even now after chemo finished and radation finished she just tells me that youre finished treatment now you should be back to the person you were and that l  l shouldnt be tired sore feel sick etc, but we have tryed to tell her that l still not right  l just dont know what to do she wont listen and l get upset but the comments that she will make to me , or her young daughter 7 yrold she is very rude tells me l look stupid with no hair  ,ect my girlfriend doesnt even tell her child off what can l do .

      so confused that atm l dont like being around her, 

     does anyone know what l can do or say l know that l have changed as in its me time and l do waht l want when l want and not be told to do something then and there but alot has gone on with me in the last 10 months with breast cancer that somedays you just cant get youre head around it all

    regards robsue sorry lve put this in the wrong post its a new post see chemo brain and now l dont know how to put it up on new post

  • thought would just , my close friend was ok in the start of chemo and then during seemed   to change as in  like telling me to  do things go, out , she  has a flower shop and expected me to be there everyday , we hubbyand l have told her that l just cant do what l used to and even now after chemo finished and radation finished she just tells me that youre finished treatment now you should be back to the person you were and that l  l shouldnt be tired sore feel sick etc, but we have tryed to tell her that l still not right  l just dont know what to do she wont listen and l get upset but the comments that she will make to me , or her young daughter 7 yrold she is very rude tells me l look stupid with no hair  ,ect my girlfriend doesnt even tell her child off what can l do .

      so confused that atm l dont like being around her, 

     does anyone know what l can do or say l know that l have changed as in its me time and l do waht l want when l want and not be told to do something then and there but alot has gone on with me in the last 10 months with breast cancer that somedays you just cant get youre head around it all

    regards robsue sorry lve put this in the wrong post its a new post see chemo brain and now l dont know how to put it up on new post