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Harlee's avatar
Harlee
Member
9 years ago

Lymphoedema and insect bites

All the information I can find about lymphoedema says to avoid insect bites, which is good advice - until you have been bitten.

I don't have lymphoedema but had 4 lymph nodes removed with my surgery so I have been told that I am at risk. I am also allergic to most insect bites and stings. Great combination.
Last week I was bitten by an ant on my at risk arm. I immediately took anti histamine and thought everything was ok until the next morning when I woke with a 10cm swelling around the bite. I tried to make an appointment with either of the GPs I routinely see but neither were available. I had also run out of anti histamine - oops.
So I decided to go to the medical centre where you supposedly don't need appointments and also pick up some more anti histamine. I stupidly asked for advice at the pharmacy but they didn't want to sell me anything and said I needed to see a doctor. Fine - I only went to the pharmacy first because I had to walk past it to get to the medical centre. So I arrive at the medical centre and despite the sign on the door saying no appointments necessary it turns out that I did need an appointment and I couldn't get one for 3 days. I called 2 more medical centres but apparently most the doctors were at a conference or something because no one could see me that day. 
At this point I was starting to panic just a little. I tried to call the breast nurse who was unavailable. The swelling on my arm was now at about 25 cm and rapidly getting worse. I've been allergic to insect bites for years and had never had a reaction like this. I considered going to the emergency department of the local hospital but I was concerned about sitting there for hours waiting for treatment.
So I went to a different pharmacy (hid my arm) and bought more anti histamine and then went home and started to treat the swelling myself. By this time I was swollen from my wrist to my armpit. I elevated my arm and alternated using ice packs and my compression sleeve (I use this when travelling) and did the lymphoedema massage I had been shown when my sleeve was fitted and the swelling started to reduce. After several hours it was back to about a 5 cm swelling which is my typical response to an ant bite. 
Interestingly yesterday I was bitten again but this time on my other arm. I took anti histamine right away and this morning I have a small swollen area about 3-4 cm. 

I've already decided that next time:
1. I will NEVER EVER run out of anti histamine again. I now have multiple packets - in my handbag, in my travel toiletries, in my gym bag, and in the medicine drawer at home. 
2. I will NOT run around trying to visit doctors and buy drugs. If necessary I will call a friend who can do all that I will remain still and treat the swelling. 
3. I have made an appointment with my doctor next week to review what happened.

So has anyone else had this experience? 
What are we supposed to do if we are unlucky enough to be bitten on our at risk arm? 

17 Replies

  • We have midge bites in Qld which can be ferocious.  I was advised to wash the bite asap in soapy water, then dab on meths from the chemist.  It really works - swelling goes down and itch disappears.
  • I have no lymph nodes left underarm and do get lymphedema on and off all the time. If I do too much exercise with the arm or multiple lift more than 5kg with it, the next days it will be swollen and stiff. Most of the time I can get away with massage only. Sometime I need to use the sleeve. I LIVE with Aerogard on to combat any mozzies or sand-flies.
  • I do have lymphoedema and can react quite strongly to mozzie bites but one advantage of a pressure sleeve is the the little suckers can't easily get through it! So far (over 3 years) no problem. I have had a few cuts and scratches but prompt cleaning and antiseptic has kept me clear of any infection or swelling so far. But good to be prepared!
  • Gosh that looks painful. I wish I had taken a photo of my swollen arm but I was too freaked out to think straight. 
    I am hoping that my GP will give me a bit of an action plan so that if I'm ever bitten on that arm again I will know exactly what to do.
    It was a bit frustrating when I kept googling and the only information I could find was to avoid insect bites! The only person I ever knew to tried to get bitten was the guy who stuck his arm in the mossie cage in the TV ad and a weird kid in primary school! 
  • Since chemo I've been bitten twice and had horrendous responses. One was on my eyelid but face swelled. I tried ice packs and antihistamines also. I was a little sensitive before but much worse now. If my swelling had worsened I was going to emergency department. Prednisone would probably be prescribed if not infection and would settle quicker.

  • Hi Harley, I had 12 nodes removed on my left but haven't been bitten as far as I know although we had a mozzie in our room this week but it filled up on my husband. I did scratch myself on a rose thorn though high up on that arm but didn't react & was stung on my toe by a bee on that side. We are always going to worry but have to live life at the same time. At least you know how to treat it now and have your drugs handy, may be even carry in your bag when out. Also your GP might have some other options!
  • Hi Harley B I didn't even know we were supposed to watch out for bites!! (Not that you'd go searching for them) but only knew about blood pressure etc. So thank you for this info. Hope your arm goes back to normal. Xx Cath