Forum Discussion

melclarity's avatar
8 years ago

Fibromyalgia and Aromatase Inhibitors

Hey Everyone!

I've been on Arimidex for about 14 months now and side effects have been quite debilitating in terms of joint, muscle pain. I came off as recommended for 6 weeks and kept a diary for my Oncologist, I am yet due to see him but the symptoms reduced dramatically. I know there are alot of women who suffer side effects and there are some women who also suffer NONE! 

I was diagnosed with Fibromyalgia about 14 years ago, as the years went on I forgot all about it and got on with life, lets face it who has time for it right?? My Medical Team said I suffered so badly through chemo due to Fibromyalgia and that for some reason it affects sufferers badly. I didnt think about it as I said I forgot all about it, it doesnt rule my life and I put up with pain. 

The other alarming thing that has come to light is and why I want to share this is, if you have FIBROMYALGIA any Aromatase Inhibitors such as Arimidex actually make the pain worse. 

I thought it worth mentioning to anyone else out there who has this and if you are suffering on medication this is most likely why. The answer??? I honestly don't know but will talk to my Oncologist, I know Magnesium is important with Vit D. but since going back on Arimidex the past 2 weeks have been horrific in terms of pain...and finally I worked it out. 

Melinda xo
  • Jeez @melclarity, you've really been hit every which way!  I hope the oncologist can come up with a solution for you. We're here for you!
    Aine
  • @nikkid You know its so interesting because it's not something I thought too hard about, I just thought I suffered joint pain, but its so much worse than that. There is no cure for it and there is nothing I can even take to manage it, so am hoping there will be some compromise with the meds, I do think too menopause adds to the whole pain as well. I didnt have this pain really on Tamoxifen either that or I was just used to the constant pain I was in that I didnt realise? My next question will be to the Oncologist is if Tamoxifen didnt work how do I know if Arimidex will? and if not then I may as well have quality of life and not have it. x
  • It's good you have worked it out Melinda @melclarity but how awful to be experiencing pain like this. I really hope there's a solution that might help xxxxxx