Fibromyalgia and Aromatase Inhibitors
Hey Everyone! I've been on Arimidex for about 14 months now and side effects have been quite debilitating in terms of joint, muscle pain. I came off as recommended for 6 weeks and kept a diary for my Oncologist, I am yet due to see him but the symptoms reduced dramatically. I know there are alot of women who suffer side effects and there are some women who also suffer NONE! I was diagnosed with Fibromyalgia about 14 years ago, as the years went on I forgot all about it and got on with life, lets face it who has time for it right?? My Medical Team said I suffered so badly through chemo due to Fibromyalgia and that for some reason it affects sufferers badly. I didnt think about it as I said I forgot all about it, it doesnt rule my life and I put up with pain. The other alarming thing that has come to light is and why I want to share this is, if you have FIBROMYALGIA any Aromatase Inhibitors such as Arimidex actually make the pain worse. I thought it worth mentioning to anyone else out there who has this and if you are suffering on medication this is most likely why. The answer??? I honestly don't know but will talk to my Oncologist, I know Magnesium is important with Vit D. but since going back on Arimidex the past 2 weeks have been horrific in terms of pain...and finally I worked it out. Melinda xo
Pain after breast cancer
I am almost 2 years post breast cancer diagnosis and omg the bone pain is horrendous. I’m currently on Letrozole, Gabapentine, vitamin D and calcium my pain is 24/7 from my feet to my head and I’ve had a continuous pain in the middle of my back. I have an appointment to see a rheumatologist this week… but omg I just need some relief from it….I have looked in to medicinal cannabis what are everyone’s thoughts please
Tamoxifen side effects
I've been taking Tamoxifen (exemestane) for 3 weeks now. The hot flushes are manageable but the pain in my joints and muscles has been pretty bad. I was told it usually peaks at 4 to 6 weeks? Does it get easier then or just plato? Circulation seems to help but by the end of the day I'm sore and tired and the last thing I feel like is exercise. Nights are the worst, I'm not sleeping well and after a while laying in bed because pretty painful too. Does it get better or do you get used to it? It started mostly in my legs (feet, ankles, knees then into my calfs) and then my groin. Now my chest, elbows and wrists have started? My journey has happened quickly, 8 months since diagnosis, chemo, surgery and radiation. Stage 3. They said this is my best shot so I want to make it work. Does anything make it easier? Hemp oil? Vitamins? Anything?
I thought I'd gotten over the hand/wrist pain!
Damn!! I can't believe it! My right hand & wrist suddenly went back to massive ache & pain late last night (just like when I was initially on Letrozole just under 4 years ago ...) along with trigger finger on my ring finger & middle finger - has come back again too! grrr I can't believe it - it has been fine for the last 2 years! I really thought I was 'over' that bit!! grrr Back then, it was excruciating - as it is now. Just the one hand/wrist .... so far! It is very 'stiff' and difficult to form a fist and has absolutely no strength and just continual ache/pain. It started about 11.30pm last night, so I took some Panadol osteo and rubbed Voltaren gel on it & wrapped it in a bandage to support the wrist - which at least helped me get some sleep ... but it is very painful again this morning. :( Medicinal cannabis oil over 2 years helped the last time ..... and occasional prednisone ... might be time to break that out again! NOT HAPPY, JAN! :(
Kunzea Balm
I wondered if anyone else has tried using the Kunzea Balm to help with painful hands/ joints as a side effect of treatment? I have only been using this for less than a week and can't believe the difference it has.made to the stiffness and soreness in my hands,especially of a morning. I have been massaging it into my hands each night before bed. Hope this might be of some help to anyone else suffering with painful hands/joints. Michele xx
Joint issues or rheumatoid arthritis?
After 5 months of Letrozole and now a 3 week holiday from it because of developing very sore trigger fingers in both hands that has now increased to thumbs and wrists with persistent bone aches, my GP ordered a blood test for Rheumatoid Factor the normal range is less than 14, mine is at 508. I’m now waiting to see a rheumatologist to assess if it is actually rheumatoid arthritis 🙁 Has anyone else had their RF go up after Aromatase Inhibitors?
