Pain after breast cancer
I am almost 2 years post breast cancer diagnosis and omg the bone pain is horrendous. I’m currently on Letrozole, Gabapentine, vitamin D and calcium my pain is 24/7 from my feet to my head and I’ve had a continuous pain in the middle of my back. I have an appointment to see a rheumatologist this week… but omg I just need some relief from it….I have looked in to medicinal cannabis what are everyone’s thoughts please82Views0likes5CommentsThe use of Medicinal Cannabis Oil in Cancer Treatment - WEBINAR next Tues (Aus Time)
The use of Medicinal Cannabis Oil (MCO) in the treatment of Cancer is a much debated topic - yet it is still not readily available to Australians, even tho many countries in the world allow it's use for both quality of life in those with cancer, pain relief & some claim to be NED after using MCO ... many who've used it also rely on it for both stimulation of appetite, pain control and the ability to live your life with some degree of dignity and enjoyment. There are many different strengths in MCO - to deal with mild or chronic pain thru to extreme pain - and discussion with a professional is recommended to determine the strength/dose you require. Usually MCO is taken as a number of drops, under the tongue (sublingual). I've used MCO to help control the aches & pains brought on by AIs .... but it is very difficult to get prescriptions in Australia as many GPs refuse to do them - and as the Oil is not available on the PBS - it is a prohibitive price as well, even if purchased from the chemist using a script! :( - basically, legally, it can cost Hundreds of dollars a month, which is ridiculous, given how easy it is to make the oil if you can source the ingredients. Please read this thread for an interesting insight into MCO by a BCNA member who was an ex Police Superintendent ... https://onlinenetwork.bcna.org.au/discussion/7766/why-i-support-cannabis-law-reform/p1 If you would like to know more about the use of Medicinal Cannabis Oil in the treatment of Cancer .... register for these! Here is a US Webinar presentation (that will be recorded - tho you need to register to be able to access to recordings) ..... as it is 4am Aussie time!! Watch it at home, at a convenient time. Join Liz Roglan present on a 2-Part Series called Medical Cannabis and Cancer: What You Need to Know . The webinars will focus on the medical, evidence-based, botanical data and research, including a variety of patient case studies, all cited & peer reviewed literature. REGISTER HERE - you can add a question at the time of registration: Part I- Cannabis 101 the Plant & How It Works within Your Body https://us06web.zoom.us/webinar/register/6816463220927/WN_jED8sRV1Sk2qOT49AZCHIQ Monday, April 4, 2022 at 10 AM PST | 1 EST (4am Aussie Time!) Part II- Practical Applications in Cancer Care https://us06web.zoom.us/webinar/register/5516463230179/WN_CKJkdjmkTiKXVJajSRZmdg Friday, May 6, 2022 at 10 AM PST | 1 EST (4am Aussie Time!)291Views3likes11CommentsTamoxifen side effects
I've been taking Tamoxifen (exemestane) for 3 weeks now. The hot flushes are manageable but the pain in my joints and muscles has been pretty bad. I was told it usually peaks at 4 to 6 weeks? Does it get easier then or just plato? Circulation seems to help but by the end of the day I'm sore and tired and the last thing I feel like is exercise. Nights are the worst, I'm not sleeping well and after a while laying in bed because pretty painful too. Does it get better or do you get used to it? It started mostly in my legs (feet, ankles, knees then into my calfs) and then my groin. Now my chest, elbows and wrists have started? My journey has happened quickly, 8 months since diagnosis, chemo, surgery and radiation. Stage 3. They said this is my best shot so I want to make it work. Does anything make it easier? Hemp oil? Vitamins? Anything?31Views0likes3CommentsI thought I'd gotten over the hand/wrist pain!
Damn!! I can't believe it! My right hand & wrist suddenly went back to massive ache & pain late last night (just like when I was initially on Letrozole just under 4 years ago ...) along with trigger finger on my ring finger & middle finger - has come back again too! grrr I can't believe it - it has been fine for the last 2 years! I really thought I was 'over' that bit!! grrr Back then, it was excruciating - as it is now. Just the one hand/wrist .... so far! It is very 'stiff' and difficult to form a fist and has absolutely no strength and just continual ache/pain. It started about 11.30pm last night, so I took some Panadol osteo and rubbed Voltaren gel on it & wrapped it in a bandage to support the wrist - which at least helped me get some sleep ... but it is very painful again this morning. :( Medicinal cannabis oil over 2 years helped the last time ..... and occasional prednisone ... might be time to break that out again! NOT HAPPY, JAN! :(161Views0likes15CommentsLetrozole - Is there a light in the darkness?
I'm very, very cautiously expressing hope that things may get better on Letrozole. Some of you may know that I have been one of the unlucky ones to have very severe side effects from the AI. Joint pain, soft tissue pain and injuries have been hugely debilitating for almost the entire time I have been on it (ticked over 2 years at the beginning of August). Well, I hesitantly say this... I got home from work on Thursday, got out of the car and thought, "that's weird - almost no pain". Now this is the time of day that I am usually struggling really badly and hobbling into the house as quickly (joke) as I can to medicate. No need to hurry. I am still feeling that way. And it can't be due to warm weather because it has been freezing here. I am not abandoning the medication that has taken the edge off the pain enough to make it manageable, but I am hoping that I have turned a corner. I have to admit that I'm also in slight state of disbelief and a bit suspicious that things could change so radically. My oncologist said a couple of appointments ago that often after about 12-18 months pain settles down but I think we were both disappointed and resigned that this wasn't happening for me. Given I am on this for at least 8 more years that's no minor obstacle. I realise that it might get bad again but I can now hope that it will also get better and maybe this will also give others hope for the same.311Views4likes11CommentsLetrozole tablet concerns???
Hello, I am her2 menopausal. Had lumpectomy surgery, 17 chemos and radio. My oncologist wants to start me on Letrozole tablets next. I'm worried about getting osteoporosis?! I suffered a fair amount of joint soreness thru my final chemos. Anyone else take letrozole and get joint or bone side effects from them???191Views0likes11Comments