Ovary removal.

@Mic80, glad you are feeling better. I am so sorry to hear about your Mum and sister. Such an awful disease.  By the sounds of things it is definitely the right thing to do for you, still I get how you are feeling. Does it ever stop? Take care. 
Paula xx

@mum2jj I am more than happy to answer your questions & any others you may have!! I'm not a doctor but sometimes the help, advice & support  we receive on this forum, is more relevant than that given by a professional as we have been through it! Firstly, sorry about the confusion but I had my surgery on Friday April 13th 2018 (of all the dates they could pick for me!!) & I was 52 y.o. when I had the operation (53 now!). As I had already reached menopause, i didnt suffer any change of symptoms. I was already getting the odd hot flush which i still do but no change from before or after the surgery.
As I said in my post above, the only thing i suffered with for a few days after was the referred neck & shoulder pain. They did warn me about it, but i had no idea that a referred pain could be so painful! It's just a side effect from the gas they pump into your abdomen. Putting heat packs on your shoulders is good for relief & you just have to get moving & walking as much as you can to get the gas out of your body.
You do have a few days of slight bleeding after wards which is normal & you may be a little swollen.
I had to do a bowel cleanse before i went into hospital but this is pretty standard with a lot of abdominal surgery. As with most operations, you can get constipated afterwards & as your tummy will be a little sore, i would suggest you have a suppository on hand as the last thing you want to do is be pushing when your abdomen has just had surgery!
Also, with your ovaries removed, you do have to monitor your bone density. I walk, run, do strength training & Pilates to keep active & my bones strong. Get your doctor to test your Vit D & calcium levels as you may have to take supplements if your levels are low. You can get free bone density tests in some places through the public system so i will get mine checked now every two years. Its good to get this test before or soon after your operation so you have a base level to work with.
I am so sorry to hear that you have had a recurrence after all this time. I'm glad you had the chance to have the gene testing & great that it has come back negative as that would be a relief, as it was to me. You just have to hold on to some positives in this world! What is your next step now?
I totally understand about the stress of worrying when you get a sign of a symptom. Ovarian cancer had always been at the back of my mind because of my mum & to now have that stress gone, it's a huge weight lifted. You cant underestimate what the stress of worrying can do to you & i will never forget what my ultrasound lady said to me after my checkup. She said she is going to have hers removed when she has had kids as she has seen the horror first hand, that this disease can do. That was pretty powerful coming from someone who has no symptoms or family history.
Good luck with your decision & please keep in touch as i would love to know what you decide & if you go ahead. i would love to help you through with any advice. A simple operation with minor post-op pain...a small price for peace of mind!
Take care Paula & stay strong. Love & hugs xx

Hi @Mic80 my cancer was oestrogen positive so I opted to have ovaries and tubes removed. Very quick surgery stayed in over night only because I had a late surgery time otherwise would have been a day procedure (had to keep me in for observation). Back to work 2 days later zero negative side effects or issues! Except for the fact that I am now fully in menopause (chemo had done that anyway)! Good luck x

@annie65, thanks, I’m actually glad to hear it was over a year ago, as good to hear if any side effects had popped up. I am seeing a gynae to get some more facts. Just wondering if mine will be more complicated as I have had a bilateral TRAM reconstruction so have mesh etc in my tummy. I had an ultrasound the other day so will see what that reveals for her. My recurrance was 8 years ago, not long after first lot of treatment finished so well over the horror of that now I am well in menopause and do suffer from osteopenia so do need to monitor that. Just wondering if there were any mood swings anxiety/depression associated with it all. I am a bit of a worrier and overthink everything, although trying hard not to. Will stay in touch. @Mic80 sorry for hijacking your post, although I. Sure all these ladies are helping you also. 
Happy weekend all. 
Paula x

Hi @Mic80,
How are you going. I have been to see my gynecologist and have booked to have my ovaries and Fallopian tubes out on July 23rd. It’s interesting reading the different recoveries that ladies have. I am on my feet all day at work so am leaning towards 2 weeks just in case, however feel it might be a lit too long. I’d rather book more than less and have to call up and extend,espescially as they need to organise cover for me. 
Hope you doing ok. 
Paula xx

I have asked about this a couple of times (and will ask again).  I know you can't have everything removed that can host a recurrence but I do think, given the ovaries are inactive and have to be, and that ovarian cancer is so hard to detect early, it kind of makes sense to take them out.  I guess there's dangers with every surgery and that has to be a consideration but...

Are you feeling settled with your course of action @mum2jj?

@Sister I have often wondered why it's not more common.

Hi @mum2jj, 
mom doing ok thanks. I am smack in the middle of my AC treatment so just focusing on getting through this stage at the moment lol...
i have an oncologist appointment next week so I’m going to ask some questions as to when I can schedule this operation.... I just want it done as I feel waiting is just tempting fate now.... I guess I just have to be patient and focus on one plan of attack at a time.
So pleased you have yours scheduled.... I will be thinking of you and please let us know how you get on xxxx

Thanks @Mic80, hang in there girl. Chemo can be a bitch so one day at a time and one foot in front of the other. That was my mantra, and this too shall pass. 
Hugs
Paula x

Hi @kmakm yes I do feel settled. It is a well researched decision for me and I feel definitely the right thing for me. I had much to weigh up. (Huge cancer history in my family although only one B.C. ). The biggest one is that when you read all the very vague symptoms I seem to suffer from all of them constantly. I am so worried I would miss it because of that. I have chronic back pain and most of the other symptoms due to other health issues. It wasn’t an easy decision but one I am now at ease with as are my medical team. 
Paula xx