Newbie

we have had daughters planning meeting and now wait to see what happens I was knocked back initially for it they said artghritis was nto pemeanent tor likely to be then I kicked up a stink asking the miniterss " if your government says its not permanent then obviously u have a cure for it and would you like to tell the rest of the world what it is .   next thing ya know I was accepted. but Im still to have my planning meeting.  yeah I wouldn't mind someont to talk to about it all etc

https://www.communities.qld.gov.au/swe/ndis-rollout/moreton-bay-including-strathpine-and-caboolture.page?

I have looked up I see that only in January 2019 has NDIS been rolled out in our local area.... I know they can have a backlog 
What services does your daughter access now ? 

Tisme,
How old is your daughter?
is she not already on NDIS ? 
You can get extra assistance while unwell with BC diagnosis etc.... via your NDIS Plan. 

https://www.healthhubmorayfield.com.au/services/allied-health/

http://cfn.org.au/

https://www.lutheranservices.org.au/youth-and-family/our-locations/intercept-at-caboolture/

if you are aboriginal or tsi  https://www.moretonatsichs.org.au/your-health/family-wellbeing/

https://www.healthdirect.gov.au/australian-health-services/results/morayfield-4506/tihcs-aht-10578/community-health-services?undefined&pageIndex=1&tab=SITE_VISIT

https://www.bcna.org.au/health-wellbeing/support-in-rural-areas/

https://www.bcna.org.au/health-wellbeing/financial-and-practical-support/


Tisme happy to talk in private message if you wish just let me know and I can inbox you 

We did @kitkatb, we did. I staggered out of chemo, barely able to walk 50m without needing to sit down, unable to type on my phone my hands were that sore, and trying to pass out at regular intervals. But that all got better in about a couple of months. We're tougher than we give ourselves credit for. K xox

Hey @tisme, don't look at the mountain. Pick one box/pile, sort it, pat yourself on the back for doing it, and do another one tomorrow. I'm about to do the same with the piles of paperwork & STUFF that have mushroomed all over my house since early December. About to pick ONE (there are four in my bedroom alone...) and if I can make it disappear today it will be a substantial achievement for me! K xox

thanks all for your support, I woke up this morning reeeeeeally depressed and tired and aching, ( got RA and OA and who knows what else. so much I wanna do around here trying to down size mums stuff and ours. daughter is great but I dunno if its cos she is autistic or wat but I have to tell her do this , do this  thanks for the support so good to know there is somewhere I can let it out even pre ???? diagnosis 

Very true @kmakm  I know during chemo on my worse days it was hour by hour couldn't see past that.  But we got through hey.  xo

Hi @tisme. This is a dreadful time, and as everyone has said, take it one day at a time. One hour at a time even, if necessary. This is a technique that counsellors recommend. It helped me when I was first diagnosed and a wreck.

'Predictive grief' is a phrase my psychologist uses and urges me not to do! Easy to say but harder to do I know... Being prepared is one thing but anticipating troubles that may never happen is no way to live. So focus on today, take some deep breaths (it settles the nervous system) and be kind to yourself.

Being diagnosed with breast cancer interrupts our lives no end. It was pretty disastrous in my house (click on my @name to read my story). It's always disruptive, be it for a few weeks or a year. However it's a very well oiled treatment machine and there are huge amounts of support and services available. And if you're diagnosed and undergo treatment, you'll be surprised how quickly it becomes routine.

So hang in there. Big hug, K xox

Hi @tisme  Welcome but sorry you have to  be here but you will find amongst us a great support group who really get what you are going through. I see you are trying for community aid perhaps instead could you see if there is a cancer support group possibly in that area for help and support.  I live in a small town in North Queensland and we have the most phenomenal group here who help all those newly diagnosed in every way imaginable.  I hope everything goes smoothly for you but I do agree with the others that try not to preempt results as there could be a myriad of reasons why they are keeping your pathology for further testing.  As arpie suggests take a deep breath and take it day by day.  Our minds always run away from us thinking of the worst case scenarios.  Wishing you all the best with your results and let us know how you go.  xo