Forum Discussion
Kiki_Dances60
5 years agoMember
Neuropathy with Taxol
Hi, I was diagnosed with 3cm Hormone positive, Her2 negative, ki67 of 40% breast tumour with no nodal involvement in June. Because of size and my wish to avoid mastectomy I went with neoadjuvant che...
Afraser
5 years agoMember
Dear @Kiki_Dances60
The only thing that’s proposed much for PN is pain relief - sensible, but I don’t now have pain! So from experience only - walking is good, even if you feel unbalanced (just be careful) but standing still for more than half an hour or so is not. The more you can use your brain to override misleading sensations, the better your mobility. I can walk for kilometres with no problem, but running is problematic, my brain can’t override fast enough. Massage feels good but I have no evidence of it doing anything. Paraffin wax pedicures (salon) are wonderful - no long term benefit at all but make feet feel better for a few days. I’ve tried small hard balls, rolling under the feet - may help. Nerves can self repair, but the main ingredient seems to be time and exercise. Good supportive shoes help. Best wishes.
The only thing that’s proposed much for PN is pain relief - sensible, but I don’t now have pain! So from experience only - walking is good, even if you feel unbalanced (just be careful) but standing still for more than half an hour or so is not. The more you can use your brain to override misleading sensations, the better your mobility. I can walk for kilometres with no problem, but running is problematic, my brain can’t override fast enough. Massage feels good but I have no evidence of it doing anything. Paraffin wax pedicures (salon) are wonderful - no long term benefit at all but make feet feel better for a few days. I’ve tried small hard balls, rolling under the feet - may help. Nerves can self repair, but the main ingredient seems to be time and exercise. Good supportive shoes help. Best wishes.