Forum Discussion
Loobylou
7 years agoMember
Catching up...
Hi all
Havent been on here in a while. Was diagnosed TNBC on feb 14, had 10 rounds of neo adjuvant chemo, 4 AC 6 Taxol which was stopped due to allergic reactions and a shed load of steroids messing up my system.
Lumpectomy on July 1 with clear margins, 4 lymph nodes all clear but residual cancer on the tumour, so after rads will be going onto capecitabine for 8 rounds. Am stage 2 grade 3 due to size of lump. The lump had been thought to have shrunk but in fact honeycombed, so pockets of residual and pre cancerous cells.
Been feeling quite low, worries about TNBC and reaccurance, so a good friend recommended heading back onto here.
Xx
Havent been on here in a while. Was diagnosed TNBC on feb 14, had 10 rounds of neo adjuvant chemo, 4 AC 6 Taxol which was stopped due to allergic reactions and a shed load of steroids messing up my system.
Lumpectomy on July 1 with clear margins, 4 lymph nodes all clear but residual cancer on the tumour, so after rads will be going onto capecitabine for 8 rounds. Am stage 2 grade 3 due to size of lump. The lump had been thought to have shrunk but in fact honeycombed, so pockets of residual and pre cancerous cells.
Been feeling quite low, worries about TNBC and reaccurance, so a good friend recommended heading back onto here.
Xx
11 Replies
- kmakmMember:) :* <3
- LoobylouMemberSaw my rads consultant today, he had a different way of approaching my results and I felt so happy and positive after I had seen him, plus I only have to have 20 rather than the 30 I expected.
- SoldierCrabMemberHi @Loobylou
Sorry you didn't get a full response, but clear nodes is a great sign.
Have a good cry come in here rant rave and get supported.....
Hugs - SisterMemberWelcome back @Loobylou Post-treatment crash is not uncommon and of course, you had hoped for a complete response. Give yourself permission to feel low but if you can't shake it off, perhaps investigate counselling of some sort.
- kmakmMemberLove that one @primek.
- primekMemberThe great thing is they know you need something else to get rid of the last bit. So the idea behind the treatment plan is spot on. How fabulous all nodes are clear.
You can do this. I know it feels a lot....but you are stronger than you think. - kmakmMember@SoldierCrab @mum2jj
- LoobylouMemberthank you @Flaneuse it certainly does try to control us this beast, just when we think we are ok...
- FlaneuseMember@Loobylou This is the place to be if you feel low. There's always someone reading who understands how you feel. What a rough time you've been having. This beast has certainly given you a bashing. Big hugs.
- LoobylouMemberThank you @Zoffiel I have definitely cried more the last few weeks than I did at diagnosis. The lack of a pathological complete response has sent me into a bit of a spiral. I found a book written by someone who was on here about fear of reaccurance so will read that.
But I will continue to look for positives :smile: