And finally last month the Sydney public hospital cancer centre I have been seeing my Oncologist at, has a mcgrath met nurse So far liason for scans and checking new therapy options So not all city city region hospitals have had this service Much needed all round
","board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"conversation":{"__ref":"Conversation:conversation:204973"},"author":{"__typename":"User","login":"brightspace"},"postTime":"2020-10-13T22:07:17.000-07:00","kudosSumWeight":5}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":204985,"body":"My BC trip in a large regional centre was private hospital for ops, then public for chemo and radiotherapy. My experience with 'my' McGrath BCN was very positive. She came to see me pre and post op; then at every chemo session. I think she was very proactive in attending case meetings at the Cancer Centre every week. Also advocated for me to start my chemo ASAP; and also helped me with info and paperwork for the radiotherapy, access to Can Assist support, and accommodation at a regional cancer care lodge. My contact with my BCN finished when I came home after radiotherapy. Lucky me, I didn't have any complications. There is certainly a wide range experiences described above; from quite negative to very positive.The McGrath BCN experience should be more consistent across public, private, city and country. Reminds me of the wide range of out of pocket expenses which has been described in the last few years, with some action taken I believe???
","board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"conversation":{"__ref":"Conversation:conversation:204973"},"author":{"__typename":"User","login":"jennyss"},"postTime":"2020-10-13T17:04:30.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":204983,"body":"I think some of the experiences here, show that a lot more McGrath nurses are needed. If you go to their website all the statistics are there, and what they offer. The team work their butts off fund-raising to supply these nurses. I help out at the cricket ground in January for the biggie fund-raiser and 2 years ago a few million was donated by the government over a few years. The nurses are only taken on for 3 years and if there is no funding to pay them they are gone. They are slowly winning the battle but like all charities this covid year, the coffers will be running low. Personally I am thankful for seeing my McGrath BCN the morning after surgery and the next. She put me in the system where I received a bra etc. She was at my first oncology meeting to take me through everything and make sure I understood. My nurse covers a large geographical area so sometimes I might see her at the therapy centre, but I always knew she was on the end of the phone if I needed her. We are all different, and I was happy to not see her and know that she was with others that needed her more. The qualifications are quite high for becoming a McGrath BCN. Unfortunately some people never get to see one because there aren't enough to go round. ","board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"conversation":{"__ref":"Conversation:conversation:204973"},"author":{"__typename":"User","login":"Blondy"},"postTime":"2020-10-13T16:23:43.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":204987,"body":"Hi to all of the ladies above, interesting to read so many varied comments, personally I only have fantastic things to say about my McGrath nurse, first of all I live in a rural area and I am blessed that we have this facility, secondly for whatever reason its up to the individual woman to get in contact with the McGrath Foundation, thats the way its always been, I did not know this until I was told 7 years ago, its a case of self-referral,it could be that they do not want to overwelm you at a time when so much information and so many appointments are being made at the beginning of your breast cancer diagnosis and that they feel that when you are ready you can contact them, also most nurses who work with a breast care surgeon are employed by them and are not a McGrath nurse as such. Personally I only have fantastic things to say, I have had my McGrath nurse now for 5 years and before that her predecessor. My McGrath nurse has a large area to look after and many women to help, however every week without fail she rings me to see how I am, I have had several home visits and I know that she is just a phone call away, when I was hospitalized some years ago, she was the phone to phone the emergency department to say I was coming in and she came to visit me whilst I was in hospital, she also conducts monthly coffee catch ups for any women who want to meet in a social enviroment, usually a local cafe, where we can chat and discuss whatever, I might add she only works part time 3 days a week. I guess that I am one of the lucky ones, my experience has been nothing but positive, even though I have metastatic cancer it makes no difference, all of the nurses are different and have a different temperament, so its just a matter of luck who you might get, however they are trained to a very high standard and there training is on going, I am about to lose my nurse as she is retiring next year I just hope that her replacement is half as good as she is. I have been so impressed by her that I actually sent an email to the McGrath Foundation to say thank you for this fantastic resource,I might add that I have passed the information written here today on to my McGrath nurse for her to pass on, in the hope that they will take on board the comments and see what they can do about the situation wendy55","board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"conversation":{"__ref":"Conversation:conversation:204973"},"author":{"__typename":"User","login":"wendy55"},"postTime":"2020-10-13T19:19:07.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":204993,"body":"I was diagnosed with Metastatic BC nine years ago and in that time have had five recurrences - the most recent diagnosed about a month ago, I have never had anything to do with a McGrath nurse until this recent episode. I have a couple of other health issues which need attention and I became stressed and overwhelmed with appointments. I was anxious for a diagnosis and wanted to move an appointment closer and not wait six weeks. I phoned the Breast Care Centre and was connected to the McGrath nurse. (First time this had been suggested in nine years and it had never occurred to me). She was 'amazing' - very caring without being condescending in any way - she phoned a few hours later with a new appt day and time. Her attention made all the difference to my emotional/mental state. She phoned the next day just to ask after my well being. The only word to describe my experience is 'fantastic!. 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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204999"},"body":"I am a private patient and my surgeon has breast care nurses and they were helpful in that first month where I was being tested and had a mastectomy. I have since moved on to chemo and there is a gap in seeing my surgeon or them. When I had to go to public hospital emergency I called on McGrath. For me this was crisis support. The hospital also sent a social worker. The McGrath nurse has contacted me since I was discharged and followed up a few things. I suppose as I was at a low point they were concerned about my mental health briefly. I dont need much but many of the breast cancer patients currently doing chemo at my private hospital are much older than me. I guess it can be a bit lonely. Im looking at other services now and would ask either my breast surgeons nurse or public McGrath nurse for referrals or suggestions. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-16T21:15:00.000-07:00","lastPublishTime":"2020-10-16T21:15:00.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204999","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"844","rawBody":"I am a private patient and my surgeon has breast care nurses and they were helpful in that first month where I was being tested and had a mastectomy. I have since moved on to chemo and there is a gap in seeing my surgeon or them. When I had to go to public hospital emergency I called on McGrath. For me this was crisis support. The hospital also sent a social worker. The McGrath nurse has contacted me since I was discharged and followed up a few things. I suppose as I was at a low point they were concerned about my mental health briefly. I dont need much but many of the breast cancer patients currently doing chemo at my private hospital are much older than me. I guess it can be a bit lonely. Im looking at other services now and would ask either my breast surgeons nurse or public McGrath nurse for referrals or suggestions. 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They haven’t come to any of my appointments with specialists but spent time with me with most chemo sessions, every day visit in hospital, phone calls and emails to check on me during the year. I have been very thankful for them. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-16T19:14:55.000-07:00","lastPublishTime":"2020-10-16T19:14:55.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204998","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"337","rawBody":"I have been through the private system also and have had two BCN’s who have been a wonderful support. They haven’t come to any of my appointments with specialists but spent time with me with most chemo sessions, every day visit in hospital, phone calls and emails to check on me during the year. I have been very thankful for them. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204998_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:17306":{"__typename":"User","id":"user:17306","uid":17306,"login":"iserbrown","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-07-12T16:59:09.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/dS0xNzMwNi1pSjI3dGM?image-coordinates=29%2C0%2C562%2C532"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17306"},"ModerationData:moderation_data:204997":{"__typename":"ModerationData","id":"moderation_data:204997","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204997":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17306"},"id":"message:204997","revisionNum":1,"uid":204997,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204997"},"body":"It's interesting to read the varying experiences. I was a patient in the private system and my Breast Surgeon has two breast care nurses on staff. I was introduced to them when I entered hospital for the Sentinel node biopsy and Mastectomy. They were freely available to me during my hospital stay and would visit during the day and always there with the Breast surgeon as he did his rounds. They provided the bra, cushions, booklets and introduced me to BCNA. They checked on me once I was home and encouraged me to make contact if I had any concerns. As time went on I had to visit a Gynaecology Oncologist and Angela came and sat with me prior to going into surgery. I had 5 hospital stays in a 12 month period. Service exemplary! I can't fault their service. Last year as the breast implant saga became an issue I rang in and the Breast care nurses, once again, extremely helpful.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-16T15:51:49.000-07:00","lastPublishTime":"2020-10-16T15:51:49.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204997","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"981","rawBody":"It's interesting to read the varying experiences. I was a patient in the private system and my Breast Surgeon has two breast care nurses on staff. I was introduced to them when I entered hospital for the Sentinel node biopsy and Mastectomy. They were freely available to me during my hospital stay and would visit during the day and always there with the Breast surgeon as he did his rounds. They provided the bra, cushions, booklets and introduced me to BCNA. They checked on me once I was home and encouraged me to make contact if I had any concerns. As time went on I had to visit a Gynaecology Oncologist and Angela came and sat with me prior to going into surgery. I had 5 hospital stays in a 12 month period. Service exemplary! I can't fault their service. Last year as the breast implant saga became an issue I rang in and the Breast care nurses, once again, extremely helpful.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204997_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:16650":{"__typename":"User","id":"user:16650","uid":16650,"login":"Afraser","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-03-24T19:34:07.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/595/pF56ENKPV9PRD.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:16650"},"ModerationData:moderation_data:204996":{"__typename":"ModerationData","id":"moderation_data:204996","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204996":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:16650"},"id":"message:204996","revisionNum":1,"uid":204996,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204996"},"body":"It’s interesting how varied people’s experiences are. I confess I have no idea how any allocation of breast care nurses works. However given limited numbers surely, as far as possible, breast care nurses should be allocated to those with greatest need? I certainly didn’t need a nurse at each appointment or consultation, whereas someone with a prior condition, or isolated or undersupported, would have found that assistance really helpful. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-16T14:36:21.000-07:00","lastPublishTime":"2020-10-16T14:36:21.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204996","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"447","rawBody":"It’s interesting how varied people’s experiences are. I confess I have no idea how any allocation of breast care nurses works. However given limited numbers surely, as far as possible, breast care nurses should be allocated to those with greatest need? I certainly didn’t need a nurse at each appointment or consultation, whereas someone with a prior condition, or isolated or undersupported, would have found that assistance really helpful. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204996_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:22544":{"__typename":"User","id":"user:22544","uid":22544,"login":"LoisLois","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-02-24T21:59:46.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatarstock/pWY4URWGLGO4D.png"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22544"},"ModerationData:moderation_data:204995":{"__typename":"ModerationData","id":"moderation_data:204995","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204995":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22544"},"id":"message:204995","revisionNum":1,"uid":204995,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204995"},"body":"I was diagnosed in February with Stage 3. From my first appointment with the Surgical Team, my BCN has been there. She has been a tremendous support via phone, email and personal contact. Every single meeting she is present whether it is the chemo Oncologist, Chemo Sessions, Surgical, Wound Clinic. As I also have Lupus, I am her first patient to do so - I asked her to check with any other BCN to see if they had patients who could advise me to any repercussions they might have experience. She told me there is only if I remember rightly just over 110+ BCN throughout Australia and unfortunately non had any with Lupus but it gave me an insight to how far stretched these women are. I can only advocate for my wonderful Nurse Sharon - who seriously has been a blessing. Maybe WE need to advocate for them with a petition to the Government to fund more Nurses through ALL of Australia whether rural, regional or city....Maybe WE should stand up for these hard working Nurses and show our solidarity!!! Lois. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-10-16T13:02:16.000-07:00","lastPublishTime":"2020-10-16T13:02:16.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204995","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1054","rawBody":"I was diagnosed in February with Stage 3. From my first appointment with the Surgical Team, my BCN has been there. She has been a tremendous support via phone, email and personal contact. Every single meeting she is present whether it is the chemo Oncologist, Chemo Sessions, Surgical, Wound Clinic. As I also have Lupus, I am her first patient to do so - I asked her to check with any other BCN to see if they had patients who could advise me to any repercussions they might have experience. She told me there is only if I remember rightly just over 110+ BCN throughout Australia and unfortunately non had any with Lupus but it gave me an insight to how far stretched these women are. I can only advocate for my wonderful Nurse Sharon - who seriously has been a blessing. Maybe WE need to advocate for them with a petition to the Government to fund more Nurses through ALL of Australia whether rural, regional or city....Maybe WE should stand up for these hard working Nurses and show our solidarity!!! Lois. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204995_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:204994":{"__typename":"ModerationData","id":"moderation_data:204994","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204994":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22671"},"id":"message:204994","revisionNum":1,"uid":204994,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204994"},"body":"I'm so sorry to hear that you have had so many reccurrences. Was first diagnosis Metastatic? These Mc Grath nurses seem to be very hit and miss. It's not like you imagine from TV. I'm sure there needs to be more funding for more nurses. But after contacting one in my area, I definitely felt fobbed off. I'm very happy that you could be helped, when you really needed it. I wish you all the best, with your planned and future treatments.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":2,"repliesCount":0,"postTime":"2020-10-15T04:07:05.000-07:00","lastPublishTime":"2020-10-15T04:07:05.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:managing-stress-and-anxiety/message:204973/message:204994","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"496","rawBody":"I'm so sorry to hear that you have had so many reccurrences. Was first diagnosis Metastatic? These Mc Grath nurses seem to be very hit and miss. It's not like you imagine from TV. I'm sure there needs to be more funding for more nurses. But after contacting one in my area, I definitely felt fobbed off. I'm very happy that you could be helped, when you really needed it. I wish you all the best, with your planned and future treatments.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204994_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:14737":{"__typename":"User","id":"user:14737","uid":14737,"login":"Beryl_C_","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2014-07-09T12:58:32.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-10.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:14737"},"ModerationData:moderation_data:204993":{"__typename":"ModerationData","id":"moderation_data:204993","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204993":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:14737"},"id":"message:204993","revisionNum":1,"uid":204993,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204993"},"body":"I was diagnosed with Metastatic BC nine years ago and in that time have had five recurrences - the most recent diagnosed about a month ago, I have never had anything to do with a McGrath nurse until this recent episode. I have a couple of other health issues which need attention and I became stressed and overwhelmed with appointments. I was anxious for a diagnosis and wanted to move an appointment closer and not wait six weeks. I phoned the Breast Care Centre and was connected to the McGrath nurse. (First time this had been suggested in nine years and it had never occurred to me). She was 'amazing' - very caring without being condescending in any way - she phoned a few hours later with a new appt day and time. Her attention made all the difference to my emotional/mental state. She phoned the next day just to ask after my well being. The only word to describe my experience is 'fantastic!. 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I have a couple of other health issues which need attention and I became stressed and overwhelmed with appointments. I was anxious for a diagnosis and wanted to move an appointment closer and not wait six weeks. I phoned the Breast Care Centre and was connected to the McGrath nurse. (First time this had been suggested in nine years and it had never occurred to me). She was 'amazing' - very caring without being condescending in any way - she phoned a few hours later with a new appt day and time. Her attention made all the difference to my emotional/mental state. She phoned the next day just to ask after my well being. The only word to describe my experience is 'fantastic!. 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I think being a McGrath nurse may have some prestige attached and may not always attract the right people for a very fragile population.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:204991_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:204990":{"__typename":"ModerationData","id":"moderation_data:204990","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:204990":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22671"},"id":"message:204990","revisionNum":1,"uid":204990,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"parent":{"__ref":"ForumTopicMessage:message:204973"},"conversation":{"__ref":"Conversation:conversation:204973"},"subject":"Re: Breast care support nurses/ McGrath breast nurses - Do they follow through?","moderationData":{"__ref":"ModerationData:moderation_data:204990"},"body":"I did reach out. She was talking to me on the telephone and working in Outpatients at the same time. Her other work was interrupting the flow of our conversation. I did not feel any connection with her. There was no follow up. 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