Forum Discussion

Annette_joycie's avatar
11 years ago

Secondary diagnosis

Hi, I'm very excited I have found this site, as I can talk to people who have the same health issues I do. My original diagnosis was on 27th September 2002, one day after my second granddaughter was born. I call her my little guardian angel as it certainly softened the blow to have a new grand baby while dealing with BC. I had two lumpectomies, auxiliary clearance, radiation and chemotherapy. I also tried to take Tamoxifin but it really made my joints hurt and the menopause symptoms were terrible. Looking back on it now, I wish I had of persevered with the Tamoxifin and I might not be where I am now. Who knows?? It's one thing that I've kicked myself lots over the years for and another is, maybe I should have had a mastectomy back then, but I was going under the guidance of my oncologist and surgeon. I had five good years then was diagnosed again with BC and it was in 16 glands. After having a mastectomy, chemo that almost killed me twice due to having another infection, another type of chemo, (I'm sorry but I can't remember the names any longer.I think at one point I tried to erase it from my mind and didn't write anything down as it made it too real), I also had 8 months of Herceptin, another 30 rounds of radiation, it was then found to have spread into my bones and lungs. I tried some alternative therapy which didn't help and started back on Hormone therapy. I've been on four different types and my body has become used to them all. My last lot of treatment was Afinitor, and Aromisin. Also I'm now having the injection at my GP which takes the place of the Zometa for bone strengthening. The Afinitor stopped working which resulted in a new bone met in my forearm which I'm starting five rounds of radiation on it from today. I'm also waiting on the results of a CT which I had yesterday on my chest/abdo. I get the results of that Friday. I have everything crossed there are no new mets. It looks as though I'll be starting the oral chemo, Xeldo. I really enjoy hearing from other ladies, but I have done this backwards. I've been chatting to people but have only just realised I should have done a blog first. Anyway hopefully it's right now. Cheers and lot of love from Annette Joycie
  • My heart really goes out to you & you are in the right place,the ladies on here are all lovely & very supportive.. I was diagnosed with BC 6 weeks after my 1st grandchild was born & she turns one tomorrow..she has been my little inspiration whilst dealing my BC... I had 2 stage 1 grade 2 tumours & I had lumpectomy & radiation & now I'm on tamoxifen, I have been on it for about six weeks & really want to come off it because I'm having so many problems!!! the hot flushes are really bad & nausea fatigue & now my feet, I can hardly walk they are that sore first thing in the morning when I get out of bed,, it takes about 10 minutes for them to come good, Iv never had anything wrong my feet before I started taking tamoxifen.... I'm not sure if I could keep taking tamoxifen, until I read your story, it has made me think twice now......if you don't mind me asking Annette, what sort of problems did you have taking tamoxifen? Wishing you well with your treatments & I'm sending you big (((hugs))) thank you for sharing your story.... Take care:) Christine:) x
  • Hi Annette, Jess from BCNA here - just wanted to jump in to say hello/welcome. As Deanne said, there is no wrong or right way to use the site, and it looks like you are finding your way around just fine : -) if you did need any help with the network just give me a shout ~ jess

  • Hi Deanna Thanks for your support. I really appreciate it. I hope the tamoxifen continues to work for you. Talk longer soon. Cheers Annette
  • Hi Marls Thanks for your welcome. Yes I think I'm addicted to the site already. All the best to you & your sister. Cheers Annette
  • Welcome to a wonderful, friendly place. This online network is the best place to feel that you are listened to by people who truly understand your situation and it's also a great place to have a rant! I have early breast cancer but my young sister has secondary breast cancer. We have different types of breast cancer which is quite bizarre! She lives in the U.K and is going through weekly chemo at present and doing well. I am so glad I have had my treatment in Australia, we are so well looked after and have access to all the latest drugs and treatments. I wish you well with your ongoing treatments Annette and sending you a big hug. Marls
  • Welcome to a wonderful, friendly place. This online network is the best place to feel that you are listened to by people who truly understand your situation and it's also a great place to have a rant! I have early breast cancer but my young sister has secondary breast cancer. We have different types of breast cancer which is quite bizarre! She lives in the U.K and is going through weekly chemo at present and doing well. I am so glad I have had my treatment in Australia, we are so well looked after and have access to all the latest drugs and treatments. I wish you well with your ongoing treatments Annette and sending you a big hug. Marls