Secondaries

Hi Belinda, well my darling - what can I say, I am shocked and deeply upset - it makes me realise how darn fragile everything is.  Unusual for me but I am having difficulty in expressing myself, but can I say that I wish you love. X x x Josie

Hi Belinda, well my darling - what can I say, I am shocked and deeply upset - it makes me realise how darn fragile everything is.  Unusual for me but I am having difficulty in expressing myself, but can I say that I wish you love. X x x Josie

Well ladies I am sad to report that things are NOT going well...

I have been trying Abraxane at half strength for the past 3 months and it has been an EPIC FAIL to say the least! Many of my tumors have tripled in size and I have had extensive progression all around. I am totally & uttererly gutted :(

I knew treatment was not going well as I wasn't feeling very tired and short of breathe and have been in ALOT of pain. But did not expect things to have gone pear shaped so quickly....

Soo...basically now I have been refered to Pallative care for pain management and have chosen to try yet another chemo in the hope it may buy me a bit more time with my 3 beautiful children and very brave husband! Although my Oncologist has advised me if this doesn't work...I may only have weeks left :O(

Just in case, I would like to say a HUGE THANK YOU to all you ladies who have offered me so much kindness and support through this journey, it's been tough and painful but at the end of the day I have gotten a year with secondaries and time to prepare my family and tell them how much I dearly love them....that in it'self is a wonderful gift :)

Peace out my Pink Sistahs! LOVE TO YOU ALL xox

Well ladies I am sad to report that things are NOT going well...

I have been trying Abraxane at half strength for the past 3 months and it has been an EPIC FAIL to say the least! Many of my tumors have tripled in size and I have had extensive progression all around. I am totally & uttererly gutted :(

I knew treatment was not going well as I wasn't feeling very tired and short of breathe and have been in ALOT of pain. But did not expect things to have gone pear shaped so quickly....

Soo...basically now I have been refered to Pallative care for pain management and have chosen to try yet another chemo in the hope it may buy me a bit more time with my 3 beautiful children and very brave husband! Although my Oncologist has advised me if this doesn't work...I may only have weeks left :O(

Just in case, I would like to say a HUGE THANK YOU to all you ladies who have offered me so much kindness and support through this journey, it's been tough and painful but at the end of the day I have gotten a year with secondaries and time to prepare my family and tell them how much I dearly love them....that in it'self is a wonderful gift :)

Peace out my Pink Sistahs! LOVE TO YOU ALL xox

Benign ? How good would that be !!  I've got EVERYTHING crossed.

Haha - love your h grumbling about housework. Mine hasn't yet, but I'm ready for it !

Your photo sessionsounds wonderful , stick them up all over the house, have those smiling faces lifting your spirits every day. I'm not suggesting you stick your head in the sand, but it seems to me that you are keeping a very realistic outlook and part of that is being hopeful. Bodies do weird things, sometimes the unexpected happens. Here's hoping that's YOU.

Keep fighting girl.

magicmum

Dear Belinda,

We are here for you.  And YES! that 'thinking positive' stuff is great in theory for those who aren't going through ths crap.  Some of my family have stopped speaking to me, they think 'I'm all better now', but you are experiencing what we all fear the most.  I tried to talk to my family about funerals and stuff and they tell me "Don't talk about that sort of thing"............ok, I'll just walk off and whistle like nothing is any different, you know stick my head in the sand.  I pray dearly that things pick up for you and remember as I said "We are here for you" Vent your little cotton socks off, it's ok by us - love and hugs from Josie x x x 

You are amazing Belinda, so inspiring and strong. I am so happy to hear you blogging and I'm praying for some more good news without the puzzles. It sucks you are going to have to lose your hair yet again I can understand why it worries your girls too. Lucky you have such a beautiful face to compensate. Stay strong and well and continue enjoying and loving your wonderful family. You are living and appreciating life now more than some ever do in a life time. Well done you clever chicken. Hugs Lara xx

Hi ladies, THANK YOU so much for your support...I asked one of the leading Breast cancer Oncologoists in Australia about Avastin and she said she doesn't think it will work for me as I have not to responded to the other 4 types of aggressive hormone suppressing therapy they have tried so she doesn't think it will be of any benefit to me :O(

I am loving having hubby home! Although he is ready to go get a job...any job! LOL After 2 weeks of being a house husband! LOL He said to me "I get no time for myself! it's all just cooking, cleaning, washing and cleaning up mess!" ahhh yeah! Welacome to the last 10 years of my life! :D

Have been trrying CMF for the last 4 months with mixed results...my WCC isn't recovering well and the last CT results were mixed...chest, lung & pluera mets stable and some have shunk! YAY! BUT Liver mets have increased in size and number...but the large one I had 7.5 cm (ran through the lung and into the liver) in November is gone....very puzzling?...so I am having an ultrasound this week to see what is going on...Am switching to weekly Abraxane next week,...not looking forward to losing my hair for the THIRD time in 3 years! It really upsets my girls...my son (he's 10) thinks it's cool cause I look kinda army LOL..

So since I am losing my hair soon...had some family photos done on the weekend...it was so lovely, gorgeous location, photography was lovely, beautiful spirit :O)....Just enjoying the gorgeous Brisbane weather we had and enjoying each others company :O) ,

Have also been diagnosed with mixed connective tissue disease/Lupus and auto immune arthritis :O( ..BUT the silver lining is that the Dr's currently think that at least 2 of the liver tumors and some of the chest ones may be benign tumors linked to thte Lupus...we shall see....

Enjoying each day with my family and friends as best as I can :D

.LOVE TO YOU ALL m Pink Sisters xoxox