Forum Discussion
BelindaM
14 years agoMember
Secondaries
I am dealing with secondaries...I'm not going to lie to you it is shit! planning your own funeral...crap! Telling your kids you won't see them grow up! totally, utterly gut wrenching crap!
Dealing with the fact that cancer is going to kill me! utterly, completely CRAP!
People telling me I should just stay positive "wanting to punch them in the face" CRAPPITY CRAP CRAP CRAP!!!
46 Replies
- FDMember
Might be worth a look. Hope you are feeling OK, you are often in my thoughts.
Still praying
Laraxx
- AmyMemberHi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
- AmyMemberHi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
- AmyMemberHi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
- such_is_lifeMember
Hi I saw a report on this drug the other day on a show cant remember which one, It may not be available here or even be an option for you and I hope the link will work, the story showed women who had done the trial with no chemo side effects at all, and their comments where that they didnt have that raw on the inside, being poisoned feeling, is only for HER positive I believe but worth a look at least, dont want to get your hopes up on anything, but who knows there may be a trial here in Oz
http://www.sciencedaily.com/releases/2012/06/120604094115.htm
All the best for some happy times soon
Cheers Narelle xox
- TonyaMMember
What on earth is going on in this world where someone as young and beautiful as you has bc secondaries.I don't know how the bc fundraising money is dispersed for which research but it should be targeted to young women like yourself. I can't begin to imagine facing secondaries when my girls were so young.It's just bloody wrong,wrong,wrong.Yes you have to be realistic but keep hope alive.Celeste has wise words in that the right chemo combo maybe just around the corner for you.Love and hugs to you.
Tonya xx
- chipmunkMember
Oh Belinda
You have so much strength and courage to do what you have done so far. I honestly would have crumpled at the thought of organising my own funeral.
You have made me cry, not just for you, but for your lovely husband and your gorgeous and adorable girls.
I wouldn't be saying the crap word, but like the others shouting from the rooftop, why me!!! with lots of swear words.
Make the most of each day with your lovely family. Cherish every moment of every day and spoil yourself. Write letters to your girls when they have birthdays, engagements and weddings. So they will always know that you are there shining from above.
I can't walk in your footsteps, and know how you really feel. But, if we all had that magic potion, we would, with no hesitation give it to you.... and make it all better. I wish they had a cure for this F****** horrible thing.
Oh my lovely..... just make sure they try every avenue here or overseas.
My thoughts are with you my sweet. Love as always Julie XX
- BelindaMMember
THANK YOU ALL for your amazing support! We have a new hurdle to deal with now as My Husband is about to be laid off in a few weeks! (he's been working at his job for 12 years)
I am trying to see this as a positive in this as we would be able to manage on Centerlink for a while and he will be at home for a bit (not too long! hopefully) to spend some time with myself and the children! :O)
Anyone know of any Awesome paying full time jobs coming up? :O)
xox Belinda xox
- magicmumMember
dear Belinda,
Last year I lost a girlfriend to an aggressive brain cancer - she was given a best case of 6 months (she actually made it to 3 and a half). Like you, she wanted people to accept that she was going to die, and to be ready for it. I asked her how she was dealing with each day and she told me she was just working through her own bucket list - a son's birthday, riding on a motorbike, going to her daughter's next concert, her granddaughter's first birthday - just ticking off each one as it came and hoping to get to the next one. Living every moment.
You scream and rant whenever you need to, make your plans and try to help your family see how important it is to YOU that they acknowledge what's happening. If it happens later rather than sooner, that'll be a bonus !! But let them know that if they really want to do anything for you, THIS is what they can do.
Take special care of yourself my dear. Spoil yourself as often as you can. And spoil your precious girls too with a lifetime of memories.
lots of love
Keitha
- magicmumMember
dear Belinda,
Last year I lost a girlfriend to an aggressive brain cancer - she was given a best case of 6 months (she actually made it to 3 and a half). Like you, she wanted people to accept that she was going to die, and to be ready for it. I asked her how she was dealing with each day and she told me she was just working through her own bucket list - a son's birthday, riding on a motorbike, going to her daughter's next concert, her granddaughter's first birthday - just ticking off each one as it came and hoping to get to the next one. Living every moment.
You scream and rant whenever you need to, make your plans and try to help your family see how important it is to YOU that they acknowledge what's happening. If it happens later rather than sooner, that'll be a bonus !! But let them know that if they really want to do anything for you, THIS is what they can do.
Take special care of yourself my dear. Spoil yourself as often as you can. And spoil your precious girls too with a lifetime of memories.
lots of love
Keitha