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DebbieMc's avatar
DebbieMc
Member
7 years ago

Second brain tumour in 5 months

I was coming up to 5yrs clear & booked a trip to the UK on 3rd December, then was diagnosed on 11 October with a brain tumour. Had it removed & was paralysed on the left side but spent 6 weeks in hospital and rehab working hard & made my trip just in time (albeit with a broken rib I didn't know about). I had a full body scan in January & was told there was no cancer in my body but after an MRI this month I now have another tumour on the other side of the brain, much smaller & on the surface. Has anyone else experienced this & can I expect to have these tumours constantly popping up or have people just had a one off & nothing else for years. I see my surgeon next week but in turmoil that this could happen again so quickly. I live alone but have lots of supportive friends but my depression has hit another all time low, am I doomed or could this be a one off?
  • Thanks Zoffiel, I am seeing my Surgeon next Tuesday so I'll see what he advises me to do. I have options to let it grow bigger so I can be treated locally, have it operated on in the City or have Radiation in the City. I have a breast cancer support group I go to & I had just seen the Breast Cancer Nurse last week who is putting me through a regime of exercise for cancer patients, counselling for depression & possibly referred to a psychologist, nutritionist & attend the group sessions. I missed the first one as one lady I friended died while I was in the UK & I knew they'd talk about her & the next one I missed as I was having the MRI.
    Unfortunately I'm not living alone by choice, I lost my 2 little boys at 7yrs & 11yrs to juvenile Huntington's Disease which we'd never heard of even though we went to counselling before starting a family. Then 4 yrs ago my husband died of Huntington's Disease (the normal adult one) in palliative care. We did have a dog but while I was having the last tumour out her heart condition blew out of proportion & my girlfriend had to take her to the Vet to be put down while I was sedated overnight & the following day. I had cancer but didn't know it when my 11yr old died and was just recovering from chemo, radiation when my husband died but thought that would be the end of cancer. I have a little foster dog from a puppy farm with me now as company but I'm keeping her if all goes well with this bloody tumour. Looking back at what I've written it seems I lose someone every time I get cancer.  :s
    I'm still walking with a crutch for security & if they want to operate what happens if another shows up, then another? A full body scan in January gave me the all clear so now I'm worried these scans I'll be having 3 monthly might not be as accurate as I'd hoped.
    Your advice is spot on though, I wish I had a glass bowl that could tell me my future so I could make the decision confidently. I'm very lucky to have such supportive friends though who saw me through the last operation & rehab & are already working out who is going to take me where when needed. Thank you for your help. xoxoxoxoxo

  • Hi @DebbieMc please dont hesitate to contact the BCNA Helpline on 1800 500 258 also to speak with a cancer nurse to link you in with information and support available to you.
  • Oh Debbie, I'm so sorry to hear that. What shithouse thing to have to deal with. I'm not in your situation--are either your oncologist or surgeon or what ever other 'ist' is involved able to give you more information? Living alone is fantastic ( I do too) but it can add another level of complexity when you are not well and it is not at all surprising you are depressed.

    If you don't already have one on your team, do you think seeing a counselor of some sort may be useful? They can't make the problems go away but can be good garbage bins to dump all sorts of stuff in and, occasionally, they can come up with helpful hints to manage stress and anxiety. You will qualify for some subsided visits to a mental health professional, though your location can dictate your options and the out of pocket costs. Ask you GP or breast care nurse about getting a referral. Even getting to see someone who doesn't suit can be therapeutic--I've trailed a couple who have made me feel positively sane, in comparison..., Mxx