Hi, I was diagnosed in April with mets in bones. After three different cancer journeys with breast cancer over many years had a bilateral mastectomy 10 years ago. Now what? I am just at the beginning of a new learning curve. Feeling overwhelmed and unsure but will plod on and deal with whatever comes. Life is good and worth fighting for. I feel lucky to be on the new combo of breast cancer drugs Letrozole plus Ribociclib, had been on Tamoxifen for years, it obviously became immune to the cancer cells. Love to hear from anyone re this treatment or just to chat.CheersSmiley ☺

Hi @Smiley Van Winklei am also on this combination and almost finished cycle two I have mets in my spine t11-12so far doing ok

Starting again, Hi Wendy55 thanks for your message and welcome. My name was given to me by my partner as I am a happy person and love my sleep haha!

Thanks so much Pamelamary and arpie, great to hear from you. Will take on board your comments and encouragement. So far am in my second cycle of treatment and tolerating minimal side effects. Am getting on with trying to enjoy the day. Hope you are both well.Cheers Smiley

Hi @Smiley Van Winkle, I am on this combination and have had some good results, some shrinkage and a couple have disappeared altogether, this is after around 6 months, so pretty happy overall, I hope you keep feeling well, Cheers Kattykit.

Hi @"Smiley Van Winkle", I've also been recently diagnosed with mets to the bones. Mine are still small spots, and slow growing, so I am hoping to put off the Ribociclib/Letrozole combo for a bit longer. I am learning to accept my diagnosis, and consider what it means for me, but it is overwhelming at times. This week, I have made a decision to reduce my work committments a bit so that I can concentrate on my health and well being for a while, and spend more time doing the things I love. I'm sorry that you are dealing with mets too- it is so frustrating when you feel that you'd left it behind you years ago.

Newly Diagnosed | BCNA Online Network

16 Replies

kmakm
Member
7 years ago
Good to hear that @FYONA1. K xox
FYONA1
Member
7 years ago
Hi @Smiley Van Winkle
i am also on this combination and almost finished cycle two
I have mets in my spine t11-12
so far doing ok
Kattykit
Member
7 years ago
Hi @Smiley Van Winkle, I am on this combination and have had some good results, some shrinkage and a couple have disappeared altogether, this is after around 6 months, so pretty happy overall, I hope you keep feeling well, Cheers Kattykit.
Smiley_Van_Wink
Member
7 years ago
Thanks so much Pamelamary and arpie, great to hear from you. Will take on board your comments and encouragement. So far am in my second cycle of treatment and tolerating minimal side effects. Am getting on with trying to enjoy the day. Hope you are both well.
Cheers Smiley
arpie
Member
7 years ago
I am SO sorry to hear of your Mets diagnosis ..... a buddy has been recently diagnosed with Bone Mets - and is just on hormone tablets as it is 'slow growing' ...... hopefully yours is too.

I hope you have friends & family nearby to support you - in the mean time, I guess - just get out there & keep doing what you love doing for as long as you feel up to it .... hopefully for many years to come! xxxx

All the best - thinking of you xxx
Pamelamary
Member
7 years ago
Sorry to hear this, and I know the diagnosis can be devastating. I have been living well with bone and liver mets for over 6 years now. Treatments have improved so much. I hope your combo works well for you and that you find good support for the coming months.
Regards..... Pam

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