Forum Discussion
Formymum19
6 years agoMember
Mum recently diagnosed
Hey all,
I've joined this forum in the hopes of connecting with others.
My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small.
Shes started oral chemo and hormone therapy today and will see the oncologist again in 5 weeks.
She seems to be handling it well so far but she's not feeling sick or anything yet so i guess time will tell.
Im sure its going to be a long journey and I'll be here to support her every step of the way. I currently live with my mum so im glad Im here to be there for her.
I just wanted to pop in and say hi.
I've joined this forum in the hopes of connecting with others.
My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small.
Shes started oral chemo and hormone therapy today and will see the oncologist again in 5 weeks.
She seems to be handling it well so far but she's not feeling sick or anything yet so i guess time will tell.
Im sure its going to be a long journey and I'll be here to support her every step of the way. I currently live with my mum so im glad Im here to be there for her.
I just wanted to pop in and say hi.
60 Replies
- Formymum19Member
I must have clicked the quote button and i dont know how to change it 🤣@Dory65 I'm so sorry for your loss. I don't know how i will handle mum not being here any more, i know it could be years but i know its coming eventually. All my life i knew the day would come where my mum would grow old and possibly ill.
I always thought that i would be more prepared. But you're never prepared for something like this.
I'm just happy shes well for now. I know there will be ups and downs. I'm glad for the most part shes realistic about her diagnosis. - arpieMemberSorry to hear that @Dory65. :(
- Dory65MemberHi Formymum19
You are handling this so maturely. I lost my mum to BC in 2001 when she was 72 and I was in my mid 30s. My whole family seemed to be in denial and frozen with fear at the same time. I have a lot of regrets. There was no internet support, no support of any kind, really. Things these days seem remarkably different, I'm glad to say. Good luck. Hugs to you and Mum xxx - kmakmMemberHave you checked out The Otis Foundation for a trip? They have some amazing free properties.
I'm glad your mum is doing well. Long may it continue! K xox - arpieMemberTerrific, @Formymum19 that your mum is coping so well with the treatment. Yes, we have many mets members who have passed the 10 year mark since their mets diagnosis - so just getting on with treatment and living for the moment is the way to go I reckon. Making good memories with the whole family - so a lovely birthday 'do' will give her a lift.
Take care & big hugs to you and your mum xx - Formymum19MemberJust thought I'd pop in for a quick update. Mum has been doing really well on ibrance and anastrozol (spelling)
Shes about to start her 3rd or 4th round of ibrance.
Shes in good spirits, coping really well, we saw the oncologist today and her cancer markers are up from 83 to 88 but he said that could be due to the cancer reacting to treatment and may go down. (I'm not familiar with what marker it is or what the level is meant to be)
Obviously there are a ton of questions i want to ask the oncologist for my sake but it's not my journey so i always ask my mum if its ok to ask a certain question before doing so.
I asked her today if she wanted to know life expectancy, she doesn't as she doesn't want to count down as she put it which is understandable.
Judging on the research Ive done she could have years and years left and its one of those things i guess that it all depends on how well her body responds to treatment.
Mum will be 70 this month and I'm going to organise something special for her (with the help of siblings)
I won't lie its really hard to come to terms with the fact that eventually cancer will take my mum so I'm trying to make the most of now. I feel almost guilty for sometimes forgetting she even has cancer, shes doing so well on treatment i tend to forget. Then the reality steps back in, I'm scared for when she does IV chemo (i asked the oncologist today and he said at some stage she will have it)
My heart goes out to everyone affected by cancer and i can't imagine how hard it is to go through it or watch someone you love go through it.
Wishing all you lovely people the best. - Formymum19Member@JJ70 thankyou so much, I'll pass this information onto my mum. Much appreciated.
- JJ70Member@Formymum19, please call Breast Cancer Care WA if you have not been in contact with them already. BCCWA are a community funded charity that help all West Australians diagnosed with BC. They have a metastatic support group, breast care nurses, counsellors, a library, lots of events and can also offer financial support. We are so lucky in WA to have this support. 9324 3703 Best wishes to you and your mum through this tough time. Tag me in if you need any other PERTH based infor - hospitals, oncs, surgeons.......
- kmakmMemberAnd @suburbangirl!
- arpieMemberWe have some WONDERFUL people in WA ..... @"Annie C" and @JJ70 spring to mind immediately - tho we have many more!
Feel free to raise any points that you are pondering ..... we have a wonderful database of people going thru every stage of BC ...
take care, hugs to you & Mum xx