Forum Discussion

Pennyrose's avatar
Pennyrose
Member
9 years ago

Intro of Pennyrose

Hi,

I am a  very private person but by way of introduction to this group - I will try to fill you in on where my journey is up to.

What a journey ! I had breast cancer in 2009 and had the obligatory lumpectomy, chemo, radiation and 5 years of Hormone blocker drugs - all with their own unique side affects. But I did everything asked of me and eventually went back to work - just 2 days a week but I was quite happy with my semi retirement  - then my work gave me three weeks notice (retrenchment) - and at the same time (March 2016) I saw my dermatologist who removed some bits and pieces including a "cyst-looking" thing from the back of my neck. It was a glandular cancer - not a skin cancer - and I waited 13 days to be told the pathology showed it to be Breast cancer.

Not a nice way to start my retirement - but since then I have had scans to show the secondary breast cancer is now in the lining of my lungs, lining of my heart, various spots around my chest and one in the vertebra. I  began chemo  almost straight away and have seen a radiology oncologist but at this stage he does not want to do radiation.  Next week I am due for follow up scans and then the oncologist will tell me where to from here.

I am 100 klms from the oncology treatment and live alone, though I have a partner - he lives 100 klms away as well. He is always here to take me to treatment and appointments. My kids are not close by but are a great source of comfort to me . Yes I worry, mainly about those I care for. I suppose the uncertainty is the greatest issue. Do I make plans for some time with them? or do I make plans for a funeral?

My! I'm getting all self absorbed now and miserable.

Perhaps I will leave it here .

Hope you are all coping as best you can. - Pennyrose

26 Replies

  • Thank you to those who have sent me good vibes - it must be working - its another day and the sun is shining and I will be OK.

    I have this little saying - " No magic potions.....No fairy dust...

                                            No-one to push you...No-one to do it for you

                                            Just one determined foot in front of the other."

    Cheers .....Pennyrose

  • Hi Pennyrose

    I am so sorry to hear you have to deal with secondary breast cancer after everything you have been through.

    I cannot help you much as no experience there but there is a group on this site for seconday breast cancer specifically and I would suggest you join it as ladies there would have a very good idea of what you would be dealing with and I am certain they would be very helpfull

    I know it is all crushing and scary and confusing when they give us all those results and before treatment commences but just hang in there

    Hugs

    Jel

  • Hi Pennyrose,

    Sorry to hear that you have had this recurrence. Wishing you all the best with your treatment and sending vibes for a positive outcome for you. If it helps I was talking to a lovely lady four weeks ago who had told me that she had breast cancer that then went to her bones and was given a very short life expectancy, that was over seven years ago and she is still working and enjoying life and living strong. As for planning time to spend with family - that can be such a joyful experience filled with laughter, love and feel good endorphins (if you have the right family, of course) I would simply be thinking about what a wonderful family you have and how lovely to have a catch up.  All the best, let us know how you get on with your oncologist. Xx Cath

     

  • Hi Pennyrose - welcome to the site and I hope you find comfort in nattering in this space with like minded.  I am sorry to read your journey; crumbs it's a so and so isn't it!  Hopefully your medical team is spot on with the therapies on offer and your plans can be of a more positive nature.

    There are practical ideas on this site in the drop down boxes that may help as well as the My Journey Kit and the different groups within that you can join. There are also opportunities to participate in a Look Good Feel Better session or a time out holiday at an Otis foundation retreat.

    Take care

    Christine xx

     

  • Hi Pennyrose welcome to the site. sorry to hear your news life keeps sending us curves. The site is good because you don't have to be with anyone and can keep as much privacy as you need. Hoping your follow up with the oncologist gives you some idea what is ahead for you.

    We all get self absorbed and miserable it is a hard trip to go on, that is why this site is good because we all get it. Take care xx

  • Im so sorry Pennyrose :( I am new to this journey, so I cant offer much advice, but I think we all should definitely be making the most of our lives, however long that ends up being. Thinking of you xx