Hi Pennyrose - welcome to the site and I hope you find comfort in nattering in this space with like minded. I am sorry to read your journey; crumbs it's a so and so isn't it! Hopefully your medical team is spot on with the therapies on offer and your plans can be of a more positive nature.
There are practical ideas on this site in the drop down boxes that may help as well as the My Journey Kit and the different groups within that you can join. There are also opportunities to participate in a Look Good Feel Better session or a time out holiday at an Otis foundation retreat.
Take care
Christine xx