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YvonneM's avatar
YvonneM
Member
9 years ago

Havent been here for a while but feel the need for a chat!

Hi all, Since my original diagnosis in April 2013 I have had lots happening.  Right mastectomy, axillary clearance and of course chemo and radiation treatments and then bone mets.  I have been going well and had, until recently been on Arimidex and then Capecitabine.  As my tumor markers have just started to trend up slightly, my oncologist changed me to Vinorelbine, boy was that the chemo from hell for me.  The side affects were awful and constipation was at the top of the list for me with this drug.  I ended up spending 5 weeks in bed and taking just about every concoction known to man to try and get some relief.  After three sessions my oncologist took me off Vinorelbine and gave me a three week break to try and rest my body.  This week I started on Liposomal Doxorubicin and so far so good. But don't know much about this yet, glad of any info you may have.  No side effects to mention just yet.  The downside was though that my veins are not happy and I will be having a port inserted before my next chemo.  Feeling a bit nervous about this, I don't know why as I am usually positive and upbeat about what I have to do.  But just of late I have felt a little anxiety sneaking up on me I hope I can shake this and get back to being my usual self. Thanks for listening ladies...Von
  • YvonneM's avatar
    YvonneM
    Member
    9 years ago
    :o Thanks Melinda I am hoping it will all settle back into normal again soon  (that is our normal anyway)  It was traumatic enough having the chemo this week, felt for the team as it took 3 nurses and the RMO over an hour to find the vein before we could get started.
  • melclarity's avatar
    melclarity
    Member
    9 years ago
    Von I didnt have a port, but am left with severe arm cording due to Chemo, I think you'll feel better with the Port however. I also think too, the longer the journey and what you have faced there are absolutely moments when all of a sudden you lose your footing and feel you can't face or do the things you would normally step up and do. After my recurrence in 2015 and finishing Dec 2015, all last year I couldnt face needles or hospitals I found myself starting to have a panic attack. SO NOT ME. I did find though with recent surgery all of that settled down. So I think it is moments and we then gather our footing and keep going. Hugs Melinda xo
  • Zoffiel's avatar
    Zoffiel
    Member
    9 years ago
    The ports are OK. Well, it's a bit creepy and I will be pleased to get rid of mine (if that ever happens) but compared to constant needles it's a blessing. I can understand your reluctance, but it's not that bad. Marg