Faslodex / Xeloda / Ribociclib with Letrozole
Hi All Tomorrow my oncologist wants to talk about a new drug as others not working, she has pretty much given me 2 options Faslodex (non PBS) Or Xeloda (which I believe is a chemo drug) There i...
Forum Discussion
Hi @Kattykit,
I too am pretty much of a loner, its called being an introvert Im told, I enjoy my own company and need a lot of me time, and yes like you I found it very very hard and still do to ask for help,however there are services out there to help us and I look at it this way no one has to go through this alone, bcna have am amazing program for women with mets, its a counselling service which you can utilize by ringing the 1800 number and at a time convenient for you a pyschologist who is trained in speaking with and helping women in our situation, I have used this service several times, they ring you in the privacy of your own home via telephone and will chat with you about anything, this is also available to partners as well, its somethinhg that I found very helpful, the women who you speak to are simply amazing, very compassionate and what is more important this is their area of speciality and "they get it", so if you feel that this might be for you give bcna a ring, many years ago anyone with a cancer diagnosis was very isolated and it was a subject that was not talked about it was "womens problems" and was hush hush, we are so fortunate now that we have this incredible network available to us,I am also fortunate that I have the services of a community nurse who comes to my home to give me my 6 weekly Xgeva injection to help with my bones, I also have the services of a cleaning lady once a fortnight, this was arranged by my McGrath nurse via the local hospital, I just make a co-payment,and its the best thing to happen for me, due to fatigue and being unwell as well as hand and foot syndrome from the oral chemo I was just getting more and more depressed about not being able to do my housework,and my partners offer of doing it himself well that was never going to work, thank goodness I have a dishwasher, bless him he meant well, but to have this lady come once a fortnight and do all the vacuming and wet areas and then wash all of my floors is just so good for my mental health,I have learned to live in the moment, and do not sweat the small stuff I find peace and contentment in the most simple of things, but all of that takes time,I have my pyjama days dont get me wrong, I have earned them, and when it happens I do not feel guilty and just say, this too will pass, and as you so very aptly put, life is for living, we certainly dont know what tomorrow will bring,
A big cyber hug,
wendy55
I too am pretty much of a loner, its called being an introvert Im told, I enjoy my own company and need a lot of me time, and yes like you I found it very very hard and still do to ask for help,however there are services out there to help us and I look at it this way no one has to go through this alone, bcna have am amazing program for women with mets, its a counselling service which you can utilize by ringing the 1800 number and at a time convenient for you a pyschologist who is trained in speaking with and helping women in our situation, I have used this service several times, they ring you in the privacy of your own home via telephone and will chat with you about anything, this is also available to partners as well, its somethinhg that I found very helpful, the women who you speak to are simply amazing, very compassionate and what is more important this is their area of speciality and "they get it", so if you feel that this might be for you give bcna a ring, many years ago anyone with a cancer diagnosis was very isolated and it was a subject that was not talked about it was "womens problems" and was hush hush, we are so fortunate now that we have this incredible network available to us,I am also fortunate that I have the services of a community nurse who comes to my home to give me my 6 weekly Xgeva injection to help with my bones, I also have the services of a cleaning lady once a fortnight, this was arranged by my McGrath nurse via the local hospital, I just make a co-payment,and its the best thing to happen for me, due to fatigue and being unwell as well as hand and foot syndrome from the oral chemo I was just getting more and more depressed about not being able to do my housework,and my partners offer of doing it himself well that was never going to work, thank goodness I have a dishwasher, bless him he meant well, but to have this lady come once a fortnight and do all the vacuming and wet areas and then wash all of my floors is just so good for my mental health,I have learned to live in the moment, and do not sweat the small stuff I find peace and contentment in the most simple of things, but all of that takes time,I have my pyjama days dont get me wrong, I have earned them, and when it happens I do not feel guilty and just say, this too will pass, and as you so very aptly put, life is for living, we certainly dont know what tomorrow will bring,
A big cyber hug,
wendy55