Forum Discussion
Sam09
9 years agoMember
BAD NEWS PLEASE HELP ABSOLUTELY DISTRAUGHT
Hi I posted yesterday and today received devastating news that my her 2 ER positve breast cancer has gone to my liver.Please does anyone have this and can anyone tell me am I going to die quickly can I get my life insurance so I can bring my children back from overseas. I am numb.Can I live or is this it? What treatment can I expect to be offered to me. Thank you for reading my post.
44 Replies
- melclarityMember@Sam09 Ive been watching this thread and I just wanted to reach out and say I am thinking of you...I know how incredibly alone you can feel in the midst of all of this. I had 4 FEC and 8 Taxol and I just want to tell you I was petrified!!! BUT the Staff are wonderful and here's the funny thing about FEAR...when you are faced in the situation with it all, you realize the worst part is not actually what you were worried about but the FEAR of it. You absolutely can do it!!! Put you first, BE KIND!! and I also wanted to say to you, Im super drug sensitive which made it all so difficult, but DOABLE!!! I am all for holistic and alternative treatments too! I see a Kinesiologist which helps immensley on a physical and mental level. Im also a Reiki Master HOWEVER and I cannot stress this more, all of this works in conjuction with Medicine and medical professionals. Just remember your Team want the best for you, put your faith in how they will help you, you can always choose anytime you like. Give yourself the best chance, because you are so worth it!!! We are all here!!! Cheering you on. Biggest of Hugs to you xoxo Melinda
- Cate64Member@Sam09 I have not had the drugs you are having but I did have 6 rounds of AC Chemo, which is a nasty combination of drugs as well & I was terrified at the thought & completely dreading it while all the while knowing it was vital for me if I was to have have any chance of survival.
I was pleasantly surprised that, for me, it was nothing like what you see on television, I was not wrapped around a toilet bowl vomiting, I was not laid up in bed with fatigue. I did lose my hair & didn't even hate that although hated the thought of it to begin with. Do you know how much easier life is when you get up in the morning & put you hair on instead of washing, drying & styling it??? - socodaMemberHey Sam, Hope your doing ok. Best wishes and hugs. Xx
- Ann-MarieMember@Sam09 please check the first page of this post as @Jess_BCNA and myself have left some helpful links from the BCNA website and information about our telephone service. Thank you @Share for your help :)
- ShareMember
Sam, thinking of you today.
Put your faith in your specialist team - oncologist, breast care nurses.
It is amazing that in the world of Dr Google, that some of the sites give us much more information that is akin to scare mongering. It is always in the middle of the night that our worst fears arise !
One of the best sites of course is this one - BCNA website.
Perhaps our lovely admin ladies @Ann-Marie_BCNA could point you in the right direction for the most reliable information.
I must say that I have not had the drugs that you mentioned but I would listen to your care team and then make an informed choice.
At least try the treatment - it is amazing what our bodies can endure and then heal afterwards.
Perhaps you could also benefit from a BCNA counsellor over the phone.
Best wishes & big virtual hugs to you.
Sheryl xxx
- iserbrownMemberOh Sam - my heart goes out to you as you face this treatment. Your team are doing what is best for you! The aim is to shrink these tumours! Try and put your mind in a happy place, even if it is singing a tune to yourself - remember we are all here sending good vibes!
Take care - AfraserMember@sam09, I haven't had Perjeta, but I have had Taxol and Herceptin and if I can do it, so can others. I'm not particularly brave nor am I fearless, but I feared cancer a lot more than Taxol! I can't say definitively that no one dies of chemo, but I think the chances are small and may depend on other health factors. If you trust your doctors and they are recommending this treatment, they are doing so to give you the best chance of recovery. Ultimately we all can choose what to do, that's our right. But have you thought of trying the treatment first? If your body can't take it, your doctors will almost certainly at least delay treatment until you are strong enough. Or you can stop. At least then you will know what you are dealing with. Reactions vary a great deal.
- primekMemberThe herceptin and the other drug will only slow down the spread. The taxol though will shrink the tumors. You could try it and if it doesn't work in a few weeks or makes life unbearable then stop it, at least then your decision is on your experience, not fear. I respect your decision to choose your path, but feel for those you will leave behind for not trying. Let us know how you go. You are stronger than you think. It's normal to feel frightened and anxious before hand. Once you start it is so less awful than you imagined. We will be thinking of you with heavy hearts. Kath x
- Sam09MemberHi guys
I am supposed to start treatment tomorrow. Taxol Herceptin and Perjeta all at once, Has anyone else had this and can tell me what to expect I am absolutely pettrified and worried I will react or worse to this bomb treatment of toxic chemicals . I imagine I may not be able to do it which scares me too. I have stage four cancer will this kill me I have read sometimes people die from the chemo or a few days after. God how do you ladies do this the fear is enormous and the stress crippling. How do you get the strength and courage to face this enormous unknown. Please tell me. - Sam09MemberYou guys are simply wonderful thank you it makes me feel not so alone. Today I did a lot of soul searching and research into the 3 drugs on offer. I lay awake all last night with my heart thumping through my chest and I thought perhaps I was going to have a heart attack. This immense feeling of dread and fear is doing me in I think. I have sat through doctors today saying hurry lets start however the intense fear of chemo to the point of desperation even, has me thinking I will decline the chemo. 12 months of taxol every week I feel I could not poison my little body with it and no amount of trying to be positive is helping. They tell me on the pet scan 11 weeks ago this wasnt evident to now 10 tumors on my liver 26 mm the biggest. So ..... I can almost say I have decided against the chemo for sure, if I can have the herceptin alone I will maybe combine alternative with conventional to try to beat it Does anyone know of anyone who has done this... I feel a little better even talking about eluding the chemo.