Advice on ceasing treatment
Hi everyone I hope someone can help me, this journey is horrible. My mum was successfully treated for breast cancer 9 years ago. Last year it returned with aggression. It attacked her intest...
Forum Discussion
Thanks to everyone for taking the time to reply and send their well wishes.
I was hoping I'd find some people in the same or similar position, to see what they may have decided. Then I realised that's pretty silly because, if you were you'd likely not be alive. Sadly.
Mum is deciding today, after talking with a few people and jotting down pros and cons. But as someone said on here, it is a decision she has to make herself. I wish I could scoop her up, take away all this pain and heart ache. I simply can't, and I simply can't get my head around that fact that I'm powerless. Like someone had mentioned the best and only thing I can do is nurse her until the end so she can be at home as she wishes. Watch my best friend slip away. I'm only in my early 30s. Guess this just isn't something I thought I'd have to cross now. I know I'm not the only one though.
What I think is we are a long way from a 'cure' on this condition, these wonderful stats of survival based on 5 years just don't reflect what's really happening and the volume of recurrence people are facing. It's a lifelong disease to manage that has no cure.
The garbage that is being sprouted that this condition is no longer seen as a death sentence but rather a chronic condition to manage is simply unfair and attempts to soften the reality of this disease. A chronic condition it is not. It's terminal. It's fatal. Let's just be honest about it.
These treatments are disgusting. They are debilitating, gross, and all they do is buy a bit of time as you travel towards death. Life becomes side effects, scans, blood tests, specialists. Hardly some lovely chronic condition to manage. It's nightmare and it's torture.
The lack of understanding and awareness of MBC is appalling. It's a group of women who have been well and truly forgotten. Or maybe it's too confronting for society to deal with. It's easier to live in a fantasy world of pink parades and muffins, where we all believe the war against breast cancer has been won... All these drugs developed that ultimately do nothing to impact overall survival (yet we are apparently meant to be excited about all these new drugs, what a joke) , and specialists that don't even know which ones to give you and in what order as it's trial and error.
No. This disease is far from cured and I feel for every person, and every family faced with this hopeless situation. It's a war that can't be won.
I was hoping I'd find some people in the same or similar position, to see what they may have decided. Then I realised that's pretty silly because, if you were you'd likely not be alive. Sadly.
Mum is deciding today, after talking with a few people and jotting down pros and cons. But as someone said on here, it is a decision she has to make herself. I wish I could scoop her up, take away all this pain and heart ache. I simply can't, and I simply can't get my head around that fact that I'm powerless. Like someone had mentioned the best and only thing I can do is nurse her until the end so she can be at home as she wishes. Watch my best friend slip away. I'm only in my early 30s. Guess this just isn't something I thought I'd have to cross now. I know I'm not the only one though.
What I think is we are a long way from a 'cure' on this condition, these wonderful stats of survival based on 5 years just don't reflect what's really happening and the volume of recurrence people are facing. It's a lifelong disease to manage that has no cure.
The garbage that is being sprouted that this condition is no longer seen as a death sentence but rather a chronic condition to manage is simply unfair and attempts to soften the reality of this disease. A chronic condition it is not. It's terminal. It's fatal. Let's just be honest about it.
These treatments are disgusting. They are debilitating, gross, and all they do is buy a bit of time as you travel towards death. Life becomes side effects, scans, blood tests, specialists. Hardly some lovely chronic condition to manage. It's nightmare and it's torture.
The lack of understanding and awareness of MBC is appalling. It's a group of women who have been well and truly forgotten. Or maybe it's too confronting for society to deal with. It's easier to live in a fantasy world of pink parades and muffins, where we all believe the war against breast cancer has been won... All these drugs developed that ultimately do nothing to impact overall survival (yet we are apparently meant to be excited about all these new drugs, what a joke) , and specialists that don't even know which ones to give you and in what order as it's trial and error.
No. This disease is far from cured and I feel for every person, and every family faced with this hopeless situation. It's a war that can't be won.