Tamoxifen break

Exactly, and interesting when you reduce the dose or have a break symptoms vanish!  I agree not everything is from this medication but like hearing from others on effects. Scary really

@Cassina - this is the chart that @kezmusc mentioned in the post above ...... it includes the various 'names' for most of the most used Hormone tablets - and also a description of how they work, as they are in different 'groups'.  I am on my 3rd lot of AI tablets now as the first two gave me severe side effects.  Tamoxifen is about the only one I haven't used at this point! LOL

The 'x' on the chart are 'added side effects' from members - previously not noted on the chart.  The 'dots' are the original side effects.

Please note - NOT EVERYONE gets any or all of the symptoms - so try not to worry about it too much! 

It DOES have Constipation for Tamoxifen and another member had the same with Femara/Letrozole - so you are definitely NOT the only one who has ever had it!!  For it to make the original list, it would have needed many cases to be identified.

Print this chart off (2 copies) - one for you & one for your Onc!!   They obviously need some education in side effects!!

Thanks Arpie, very interesting and I am sure not everyone gets all of these, but just like to be acknowledged that you are not alone!

@kezmusc I’m very interested to see how it goes. Will probably keep a little diary of the side effects that disappear. 

Best wishes for your break! Hopefully it's a worthy exercise 
Take care 

@iserbrown thanks 

Bit late to this thread but I found in the end I couldn’t function onTamoxifen  The fatigue was enormous. My brain was constantly 
alseep., like chemo brain fog.. daily, I tried to continue and work against it until I found another Onc and asked to return to Arimidex,
one of the AI group. I got my brain back and apart from a few jointy issues, I My activities go quite well. 
I woukd be asking your Onc what your tumour pathology was and is there another drug available. 
A major unwanted effect of Tamoxifen, denied by both oncs and unknown by some eye specialists, is cataracts. Aromatase inhubitors
to a lesser extent. The US literature is very explicit. 
If continuing especially Tamoxifen do have regular eye checks.
Ten years ago, prior to starting chemo for my first tumour, my 
opthalmologist said my eyes were in good health.. Now, 10 years and a missed second tumour later, my sight is compromised with
bi lateral cataracts and refractive disorders. The cataracts can be 
Remedied. But the refraction is another challenge with the development of corneal ‘ things’ due to dry eyes from the drugs and
macular changes. No wonder I want to upgrade all my tech stuff as the screens getter duller and the fonts blurr as I reach for a magnifying glass! Prolia too , given with Arimidex has also had its 
consequence post cataract surgery with increased inflammation.
the issue is not about not taking Endocrine therapy but being properly monitored with a detailed care plan for any side effects that can be addressed early in therapy. Endocrine therapy now has choices of dugs to choose from. One favoured drug does not always fit all and the oncs in spite of best practice and knowledge have their
favourite prescriptions. The oncs should consider yourHistology Report, do a risk assessment for recurrence, and monitor the effects
while you’re on the drug.
After this long winded rant... All the best.. Take a family member or 
friend to your next appointment and be bold... to speak up.. 
Suffering  can be diminished without compromising care..