Tamoxifen break
hi i have appointment with my oncologist this week and thinking of asking for a break from taking tamoxifen,wondering if others have done this,how long for,is it worth it or is it harder for body to ...
Forum Discussion
Bit late to this thread but I found in the end I couldn’t function onTamoxifen The fatigue was enormous. My brain was constantly
alseep., like chemo brain fog.. daily, I tried to continue and work against it until I found another Onc and asked to return to Arimidex,
one of the AI group. I got my brain back and apart from a few jointy issues, I My activities go quite well.
I woukd be asking your Onc what your tumour pathology was and is there another drug available.
A major unwanted effect of Tamoxifen, denied by both oncs and unknown by some eye specialists, is cataracts. Aromatase inhubitors
to a lesser extent. The US literature is very explicit.
If continuing especially Tamoxifen do have regular eye checks.
Ten years ago, prior to starting chemo for my first tumour, my
opthalmologist said my eyes were in good health.. Now, 10 years and a missed second tumour later, my sight is compromised with
bi lateral cataracts and refractive disorders. The cataracts can be
Remedied. But the refraction is another challenge with the development of corneal ‘ things’ due to dry eyes from the drugs and
macular changes. No wonder I want to upgrade all my tech stuff as the screens getter duller and the fonts blurr as I reach for a magnifying glass! Prolia too , given with Arimidex has also had its
consequence post cataract surgery with increased inflammation.
the issue is not about not taking Endocrine therapy but being properly monitored with a detailed care plan for any side effects that can be addressed early in therapy. Endocrine therapy now has choices of dugs to choose from. One favoured drug does not always fit all and the oncs in spite of best practice and knowledge have their
favourite prescriptions. The oncs should consider yourHistology Report, do a risk assessment for recurrence, and monitor the effects
while you’re on the drug.
After this long winded rant... All the best.. Take a family member or
friend to your next appointment and be bold... to speak up..
Suffering can be diminished without compromising care..
alseep., like chemo brain fog.. daily, I tried to continue and work against it until I found another Onc and asked to return to Arimidex,
one of the AI group. I got my brain back and apart from a few jointy issues, I My activities go quite well.
I woukd be asking your Onc what your tumour pathology was and is there another drug available.
A major unwanted effect of Tamoxifen, denied by both oncs and unknown by some eye specialists, is cataracts. Aromatase inhubitors
to a lesser extent. The US literature is very explicit.
If continuing especially Tamoxifen do have regular eye checks.
Ten years ago, prior to starting chemo for my first tumour, my
opthalmologist said my eyes were in good health.. Now, 10 years and a missed second tumour later, my sight is compromised with
bi lateral cataracts and refractive disorders. The cataracts can be
Remedied. But the refraction is another challenge with the development of corneal ‘ things’ due to dry eyes from the drugs and
macular changes. No wonder I want to upgrade all my tech stuff as the screens getter duller and the fonts blurr as I reach for a magnifying glass! Prolia too , given with Arimidex has also had its
consequence post cataract surgery with increased inflammation.
the issue is not about not taking Endocrine therapy but being properly monitored with a detailed care plan for any side effects that can be addressed early in therapy. Endocrine therapy now has choices of dugs to choose from. One favoured drug does not always fit all and the oncs in spite of best practice and knowledge have their
favourite prescriptions. The oncs should consider yourHistology Report, do a risk assessment for recurrence, and monitor the effects
while you’re on the drug.
After this long winded rant... All the best.. Take a family member or
friend to your next appointment and be bold... to speak up..
Suffering can be diminished without compromising care..