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Temple's avatar
Temple
Member
5 years ago

Arimidex - first 6 months

I was terrified of this drug and the side effects and I even posted on here looking for support and info back in Jan. (The tone police intervened and I have stayed away from this site since because I was too scared to come back.
Despite this, I am checking in one last time before I delete my account, in case it is of benefit to anyone newly diagnosed (like I was at the time, truly traumatised and then told I will be starting anastrazole).  

I want to share that my news is positive in relation to anastrazole.

I don’t have any joint or muscle issues, pain, soreness, stiffness, whatsoever (which were my biggest fears). I have a few hot flushes in the evening and a bit of insomnia. I think my hair and skin is more dry and I need to use more leave in hair treatment now. My weight gain is entirely explained by what I have been eating during lockdown and not so much the drug! From the long list of worrying side effects you will doubtless end up reading, I have experienced enone that are ruinous. (I know I will have to monitor bone density.) Maybe things will change over time but I do remember I felt desperate to know or get some reassurance from someone about what the first few months would be like on an AI and was there an actual chance I would not get the worst effects?

I hope this account may help someone facing anastrazole for the first time and knowing that it can be okay. Yes I could do without the hot flushes and longer term risk to my bones, but it’s not as bad as I imagined in my head, terrified and newly diagnosed, with little info to go on, or not the info I perceived as useful to me  while having a very cold and  underwhelming oncologist. 

I hope others will get the info that they need, here or elsewhere, and feel confident to speak the truth and advocate for what they need.













  • That’s great @Temple, and much better than you were anticipating.  I am on Arimidex now too after bad experiences with Letrozole and exemestane. 12 months now and very pleased with how it is going even tho still some side effects but nothing too nasty.  

    Take care and all the best xx
  • That’s good news, @Temple, thanks for sharing it with others. Best wishes.
  • Thanks @Temple I think it is really helpful to hear that these treatments are bearable.
    I really struggled with Letrazole and Anastrazole, but am tolerating Exemestane. Like you, I know I'm taking it, there are side effects, but in balance it's worth the bit of discomfort if it's going to keep a lid on my disease.
    It's worth giving these things a go. Not everyone cops all the misery and there is only one way to find out how it will affect you personally. Mxx