kato

hi kylie, yes i too am ready to shave my hair. i have hats and a wig ready... so it wont be long.. i can relate to you in so many ways. i too struggle to fill in my days. at the moment i m feeling really well and am walking swimming and going places.... and eating well . next week after my 2nd treatment it may not be the same! i had several lymph nodes taken out from under my arm and have to do the massage and physio to hopefully get my flexibility back to normal.

i am going to a support group once a fortnight. i have a couple of friends who have been in the same situation as me and are now well and healthy. i also found cancer connect.. through the cancer council a good support. they put you in touch with a volunteer and they will give you a call..

good luck with all your questions... great idea

love jenny

Hi again Jenny, thanks for replying, it is good to have a 'chat' to someone in the same situation.

I had just moved down to the Southern Highlands in October from the Central Coast. I found my breast cancer 3 weeks later. It has been hard, although I have more family here I had left my nice house, job and friends to try and start again down here. Then all this happened, some days I don't think I am coping at all. I have joined a support group but I struggle to fill my days and have too much time to think.

Off to onco tomorrow, I have a huge list of questions written down.

Just got my head shaved on Sunday. Cried. I have bought quite a few hats, scarves and one wig.  I don't know if I will wear the wig but felt secure getting it. I figure I have cancer so I am not going to pretend I don't to make other people more comfortable. Hence I bought about 10 different hats!

I started chemo on the 15th so we are only a couple of days apart.  Are you doing FEC D? Hope you are feeling ok.

Hugs, Kylie xxx

Hi again Jenny, thanks for replying, it is good to have a 'chat' to someone in the same situation.

I had just moved down to the Southern Highlands in October from the Central Coast. I found my breast cancer 3 weeks later. It has been hard, although I have more family here I had left my nice house, job and friends to try and start again down here. Then all this happened, some days I don't think I am coping at all. I have joined a support group but I struggle to fill my days and have too much time to think.

Off to onco tomorrow, I have a huge list of questions written down.

Just got my head shaved on Sunday. Cried. I have bought quite a few hats, scarves and one wig.  I don't know if I will wear the wig but felt secure getting it. I figure I have cancer so I am not going to pretend I don't to make other people more comfortable. Hence I bought about 10 different hats!

I started chemo on the 15th so we are only a couple of days apart.  Are you doing FEC D? Hope you are feeling ok.

Hugs, Kylie xxx

hi kylie, my sentiments exactly!! im feeling ok.. little bit of a loss of appetite.. and energy.. but just the same as you, taking each day as it comes. i think the next thing for us is the hair loss. i have short hair anyway, but not sure how i will go wearing a scarf, cap or wig. what about you?? im not working as im on sick leave.. but am missing the busy-ness and company of work.. my children have grown up and left home so its just my husband and i at home. how are you filling in your days? im going to a support meeting tonight... i wasnt sure i would participate in this, but im actually looking forward to going. then away for a couple of days... just like you say, taking each day as it comes.. big hug back to you, jenny

Hi Jenny, we started chemo in the same week also! I am doing 6 weeks FEC D.  Lots of nauseau and feeling blah but going ok.  I ended up with 3/26 positive nodes with extranodal spread and ca in lymphatic fluid. Sometimes I find it all doesn't seem real, taking one day at a time and trying not to expect to much of myself.  Hope you are feeling ok.  Hugs, Kylie

Thanks again everyone,

I am 'looking forward' to this operation, waiting for the surgeon's Christmas break has been difficult.

I have found out how important it is to be positive, but also to be prepared for answers you don't want. I was given lots of 'positive re-inforcement' by several (4) medicos (ie: grade 1, caught early) and so was totally unprepared to find it in my lymph nodes. From now on I will ask for all possibilities, not best case scenario.

When I had my surgery a satellite node was found, also cancer.  I would love to know anyone elses experience with this, it was taken out during surgery but I can't find out much info on these.

regards, Kylie