Forum Discussion

Samtasia's avatar
Samtasia
Member
6 years ago

Help! Oestrogen And progesterone negative but her2 positive

Hi,

Just wanting to see what others have done in my situation.
My breast cancer is oestrogen and progesterone negative but her2 positive.
I have recently completed chemo, radiation and have herceptin until july.

My oncologist seems confused on what to do now, he has mentioned hormone therapy, but has said he doesnt think it will do alot for me, he has also mentioned removing my ovaries which i wasnt too keen on because im not 30 yet and havnt had the chance to have kids. 
I live a fair distance from a major city so its not easy to get a second opinion.

Would love to hear what treatment options you got, thanks alot!
her2
herceptin
treatment-decisions
  • ara's avatar
    ara
    Member
    6 years ago
    Hi @Samtasia! We are the same situation but it would be wise if you get a second opinion especially if you wanted to have children.
    However, did you do gene testing? If so, you can be positive for the BRCA gene and the likelihood of you getting ovarian cancer is high thats why probably he suggested removing the ovaries. But you can always double check with your breast surgeon as well. All the best.
  • Samtasia's avatar
    Samtasia
    Member
    6 years ago
    Hey! Yeah i had the braca testing and was all negative. What treatment are you/ have you recieved if you dont mind me asking? 
  • shs14's avatar
    shs14
    Member
    6 years ago
    Hi @Samtasia, I am out the other side of Her2 treatment like you. I am having Herceptin till June and then nothing. No one has every suggested hormonal treatments as my cancer isn't receptive. I would ask your oncologist again why they though about that and get them to explain. Perhaps it is to do with your young age. There are other immunotherapy drugs that may be considered in light of that. Perjeta and Nerlynx and Kadcyla? I've been told they are only considered for advanced disease.
    Good luck with it. I will be interested to hear any advice you get for further treatment. 
  • Nadi's avatar
    Nadi
    Member
    6 years ago
    I was the same - oestrogen and progesterone negative but HER2 positive. Had lumpectomy, chemo, radiation and Herceptin. No history of any cancer in family.

    If you have a family history that's probably why they did BRCA test and could also be why he was questioing whether hormone treatment would give you any benefits. But if no family history and negative for BRCA can't see why you would need  hormone inhibitors.
  • arpie's avatar
    arpie
    Member
    6 years ago
    Maybe record his conversation too, so you can go over it again later?  It is too easy to miss bits at the time ...