Forum Discussion
arpie
6 years agoMember
Heart Palpitations without chemo - could it be a side effect of AIs?
Hi guys
Has anyone else had heart palpitations who HASN'T been on chemo, but IS on AIs? I've been on Arimidex for 12 months now. I guess it would be similar to 'panic attacks'? Tho pretty sure it isn't this!
I've had a scary few days this week, with thumping heart palpitations (skipping beats every 5 or 6 beats, then maybe after 10-15 beats) but yesterday morning at 3am, it was after EVERY beat & it scared the crap out of me. I also had a 'throat blockage' that felt a bit like indigestion & I know this can be a sign of a heart attack, but didn't have the pressure, pain or clamminess associated with a heart attack. I was awake from 3am on ..... So I 'sat it out' til 10am with the thumping skipped beats still happening - then went to the GP. They did an ECG but it didn't show up - and wanted bloods done to make sure the troponin levels weren't 'up' (showing an enzyme related to heart attacks) but there were no pathology centres open on Sat in our towns which surprised me as they always used to be open - maybe they closed due to Covid? So now I had to go to the closest hospital (and waste THEIR time) to get a simple blood test, ECG etc, when the pathology place should have been open. :(
I said I would drive to the closest town where the hospital would do the bloods - but they didn't want me to drive in case I had an episode on the way ... so they called the ambos to take me. This really upset me as it is a waste of an emergency service & I felt guilty that I was using the Ambulance when a more serious case could be impacted by it not being available! :(
So at the hospital, they did another ECG (the beat abnormality didn't show, even tho the skipping continued throughout the day.) Chest xray was clear. Bloods were good. I finally got home at 6pm with one of my uke ladies driving up to pick me up. Hubby thought I'd been out kayak fishing all day! His dementia at least stopped him being worried! LOL
I go back to the GP for more bloods tomorrow (thyroid etc) and hopefully get fitted with a Holter monitor to check my heart beat over the next day or so - and I truly hope that it will pick up on the skipped beats. My dad died young from heart (had his first one at 40 and died at 50 with numerous attacks in between.) My brother was fitted with a pacemaker 2 years ago after a single catastrophic incident (he is incredibly fit & thin so that was a real surprise!) My sister now tells me she has had palpitations for years - I didn't know! So it is possibly inherited, could be age related, or could be a side effect from my AI tablets!
I see my Onc on Tues, so will be mentioning both the ticker problems & the urinary urgency (which started about 4-6 weeks ago) as my main concerns.
Who else has had heart issues when they've NOT been on chemo but HAVE been on AIs? (I know that chemo can cause heart problems - and they now check patients before & after chemo - tho the problems can start years after the treatment - so everyone needs to be aware of this.)
Hopefully this will all settle down soon without the need for too much medical intervention - I DO need to drink more water, as this can upset the electrolyte balance in the body (as can drinking TOO much water - it washes the electrolytes OUT of the body. This happened to my neighbour - she ended up with a pacemaker.) So I have my fingers crossed.
It has also raised fears about what will happen to my husband if something adverse DOES happen to me - as we don't have family nearby - and I can't rely on friends to take over the care of hubby (with dementia) if I am unable to do so. I will be contacting My Aged Care this week to kick start getting him 'on the books' even if we don't use their services initially.
What sort of Plan B do you have for your elderly partner/parents, in case something happens to you? We don't have children tho we do have 2 stepchildren in NZ - but can't expect them to take over his care.
Has anyone else had heart palpitations who HASN'T been on chemo, but IS on AIs? I've been on Arimidex for 12 months now. I guess it would be similar to 'panic attacks'? Tho pretty sure it isn't this!
I've had a scary few days this week, with thumping heart palpitations (skipping beats every 5 or 6 beats, then maybe after 10-15 beats) but yesterday morning at 3am, it was after EVERY beat & it scared the crap out of me. I also had a 'throat blockage' that felt a bit like indigestion & I know this can be a sign of a heart attack, but didn't have the pressure, pain or clamminess associated with a heart attack. I was awake from 3am on ..... So I 'sat it out' til 10am with the thumping skipped beats still happening - then went to the GP. They did an ECG but it didn't show up - and wanted bloods done to make sure the troponin levels weren't 'up' (showing an enzyme related to heart attacks) but there were no pathology centres open on Sat in our towns which surprised me as they always used to be open - maybe they closed due to Covid? So now I had to go to the closest hospital (and waste THEIR time) to get a simple blood test, ECG etc, when the pathology place should have been open. :(
I said I would drive to the closest town where the hospital would do the bloods - but they didn't want me to drive in case I had an episode on the way ... so they called the ambos to take me. This really upset me as it is a waste of an emergency service & I felt guilty that I was using the Ambulance when a more serious case could be impacted by it not being available! :(
So at the hospital, they did another ECG (the beat abnormality didn't show, even tho the skipping continued throughout the day.) Chest xray was clear. Bloods were good. I finally got home at 6pm with one of my uke ladies driving up to pick me up. Hubby thought I'd been out kayak fishing all day! His dementia at least stopped him being worried! LOL
I go back to the GP for more bloods tomorrow (thyroid etc) and hopefully get fitted with a Holter monitor to check my heart beat over the next day or so - and I truly hope that it will pick up on the skipped beats. My dad died young from heart (had his first one at 40 and died at 50 with numerous attacks in between.) My brother was fitted with a pacemaker 2 years ago after a single catastrophic incident (he is incredibly fit & thin so that was a real surprise!) My sister now tells me she has had palpitations for years - I didn't know! So it is possibly inherited, could be age related, or could be a side effect from my AI tablets!
I see my Onc on Tues, so will be mentioning both the ticker problems & the urinary urgency (which started about 4-6 weeks ago) as my main concerns.
Who else has had heart issues when they've NOT been on chemo but HAVE been on AIs? (I know that chemo can cause heart problems - and they now check patients before & after chemo - tho the problems can start years after the treatment - so everyone needs to be aware of this.)
Hopefully this will all settle down soon without the need for too much medical intervention - I DO need to drink more water, as this can upset the electrolyte balance in the body (as can drinking TOO much water - it washes the electrolytes OUT of the body. This happened to my neighbour - she ended up with a pacemaker.) So I have my fingers crossed.
It has also raised fears about what will happen to my husband if something adverse DOES happen to me - as we don't have family nearby - and I can't rely on friends to take over the care of hubby (with dementia) if I am unable to do so. I will be contacting My Aged Care this week to kick start getting him 'on the books' even if we don't use their services initially.
What sort of Plan B do you have for your elderly partner/parents, in case something happens to you? We don't have children tho we do have 2 stepchildren in NZ - but can't expect them to take over his care.
38 Replies
- HendrixMember@arpie good luck with results and hopefully it gets resolved xx
- HendrixMemberI’m on Letrozole not sure if it’s a side affect...Unlike a heart attack your heart repairs itself with a Takotsubo cardiomyopathy ..I also come off my meds in 2 weeks yay!
- arpieMemberThanks @Hendrix - I hope you've got yours sorted now .... did you have an ablation or a pacemaker? I'll be keeping an eye on it - when I had the Pericarditis (inflammation fo the lining of the heart) I also felt like I was having a heart attack! Our local Hospital said I had reflux! Grrr
I've heard that the Holter Monitor doesn't always pick it up - but I reckon there would have been 100 different 'skips' over the 24hrs, so hope they've been picked up by the specialists. I'll find out on Monday!! Had a crap night last night, but feel fine today! Weird! xx
All the best with your lesion ... have you had a 2nd opinion? To be sure, to be sure? Does it weep? xx - HendrixMemberHi @arpie I was having palpitations for about 6 months...feeling light headed...holter monitor didn’t find anything..then early February this year it got worse to the point I thought I was having a heart attack...I suffered a Takotsubo cardiomyopathy...which is brought on by stress...so if you feel like it’s getting worse just keep going to GP or hospital..good luck xx
- ddonMemberI hope hope you get some answers. The bladder urgency would be a real problem - I sympathise because I already have a weak pelvic floor. Let us know what your halter shows - hopefully something easily managed.
- arpieMemberThanks @ddon - I've just chatted with my Onc too - and she says the palpitations are unlikely to be from the AIs - I know that chemo can definitely cause heart abnormalities - but I didn't have chemo!
She agreed that the urinary urgency & extreme foot pain on the ball of the foot now & then definitely are caused by Arimidex - she will refer me to a urologist to get checked out if it becomes more annoying.
She was very happy with how I am handling the Arimidex - and I am SURE it is the magic oil that is helping by taking the edge off the pain & discomfort! I still walk like an old lady up & down stairs, so still have 'discomfort' - but am no longer taking Anti Inflams or pain killers for the side effects - just the magic oil. - ddonMemberThat’s so good ( you know what mean!) that you actually had the extra beats with the halter on. Hope it gets sorted for you.
- arpieMemberWell I reckon they'll have plenty of blips to check out today - so am just pleased that they should show & prove I wasn't faking it, as they couldn't 'spot any' in the GPs office 3 times or at the hospital (all with ECGs that didn't pick it up either!) ....
They were pretty constant until 1.30am, then there was a break til 3.30am, then slept til 7.30am! (but I bet there were still a heap in the 'down time' that I didn't wake up to.) I pushed the button on as many as I was 'sure of' - I'd wait for the 'dump feeling' then monitor my carotid until the next ones happened noting the times, sometimes just saying 'numerous skips'.
SO ... a good way to monitor your own is with a blood pressure machine - it shows the heart beats as a small heart turning on & off ..... and when I had the 'skips' the heart would remain SOLID for that missed beat. Some smart watches also have the facility to do a mini ECG as well apparently!!
I am not feeling as highly anxious as I was on Sat 3am when it happened really badly - the Dr who attended me at the GP actually rang me yesterday afternoon to check just how I was! I thought that was lovely!! If I need to swap GPs again, I know who I'll be going to next!! ;) - TinksMemberDefinitely AIs can cause palpitations or abnormal heart rhythms so let’s hope the Holter does it’s stuff for you here!! Showing what kind of rhythm disturbance it is.I had obvious palpitations on chemo with no physical effects like chest pain or dizziness and onco seemed unfazed, now on letrozole and still get them every now and then but not as bad.
hopefully the Holter will help in the diagnosis
best of luck
Tinks xx - lrb_03MemberGood to have one thing ruled out, hopefully a step closer to an answer