Hi @Pinkcloverss. How much help do you have on hand? Family and friends wanting to help? Is your toddler at a playgroup?
Sorry to bombard you with the questions!
People want to help. Even though it's hard, you have to let them! If it was your best friend you'd do anything to help.
If you're overwhelmed with offers, delegate the nitty gritty organisation to someone else. I have four kids and an elderly in law in my home and my best friend co-ordinated the help a lot of the time.
There are also a number of apps that can help with this. BCNA has this one on their website:
https://gathermycrew.org.auPeople will say 'if there's anything I can do to help let me know'... This can be frustratingly vague. It is useful to have some tasks in your mind to dole out to friends who are genuinecin their desire to assist.
Being really organised will help. You won't feel hideous all the time. Towards the end of each cycle you'll have more energy. Use that time to prepare food and freeze it, and anything else that can be done ahead of time.
You'll have to stay away from school when your in your very low immunity days, but you might find a good rhythm for work round that. We all react so differently, it's hard to plan until you're underway.
As for your toddler, well if there are days where you just can't manage you can call them pyjama days and cuddle up in bed or on the sofa together. We're encouraged to keep moving during chemo, I walked every day, working my way up from a 1.5km slow stagger to a fastish 5kms for all but my last round. You can do that with your child. Do you have a park near you? Nice to have a destination.
Toddlers like to help. Make the most of it (they grow out of it!), enlist them to assist with looking after you when you're feeling crappy
A little job here and there might make them feel reassured and included. A treat together just before each infusion can be a nice ritual.
It's not the end of the world to let some of the 'normal' stuff we do fall by the wayside for a bit. Breakfast for dinner, some extra dust bunnies, online food shopping (your child might likecto help you do it!), it's only for a short period, though at the time it can seem like forever.
Big hug lovely. K xox