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rosehaven's avatar
rosehaven
Member
9 years ago

Well, there's that then, meta-what?

Self diagnosed lump, x-ray, mammograms, ultrasound, infiltrating mass, biopsy, estrogen +ve, progesterone +ve, HER2 -ve with follow up labs, chest pain, enlarged nodes left arm, CT scan, bone scan, biopsy 2, marker uptake in sternum and liver.
Liver ultrasound tomorrow with view to biopsy, if unable, then biopsy sternum. Next appt., 20/12, with view to immediate hormone therapy, depending upon results, start chemotherapy.
"It's not good news"
"You have metastatic cancer"
I have no idea what that means.
I've gone from phase 2 infiltrating ductal carcinoma, to "metastatic" - google: stage 4 metastases in the bone and liver - cheers, pending results, in about a week.

All I can think about is, who is going to look after/ love my child if something happens to me? He has a delayed learning disability and autism spectrum disorders. He is a gorgeous boy, starts school next year, how much does he understand about what's going to happen to me on chemo/ hormone therapy. All I can think about is him. What am I going to do about him? What can I do for him?
Other single Mums, how did you deal with this fear?
  • Hi @rosehaven.  I'm sorry to hear about your diagnosis.  It's such a scary time and the waiting is soul destroying.  Sending you virtual hugs and strength.   <3
  • Hi @rosehaven. I'm sorry to hear about your diagnosis. How old is your son? We have a couple of resources for children. We have a comic book aid that parents use to help explain cancer to young children and we also partner with CanTeen to provide support for young people between 12 and 25 who are affected by cancer. If you'd like to order these free resources, give us a call at 1800 500 258 and we can post these to you.
  • @rosehaven I'm sorry to hear of your news! Its incredibly overwhelming not to mention thinking of your children. Im a single parent also of 2 and been through this twice in 5yrs. I also work with Autistic children 7yrs now. It is hard, but what you need is to get a really great support network together, however that looks for you. With him starting School, I'd advise them of your situation, and they will absolutely help anyway they can, even have suggestions of support. One step at a time, big breath and just do a day at a time until you know your path. Talk, talk, talk be it to your Breast Care Nurse, your Surgeon, Oncologist...anyone! even us here!! Ive go a wealth of help here, that I wouldnt have found answers to!! Hugs,Melinda xo