Forum Discussion
Well being
Today I filled out a questionnaire for the Ex-med Cancer program. Well I cannot believe how it has caused me to feel slightly emotional. Naturally the questionnaire is in depth and what it has done has stirred up all the emotions. I can talk about it until the cows come home but to actually relive it as I went through the questions...............I guess it never leaves us, we just park it and hope that the treatment we are on knocks off any strays and we don't have a recurrence, but we never know do we!
Fragile and vulnerable - hopefully when I have my assessment appointment next week, along with GP and Oncology appointments I won't be such a fragile little flower! End of whinge, just needed to get it off my chest!
Take care everyone
Fragile and vulnerable - hopefully when I have my assessment appointment next week, along with GP and Oncology appointments I won't be such a fragile little flower! End of whinge, just needed to get it off my chest!
Take care everyone
23 Replies
- @Kattykit blessed and cursed at the same time. Yep.
- @Zoffiel I know exactly how you feel, I too am on the second time around, but I only got 4 yrs before it raised its ugly head again, I feel like I am in limbo, not sick enough to look sick, but struggling through most days, and not much support for the same reason, my family were all supportive at the start, but when I didn't die like everyone is taught to believe will happen, it's just business as usual.
- Yeah I got it @iserbrown but was just clarifying for others as it took me 2 reads. teh heh.
- No I meant Zoffiel on the second run. Sorry!
But as you said previously we are showing signs of PTSD regardless
Take care - @iserbrown. I'm not on the second round of the cancer bus just to clarify to others this was responding to @Zoffiel and her 2 unfortunate experiences of it.
@Zoffiel
I think your thought process at present is totally understandable. It's a roller coaster that most struggle to find a stop where you can alight and be free.
We find ourselves caring for others on here in a virtual sense whilst our own frailties aren't far from the surface.
@primek likened our situation to PTSD and I'd imagine for you on the second run of the cancer bus that's perhaps where you are at not that I really know for sure but it's a theory to chew over.
Your advice and care is appreciated by most. It's time to wallow for awhile and hopefully you'll be able to dust yourself down and return feeling refreshed.
I would've suggested a soak in your outdoor bath but the arctic blast that has arrived has squashed that idea.
Take care and take time for thyself and be proud of the victories thus far.- @Zoffiel I think like most things in life, there's a time for them. And I think coming and going depending on one's mood and frame of mind, is perfectly normal. Some days the raw pain is too much for me. And this week I haven't wanted to be here as much; doing a lot of processing.
However I want to say I've never perceived you as hanging round on the edges. I really value the perspective of the old hands, as much as those who are just ahead, or progressing with you. And your salty voice is an absolute treasure.
You do what feels right for you. K xox - @zoffiel I noticed you haven't been commenting much. I can guess a bit at what you're feeling but obviously I'm not walking in your shoes as I'm "in the thick of treatment". From the outside I never guessed what a devouring monster this disease is. I'm not a big hugger but a virtual Bundy or whatever is your tipple of choice coming your way. And do what you need to for your own well-being - we'll still be here whenever you want us.
It's interesting how distressing some of these things can be. I became a full on activist following my first BC in 2006. I joined groups, got involved with committees and spent a lot of time and emotional energy on the inequality of services rural and regional people endure. That went on for about five years then I dropped everything--5 years is long enough to have your knickers in a bunch.
Fast forward to 2016 and I found myself back on the cancer bus. This time I have only involved myself with this forum and have resisted requests to move back into the advocacy space. I just find it too draining. I'm not well enough to be sanguine about my situation and can't separate my own feelings from any discussion well enough to be objective. To be honest, I'm even finding this forum isn't helping my wellbeing at the moment--it's one thing to be in the thick of treatment, it's another to be hanging around on the edges wondering if you are ever going to be well.
- Yes agree with that
I know that the main Hospitals run programs as well as for Cancer patients and or diabetes et cetera
ENHANCE at Epworth, https://www.epworth.org.au/Our-Services/rehabilitation/Pages/Breast-cancer-rehabilitation.aspx
So yes we are very fortunate - it just seems unfair when it is not spread across all the States
