Hi everyone, I’m Fe. Sad to be joining you all but grateful your all here.was diagnosed on 22/7/24 with triple positive stage two breast cancer and had the second of my neoadjuvent chemo and targeted therapy yesterday. Overwhelmed sad frightened and struggling with early side effects that have already resulted in 10% decrease in one of the chemo drugs for yesterdays session. Wondering if anyone else had really bad side effects from their first round of tchp protocol?sending everyone on this journey all the best.

I am So sorry to see you join us here, @FeR .... We have a private group for those with Triple Positive that you can join & chat with those who are also 'doing it'. Jump on this post & click Join & you should be joined up tomorrow xxhttps://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbcAlso, consider checking out the podcasts by Charlotte Tottman - as she is a specialist BC Counsellor. She's had a double mastectomy, stayed flat and KNOWS what we've all gone thru! She was surprised too, at the emotions she went thru herself, as they were different from what she'd 'thought they were' when she was counseling women prior to her own diagnosis. So she 'gets it'. They are very easy listening too. xxGo to this link, click on the 'list' (it should show 22 tracks) and start off with No 13 (the first one of Series 1) and work your way thru them.https://soundcloud.com/search?q=charlotte tottmanAlso, check out this post for lots of 'general' info on the forum that you may like to look at too further down the track! (Even some funny bits, as we all need a laugh xx) You can show off your garden, your fur-kids, your art & craft ..... or start a new thread, with your favourite hobby! ;) At the bottom of the post are some Tick Sheet PDFs that you can print off & fill in, to follow your physical and mental health .... that you can take along with you & show your team, if you need xxhttps://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latestWishing you all the best for your ongoing treatment xx

Hi @FeR it sounds like you’ve had a rough time of it so I’m sending you big virtual hugs.@arpie’s post has some great information in it and we do have a triple positive group you can join. I was triple positive (diagnosed in Jan 2023) and I also had targetted TCHP neo adjuvant treatment. It’s no cakewalk, that’s for sure. I did struggle with a range of things including sunburn-like redness and heat on my hands, face and feet. I was hit by jet lag like fatigue. Some things I experienced included losing my sense of taste, my appetite, mouth ulcers, thrush, hair falling out and later on in the regime I began to experience diarrhoea. I am glad the dose has been reduced a bit for you, this was the case for me too and it did halt the worsening of my redness on my face. My tumour responded well despite the dose reduction and shrank by the time surgery went ahead.My coping strategy was to remind myself that the chemo was doing its thing and I took the anti nausea tablets the oncologist prescribed. I just tried to focus on each 3 week phase and generally began to feel more myself by the third week. To preserve energy I paced myself and went into a bit of self imposed lock down, listening to audiobooks, sleeping if needed, and just seeing a handful of folks for short visits on weekends or weeks two weeks after the chemo during the TCHP phase. I relied on my very supportive husband to ferry me to appointments and I was very grateful to receive beautiful home cooked soups and soft food that I could eat. After the fourth dose the oncologist discussed the side effects with me and said I could try having small doses weekly, instead of the regular dose every three weeks, to see if it was better tolerated. I opted to stay in the three week cycle. I found starting a specialised oncology exercise physiology program with the hospital a very positive thing, as I was experiencing loss of strength and the program helped me feel like I could rebuild it. The adjuvant treatment was much more manageable. I finished the treatment at the end of April and am all clear.Very happy to chat more if you have any questions and sending you ❤️🌻 best wishes for getting through this next few days and weeks.

Hi @FeRI was diagnosed with stage 2 triple positive EBC in December 2023, so have completed 6 rounds of TCHP, had surgery and am now on Trastuzumab (Herceptin) only and have started anti-hormone therapy.I am also in WA and am being treated at SJOG Subiaco.The three weekly TCHP regimen is hard. After the first session, I had a bad diarrhea so Gastro Stop became my best friend! Make sure you mention your side effects to your team so they can suggest remedies.You can do it - while it is hard, it does work.

Hi @Suki Great that you are finding your treatment 'doable' ... Feel free to tell us a bit more about your story so far here:https://onlinenetwork.bcna.org.au/categories/newly-diagnosedI'd suggest you join the Triple Positive private group (where only members see what is posted) ... it is a fairly new group but I am sure your input would be appreciated as well xx Click on this link & then click 'join' ...https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbctake care & all the best on your continuing treatment xx

Hi @Suki it’s really supportive to hear about how you experienced TCHP and how you are finding your current phase with Herceptin only, thanks so much for sharing it (and I agree with the tip about Gastro Stop!) It would be great if you and @FeR might consider joining the Triple Positive group as it’s quite specific treatment and it can feel like a long haul. Thanks @arpie for making the link available and your support too ☺️

Triple positive stage 2 disgnosis

arpie
Member
8 months ago
I am So sorry to see you join us here, @FeR .... We have a private group for those with Triple Positive that you can join & chat with those who are also 'doing it'. Jump on this post & click Join & you should be joined up tomorrow xx
https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc

Also, consider checking out the podcasts by Charlotte Tottman - as she is a specialist BC Counsellor. She's had a double mastectomy, stayed flat and KNOWS what we've all gone thru! She was surprised too, at the emotions she went thru herself, as they were different from what she'd 'thought they were' when she was counseling women prior to her own diagnosis. So she 'gets it'. They are very easy listening too. xx
Go to this link, click on the 'list' (it should show 22 tracks) and start off with No 13 (the first one of Series 1) and work your way thru them.
https://soundcloud.com/search?q=charlotte tottman

Also, check out this post for lots of 'general' info on the forum that you may like to look at too further down the track! (Even some funny bits, as we all need a laugh xx) You can show off your garden, your fur-kids, your art & craft ..... or start a new thread, with your favourite hobby! ;)
At the bottom of the post are some Tick Sheet PDFs that you can print off & fill in, to follow your physical and mental health .... that you can take along with you & show your team, if you need xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

Wishing you all the best for your ongoing treatment xx

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