Triple Positive Breast Cancer

Hi there @Ned01, I kind of remember one member with that diagnosis - @AllyJay are you the person I am thinking of ?

Hi @Ned01 - sorry to see that you've joined our exclusive 'club' .... you can ask questions on any part of your treatment & those who are TNBC will be able to chat with you, for support xx

I hope you are recovering well from your surgery.  All the best for your results x

Feel free to join the Private Group for TNBC - it is totally private - only those who've signed up to it can see/read any of the posts ..... Jump on here & click 'join' ....
https://onlinenetwork.bcna.org.au/group/30-triple-negative-breast-cancer-tnbc

Also check out this thread that shows a lot of other areas on the forum that you might like to join in on - showing off our gardens, our pets, art & craft & even having a laugh (let's face it, we all need a laugh!) 

https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

Take care & all the best with your ongoing treatment xx

Thanks for the info arple

Hi @Ned01,

Sorry to hear of your diagnosis.
Yes the waiting inbetween is the worst.
Wishing all the best for the best possible outcome.
Hugs

Hi there @Ned01...I'm so sorry you've had to join our group, but welcome. I was diagnosed with Stage 3, Grade 3, Triple Positive, Multifocal (more than one feral lump) and with node involvement. That was in September 2016 and after 4 X AC chemo, followed by 12 X Paclitaxel and 17 X Herceptin, double mastectomy, full node clearance on the left and sentinel node on the right....I'm still here...still NED (No Evidence of Disease). I wish you well with your ongoing treatment. Big hug...Ally.

oooops ... I am so sorry @Ned01 ....

The group I suggested you join is actually the Triple NEGATIVE group, as we don't have a Triple Positive Group as yet - but as we have quite a few members with that genre ... perhaps it is time for a TPBC group - @Mez_BCNA could look into a private group for the Triple Positive members, as it is a very specialised area xx 

take care xx

If you click on this link, it will take you to many posts re Triple Positive BC .... 
https://onlinenetwork.bcna.org.au/search?domain=all_content&query=%22triple%20positive%20breast%20cancer%22&sort=-dateInserted&scope=site&source=community

Let's start the conversation @arpie - I will get a discussion going next week to gauge the response of members and whether a group is in demand 

I would really appreciate the group for triple positive breast cancer as I am one of those, just to communicate with someone who is going through this now would be great

Hi @Ned01 I am also triple positive, diagnosed in Feb 2023 and I just completed the treatment in April 2024. 
I do hope you are doing well- waiting is super challenging 🌻.
 I would be happy to have a chat and share my experience if it helps. 

Hi Tri, thanks for posting.  It certainly is a challenging time and I am glad you have made it through, it would be nice to hear your experience. I have had my initial surgery about 3 weeks ago and need to have another next week for more lymph node removal as they need to know they have it all, once this is done I move onto my next lot of treatment in August. I consider myself pretty lucky so far as side effects have only been bowel issues, loss of taste and my hair falling out.  I do worry about all of the other things that these treatments can cause.  I had pretty much just retired when diagnosed but am thankful to be at home, I am always emotional and try to keep a lid on it don't like other to see how I am feeling. What treatment did you have and what were your experiences with them?