Triple Positive Breast Cancer

Hi @Ned01 and @Cheri its great to see a couple of people who are also “triple positive”! 
I will start a conversation and would love to hear your experiences in the new triple positive private group discussion https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc

@Ned01 also triple positive (her2) diagnosed sept last year. Indeed it's been a trying time but forums like this, support groups, family and friends have been amazing. Hope you are doing well. Am here if you want to chat directly aswell. All the best for your results and recovery from surgery x

So good to hear you got through the surgery smoothly and here’s all the best for your recovery. It’s really nice to hear about the kindness of the hospital folks - thanks for the update @Ned01 
have a wonderful weekend 🌸🌻🌼

Got through my second surgery for lymph node removal okay, not so stressful due to the kind hospital staff, arm is sore but not as sore as the first surgery, hopefully it stays that way, back to Doctors next week for results fingers crossed its good news, so resting now until new treatment Kadcyla starts on the 14 August.  Just taking each day as it comes.  Glad to hear a new group has formed for TPBC

Fantastic news for the TPBCs, @Mez_BCNA

Many thanks

Hi everyone,  thankyou very much for your feedback. We have successfully added a new private group today for you all to keep the conversation going! 

Click on the link below:

Triple Positive Breast Cancer (TPBC)

Thank you arple, not looking forward to that, it is 3 weeks since last surgery and arm still sensitive to touch feels more like a burn, massage does help though and it is not as bad as it was.  I am so glad I found this site as it has really helped

@Ned01 sorry I didn’t properly answer your question - no I didn’t feel tired all the time. 

I hear you @Ned01 I am sure mustering up motivation for more surgery is digging deep.
As @arpie described, the feeling of tension and sensitivity in the area of the operation and from the scar near the lymph node has continued for me but it doesn’t for everyone- and my sensitivity is not in a way that is super painful or constant - it’s certain postures or if any pressure is applied. I am actually seeing a physio who specialises in post breast surgery scarring and recovery this afternoon. So it’s positive to know there’s incredibly skilled people who can help. 
I had a laugh when I was wincing during an ECG ultrasound and apologised to the technicians - she said some of her patients do experience it and “…there’s probably a bit of stretching and bruising going on in your breast after a lumpectomy… same suitcase but packed differently” ☺️
hopeful that this is just a matter of time- certainly I can feel the tenderness has reduced in intensity. 
@Ned01 My oncologist recommended I pause having Kadcyla whilst doing the radiation therapy. Having radiation therapy can tire some people (it did me) especially towards the end, so a pause worked well. 

Wishing you all the best for your surgery next week @Ned01 ... the nerves often take a while to 'settle' as they reconnect - so the odd sharp/weird/stabbing pain sadly, may be the norm for some time, even after the next surgery. 

take care, be kind to yourself & put yourself first .... rest up if/when you need to & delegate all chores to family and/or friends xx