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Chelley59's avatar
Chelley59
Member
7 years ago

Timeline on treatment

My treatment seems to be taking so long... I hear of people that were diagnosed well after me are almost finished radiotherapy.... I was diagnosed in August have had a 2nd lumpectomy to get the margins...still havent a date for radiotherapy ....will be seeing my surgeon again this week i guess for pathology on the tissue taken ....then hoping for the go ahead for radiotherapy although its getting so close to christmas i wonder if it will be postponed till after christmas due to public holidays.... is there anyone else that feels like their treatment is taking forever..... is this normal ☹
  • @sjd_barra ... my sister in law came in with me (my brother & husband came with me but not 'in with me') - she was terrific - and even had a couple of questions to ask of the surgeon.  She came to my post op appointments too.   Maybe see if you can record the conversation for later use if needed.  As @Chelley59 says .... information overload is definitely what happens in there!

    You may be surprised at how family & friends 'step up to the plate' upon hearing the news.  On the flip side .... they may be very upset at you not telling them, too!  :(   

    When you go for your results after surgery - I would definitely recommend someone else to go with you.  It can be a very emotional time - and you may still be recovering from the surgery and unable to drive, depending on what you are having done ....

    All the best xx
  • Sometimes its important to have that 2nd pair of ears...it does get to a point when its information overload and you need that 2nd person to just remind you what was said x

  • Thankyou @arpie. I will go alone.
    I don't want to worry others. I don't feel like I could handle their distress and mine as well. My parents, my 3 daughters, my brothers. I don't want to cause them any undue pain until it's absolutely necessary.
    It's ok. I am just worried about the waiting. 
  • I welled up in tears when i finally got my first appt....sjd_barra...hoping all goes well for you xx
  • Welcome to the forum @sjd_barra  ... All the best for your appointment on Friday!  Do you have someone to go with, as support and a second set of ears??  take care x
  • I was diagnosed 30 days ago and have only just got an appointment to see a surgeon this Friday.
    Luckily my life is super busy, no time to think about it. 🙁
  • Hi @Chelley59  - you have to heal from the 2nd lot of surgery before the rads can start - so you went back to the starting block (sort of) for the 2nd lumpectomy.  Your surgeon will be able to give you a rough idea, depending on the amount of surgery that you had.     Rads can be anything from 4 weeks even up to 12 weeks post op .... and with Xmas looming, it may be put off until Jan, as the public holidays may impact the rads (usually it is Mon-Fri for 3-6 weeks depending on the recommendation) and they don't want you to miss a couple in the middle due to public holidays ..... 

    Mine was 'detected' in Nov & being rural, didn't get MG & US until early Dec (which was undecided) so had a core biopsy on Dec 27th, diagnosis of cancer on Jan 5.  Couldn't even SEE a surgeon until Mid January (as they take Xmas holidays as well!) and had surgery Jan 17th.  My rads was finished the day before Good Friday (tho my Rad Onc said I could wait until 3-4 weeks after if I wanted to do it after my holiday to Norfolk Island.)  I chose the earlier date so I could enjoy my hols after the rads had finished.

    There is no 'strict' guideline.  But the waiting is still the pits!   :(

    Take care, all the best for your ongoing treatment - hope you have some specific dates after you see the surgeon xx