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FiFiK's avatar
FiFiK
Member
12 months ago

Struggling tonight

I know I'm not alone in this journey but tonight I'm really feeling quite lonely. Just wondering what other people do when they are feeling this way even when they might be surrounded by supportive family and friends. Night-time is always the hardest because I live alone and have little to distract me. 
  • @FiFiK Hello do you have any furry animals at home.    When I was going through treatment my little dog would sit with (or) on me to keep me company.
  • @FiFiK - I reckon we've all struggled with feeling lonely at some stage on our 'journey', even if surrounded by family & friends ..... it is great that you have reached out, so we can help prop you up xx We've 'been there, done that' xx 

    This is a mongrel disease & most of our family & buddies have NO REAL IDEA of the depth of emotions that we go thru as we navigate treatment & recovery xx

    We had a big thread call 'Night Howls' back in 2018 that many of us contributed to - specially in the wee small hours where out treatment/meds kept us awake at the most ridiculous hours ... maybe we need to 'bring it back to the front'??
    https://onlinenetwork.bcna.org.au/discussion/19269/night-howls/p1

    Sometimes I wake up even now at 'silly o'clock' and I get up & watch a bit of TV (or something that I've recorded) to hopefully make me 'drop off', but I try not to go online, in case it 'keeps me awake'  ....

    I also take some medicinal Cannabis Oil that helps me 'nod off' .... with the hope I don't wake up early again!   Make sure you let your team know that you are having difficulty sleeping, as it really needs to be addressed xx

    Consider chatting with our helpline (Mon-Fri) on 1800 500 258 - and mention it to your GP too, if you are between appointments with your BC team ... 

    take care, sleep tight.