Forum Discussion
72 Replies
- Ausmum2MemberHey @4Coco
in terms of food intake the “easiest way” for me to remember the food advice was “think of it as the pregnant diet” (ie foods to avoid and what to eat more of) to manage any possible side effects.I did 4XACs, 12Xpaclitaxels, 25 radiotherapy fractions (but a lot of grays, as medial lymph nodes, sub clavicle and clavicle and armpit and arm lymph nodes, as well as chest and chest wall, after a double mastectomy as I’m a TNBC one). So basically “the whole enchilada”.I had significant neutropenia and issue with haemoglobbin as well, but got all my treatment in even though I needed three WBC boosting shots a week for almost all of the chemo.I also did have a recurrent seroma (on the non cancer side!) that needed two rounds of negative vac drain followed by bellow vac (so four extra operations and hospital stays). And a fair few antibiotics with things needing dealing with.My only side effect after all of this (and like abbey dog I didn’t have any nausea or vomiting with chemo at all. Just the eveready bunny effect of the dexamethasone).Basically, my advice would be
eat well and a basic balanced diet
talk to the breast care nurses a lot
and don’t worry about things they might never happen (there is enough to worry about that does happen!)
good luck - 4CocoMember@Afraser Thanks and yes I'll definitely not be eating out for the next several months and will be having baked/roast vegetables instead.
- AfraserMemberIt’s very sensible to take care. From what I’ve read, the main problem with salad or uncooked vegetables is how long they may have been sitting around, which will increase the risk of bad bacteria being present. So salad bars and buffets are not recommended. If on the other hand you grow your own vegetables, or you are confident in the freshness of your sources, or everything is well washed, maybe not too much of a risk. Possibly sealed salad packs may be safer. Best of luck with the chemo.
- 4CocoMember@arpie Thank you for the additional links
@Afraser I've been searching on line re diet and recipes info for both conditions. The info I've been reading has been posted by cancer institutes rather than individuals - I guess I've become more confused after this infection kicked in - my neutrophills had dropped to below 1 and I read that raw vegetables posed a greater bacterial threat to the immune system - and that cooked veg was safer. I just want to make sure that what I eat keeps me well nourished and on track for the treatments - I feel like I'm on the start line and have had two false starts getting to my second chemo. Thanks for letting me know about the fish being good for you over the years - I'm sticking with the fish!
@iserbrown Thanks for the additional link - re the lamp drainage - did you have that whilst having chemo or did you have to wait until chemo finished? - iserbrownMember@4Coco
Sounds like you've got a lot going on and finding information a little confusing
Agree with @Afraser
I have lymphatic drainage massage on a regular basis.
Advice is a healthy well balanced diet, plenty of protein including nuts, legumes, fish et cetera
If you google Lymphoedema and Diet you will find a PDF doc from Queensland Health
https://www.bcna.org.au/resource/fact-sheet-lymphoedema/
Link above is one of many resources from BCNA website
Hope that helps and your treatment plan is not too hard on you
Take care
Best wishes - AfraserMember@4Coco
Good for you to try and limit the chance of lymphoedema but I’m wondering where your advice comes from? I have had lymphoedema for over nine years, have an excellent specialist therapist but have never been advised to reduce my fish intake. Quite the reverse, as @arpie has indicated, a good mixed diet is recommended. Reducing caffeine, alcohol, added salt and sugars also considered a good idea, just for general health. I can’t advise on neutropenia but if the advice for each condition conflicts, it presents a minor dilemma! Raw vegetables may not reduce neutropenia but if they don’t actually make it worse or more likely, I’d be eating them for all the other benefits. Best wishes, it can all be very confusing! - arpieMemberGosh ... looks like there are quite a few foods to avoid or limit .... shame about the salads & fish tho, when they are your favourites. :(
I hope you can find some ideas/tips below xx
Here's an Aussie link:
https://health.act.gov.au/sites/default/files/2018-09/What%20should%20I%20eat%20while%20I%20am%20neutropenic%20or%20my%20immune%20system%20is%20weakened.pdf
and for comparison ... a UK link:
https://hillman.upmc.com/patients/community-support/education/miscellaneous/neutropenic-diet
All the best - 4CocoMember@arpie Thanks for your help and suggestions. Yes I'm wanting to maintain my weight - and eat as healthily as can without causing any flare ups/issues with either lymphedema or neutopenea. For instance - I eat various types of fish for daily protein but now discover fish is to be kept to eating in "limited quantities" for the lymphedema. I try to stick with everything in moderation but finding there's now good and not so good in the "healthy" choices - raw salads not good for neutropenia and I love my salads - cooked vegetables are ok.
- arpieMemberSorry to hear that, @4Coco - try ringing them for an appt - with a bit of luck it may coincide with your visit later this week.
Do you have a Community Health Centre - they also often have a variety of services available, including psychology, physio, dental, diabetic & possibly Dietitian .... worth giving them a bell as well.
Generally, just eating 'well' with a good mix of Carbs, fresh fruit/veg & protein should suffice .... this pic gives an 'idea' of portion sizes ... about half the plate should be veg/salad, about 1/4 plate for carbs & 1/4 plate for protein ...
Are you looking at maintaining weight, losing weight or wanting to put weight on? (I am trying to put weight ONTO my husband as his treatment is causing weight loss.)
All the best & Good luck xx
Here's one booklet on eating before, during & after cancer ... - 4CocoMember@Keeping_positive1 - they've not mentioned one being available but I will ask when I visit later this week - just had a lot of printed off info sheets about what to eat following the surgery ...