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Donna67's avatar
Donna67
Member
8 years ago

Phyllodes Tumour

I have just had a lumpectomy for what was originally diagnosed as a Fibroadenoma.  It was only when I went for my post surgery checkup with my surgeon that she said the pathology results came back as a Benign Phyllodes Tumour.  She was upbeat and didn't have a lot to say about the tumour, just that it was benign and shouldn't grow back.  I asked whether I should have another Mammogram within 12 months and she said no, just the usual two yearly one.  So, after researching Phyllodes, I am confused about what to do next.  I know that the surgeon didn't take 1 cm margins around the lump because she thought she was dealing with a Fibroadenoma, the lump was just shelled out.  Does anyone have any advice to help me work out what to do?
  • nonkyboy's avatar
    nonkyboy
    Member
    8 years ago
    Hi @Donna67, are you able to ask her for a copy of the biopsy report? You may find that she did get enough of a clearance margin around the tumour. That would be the ideal situation. If you are still worried and now that you are armed with more knowledge could you go back to see her and ask her some further questions to clarify things for you and hopefully help you to feel settled with her diagnosis? I know how fast these appointments can go and you never seem to remember the questions to ask while you're in there. Given that you were not expecting the news you heard, you would have been thrown altogether. That would be my suggestion anyway. All the best. Maybe other ladies have other suggestions xx Lesley