@Louise64 - please do not ever feel embarrassed nor think your diagnosis is any less of a life changing event that others. YOU are undergoing a huge challenge. Noone ever sits in this forum and thinks "oh wow, she got off lightly!" every single one of us, understand the huge toll it takes on our emotions, life, job prospects, daily events, and most important who we are as a human being. YOU are BRAVE.
As to the mutliple decisions that need to be made on what seems a minute by minute basis - a good thing to do is take a diary or record information on your phone - if possible take someone with you to all your appointments. Take one day at a time - it will all fall into place as needed. Time does seem to drag especially while waiting for surgery!
I sincerely wish you a fast and easy recovery for the surgery and hopefully you will have someone to help care for you - I highly recommend this!!!
Big Hugs and remember - YOU ARE BRAVE!!!!!!!!!
Lois