First I'm so sorry, I understand how you didn't rush into getting checked out when you found the lumps, I also had cysts removed from my breast and was told I had lots of benign cysts there, it made me \"not too concerned\" about keeping up with mammograms etc.
When I did find that a lump ( in fact 3) were cancers it was hard to take in, I also felt \"numb\" like you.
My specialist also tried to put me off have a double mastectomy, so I had to go through lumpectomy's which breached the margins anyway so after all that he agreed to do double mastectomy. I should've beenmore insistent to begin with.
Please be pushy with them, get on their backs about getting in quickly, ask your GP to again contact them. Push, push ,push. Soon it will be January and specialists, nurses and doctors will all start filtering back to work, so surely they can get you in if you have the energy to keep at them.
Also after Chemo when the surgery discussion comes up, be insistent that you definitely want a double mastectomy.
Sending you a big hug <3 xx
","board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:55593"},"author":{"__typename":"User","login":"Cindi"},"postTime":"2023-12-18T16:44:19.000-08:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":55599,"body":"SO sorry to see you join our select little group, @kirstiekoala ....
I hope that you do get to see your Oncologist at least as many patients have chemo before and after surgery - as The idea behind Neoadjuvant chemotherapy is to attack not only the cancer cells in the primary tumor but also to destroy any cells that may be circulating in the rest of the body. It makes sense to do this first then remove the primary tumor, which will now be much reduced in size. Often the tumour/s are also reduced in size, making it easier to get good clear margins too.
Most medical professionals have at least a 3 week break from the end of this week til mid January .... and hospitals try & get as many patients 'home for Xmas', so they can just operate over Xmas/New Year with skeleton staff ... it is a mongrel of a time to be diagnosed xx
My own diagnosis finally came thru in early Jan (the lump was found the previous Oct!!!) I ended up having a biopsy in between Xmas & New Year .... then I was lucky to get my surgeon's appt on his first day back at work in mid Jan ..... Sentinel Node test the next day & surgery the day after. Once it 'starts' .... it usually 'flows quite quickly' ... but the waiting just SUCKS BIGTIME! :(
Hi @kirstiekoala, We have the same diagnosis and story, but I am much older than you at 64 years old and have no history of breast cancer in my family. I also noticed a large fatty mass on the left side of my left breast. Since I've had a history of breast cysts in the past that were never alarming through mammograms, I thought this might be the same thing. I waited for 2 weeks to see if it would shrink before going for a mammogram. After the callback and an extensive assessment, I was diagnosed with invasive breast cancer stage 3, HR+, PR-, and HER2-. Similar to your diagnosis.
The breast surgeon told me it was urgent and immediately sent me for an MRI/CT/PET scan, which was done after one week, and thankfully, it was all clear. However, everything thereafter was slow. My lumpectomy and removal of involved lymph nodes, initially scheduled in 4 weeks, ended up taking place in 6 weeks due to the public health system. As the margins were not clear, I was scheduled for another re-excision, which I underwent yesterday. I'm still recovering from the anesthesia as it makes me quite sick.
My next appointment to find out if the margins have been cleared after the re-excision is in 2 and a half weeks due to the Christmas holidays. However, my first appointment with the oncologist since the diagnosis on September 29th is scheduled for January 17th. I'm trying to save my breast from a mastectomy, but I'm heavily informed about the possibility in the future. This website has been immensely helpful in understanding my condition and asking the right questions.
I must mention that my GP did not cry. If she did, it would upset me as I don't want anyone to cry. I need positive and brave people around me
","board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:55593"},"author":{"__typename":"User","login":"GorgyS"},"postTime":"2023-12-19T18:27:56.000-08:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":55612,"body":"Hi Kirstie...know how you feel now? Basic motto ..If in doubt, shout for help... with the treatment we are on it is wiser to act rather than to \"see what happens\"....told to me by my oncologist..","board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:55593"},"author":{"__typename":"User","login":"Mareealso"},"postTime":"2023-12-21T19:36:54.000-08:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":55614,"body":"But something is obviously 'going on' if you are in that sort of pain/discomfort & your temp is going up ..... so my motto is always 'IF IN DOUBT, GET CHECKED OUT'! xx
take care and good on your hubby for wanting to check elsewhere - don't leave it too late!! If the clinic hasn't gotten back to you by now - ring the other one NOW.
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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Diagnosed Locally Advanced Breast Cancer","id":"message:55593","revisionNum":1,"repliesCount":33,"author":{"__ref":"User:user:2591"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:55593"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:55593"},"body":"Hello Everyone I recently got diagnosed with what they thought was DCIS but after all the ultrasounds, MRI, CT, PET scan, and biopsies, the diagnosed me with stage 3, Locally Advanced Breast Cancer. I am 37 years old (hopefully reach level 38 in January), and in June 2023, I found a lump in my left armpit. Not very big. About the size of a grain of rice. I didn't think much of it until a month later, I found a lump under the areola of my left breast. I had found those kind of lumps before in my right breast and got them checked straight away but they all came back as benign cysts. But I did the right thing and went to my GP. Rather than telling her about the breast lump, I mentioned about the lump in my armpit instead. She had a feel and thought it was just a gland until she asked if I had found one in the breast as well. I said yes. Straight away she gave me referrals for a mammogram and ultrasound. But I was so convinced that it would just say it was a benign cyst again, that I put the referrals up on the fridge and left them there....until November. By the beginning of November, the lump in my armpit was big. But the one in my breast didn't feel like it had grown. But I went and got the mammogram and ultrasound done and a few days later my doctor called me back in. I still remember, very clearly, my doctor starting to cry and apologising to me. I should say, my doctor is a strong woman and I have never seen anything phase her but she was crying and I knew straight away the results. Fast forward to now and I am currently waiting to meet my surgeon and oncologist. I'm not expecting to see them until the new year, despite being a priority 1 with the hospital.
My official diagnosis is Stage 3, locally advanced Invasive Ductal Carcinoma. It is ER+, PR- and HER2- (as far as im aware unless i read it wrong). The weird thing is, every female on my mother's side that has had breast cancer (my nanna/mum's mum, nanna's 2 sisters, my aunt/mum's sister) have all had it in their left breast but none of them have had it spread to the left armpit lymph nodes like i have. They were all stage 2. I'm currently trying to get my mum to go and see the doctor because when I got my diagnosis, my stepdad quietly told me that mum hasn't had a mammogram done in 16 years and 18 months ago she noticed the nipple in the left breast has become inverted.
Sorry for the long introduction to my story. I still haven't fully acknowledged what is happening. I hear everything they say and I have read all the reports, looked at the imaging. But I feel like I am numb right now. Nothing is fully registering and I have had some people ask me why its taking me so long to feel something. I honestly don't know.","body@stringLength":"2744","rawBody":"Hello Everyone I recently got diagnosed with what they thought was DCIS but after all the ultrasounds, MRI, CT, PET scan, and biopsies, the diagnosed me with stage 3, Locally Advanced Breast Cancer. I am 37 years old (hopefully reach level 38 in January), and in June 2023, I found a lump in my left armpit. Not very big. About the size of a grain of rice. I didn't think much of it until a month later, I found a lump under the areola of my left breast. I had found those kind of lumps before in my right breast and got them checked straight away but they all came back as benign cysts. But I did the right thing and went to my GP. Rather than telling her about the breast lump, I mentioned about the lump in my armpit instead. She had a feel and thought it was just a gland until she asked if I had found one in the breast as well. I said yes. Straight away she gave me referrals for a mammogram and ultrasound. But I was so convinced that it would just say it was a benign cyst again, that I put the referrals up on the fridge and left them there....until November. By the beginning of November, the lump in my armpit was big. But the one in my breast didn't feel like it had grown. But I went and got the mammogram and ultrasound done and a few days later my doctor called me back in. I still remember, very clearly, my doctor starting to cry and apologising to me. I should say, my doctor is a strong woman and I have never seen anything phase her but she was crying and I knew straight away the results. Fast forward to now and I am currently waiting to meet my surgeon and oncologist. I'm not expecting to see them until the new year, despite being a priority 1 with the hospital.
My official diagnosis is Stage 3, locally advanced Invasive Ductal Carcinoma. It is ER+, PR- and HER2- (as far as im aware unless i read it wrong). The weird thing is, every female on my mother's side that has had breast cancer (my nanna/mum's mum, nanna's 2 sisters, my aunt/mum's sister) have all had it in their left breast but none of them have had it spread to the left armpit lymph nodes like i have. They were all stage 2. I'm currently trying to get my mum to go and see the doctor because when I got my diagnosis, my stepdad quietly told me that mum hasn't had a mammogram done in 16 years and 18 months ago she noticed the nipple in the left breast has become inverted.
Sorry for the long introduction to my story. I still haven't fully acknowledged what is happening. I hear everything they say and I have read all the reports, looked at the imaging. But I feel like I am numb right now. Nothing is fully registering and I have had some people ask me why its taking me so long to feel something. I honestly don't know.","kudosSumWeight":0,"postTime":"2023-12-18T15:09:44.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:invasive-ductal-carcinoma","text":"invasive-ductal-carcinoma","time":"2025-03-25T05:02:19.224-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":3,"currentRevision":{"__ref":"Revision:revision:55593_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1314},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"searchSnippet":"Hello 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Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55616"},"body":"Thank you @kirstiekoala for the update. Since we deal with cancer, it seems that we can not ignore any symptoms anymore. It is good that you acted and contacted Health direct in the 'absence' of someone from the clinic. Glad you followed arpies' advice and it is good learning for all of us, newly diagnosed. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-27T16:38:49.000-08:00","lastPublishTime":"2023-12-27T16:38:49.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55616","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"314","rawBody":"Thank you @kirstiekoala for the update. Since we deal with cancer, it seems that we can not ignore any symptoms anymore. It is good that you acted and contacted Health direct in the 'absence' of someone from the clinic. Glad you followed arpies' advice and it is good learning for all of us, newly diagnosed. 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After waiting for the clinic to call me back, I ended up falling asleep. When I woke up, I felt fine again. The clinic never called but I would assume they were away. I was fine all day on the 23rd but on the 24th I woke up in pain again. I spoke to a wonderful woman at Health Direct who suggested I call Dial A Doctor. So we got a doctor out and he was amazing, although I wont forget the look on his face when I said \"stage 3 breast cancer\"....very much a look of \"but you're only 37\", lol. It turns out that due to my last biopsy on the 12th December, I have developed a golf ball sized haematoma that has fully solidified and its now aggravating the lymph node which has the cancer in it, causibg my whole body to suffer. He has given me some strong pain killers and suggested I used a hot pack on it several times a day to help break it up. Its working and the pain has dulled off. He suggested, if I still have it when I see my GP on the 2nd January, to get her to drain it, or call the clinic on my behalf. He said sometimes its better coming from a GP. So we had a quiet xmas day and hubby has been making sure im not doing much at all so I dont end up in lots of pain.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-27T15:15:53.000-08:00","lastPublishTime":"2023-12-27T15:15:53.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55615","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1216","rawBody":"I thought I would give you an update. After waiting for the clinic to call me back, I ended up falling asleep. When I woke up, I felt fine again. The clinic never called but I would assume they were away. I was fine all day on the 23rd but on the 24th I woke up in pain again. I spoke to a wonderful woman at Health Direct who suggested I call Dial A Doctor. So we got a doctor out and he was amazing, although I wont forget the look on his face when I said \"stage 3 breast cancer\"....very much a look of \"but you're only 37\", lol. It turns out that due to my last biopsy on the 12th December, I have developed a golf ball sized haematoma that has fully solidified and its now aggravating the lymph node which has the cancer in it, causibg my whole body to suffer. He has given me some strong pain killers and suggested I used a hot pack on it several times a day to help break it up. Its working and the pain has dulled off. He suggested, if I still have it when I see my GP on the 2nd January, to get her to drain it, or call the clinic on my behalf. He said sometimes its better coming from a GP. So we had a quiet xmas day and hubby has been making sure im not doing much at all so I dont end up in lots of pain.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55615_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20667":{"__typename":"User","id":"user:20667","uid":20667,"login":"arpie","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-01-13T01:35:16.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-8.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20667"},"ModerationData:moderation_data:55614":{"__typename":"ModerationData","id":"moderation_data:55614","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55614":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:55614","revisionNum":1,"uid":55614,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55614"},"body":"But something is obviously 'going on' if you are in that sort of pain/discomfort & your temp is going up ..... so my motto is always 'IF IN DOUBT, GET CHECKED OUT'! xx
take care and good on your hubby for wanting to check elsewhere - don't leave it too late!! If the clinic hasn't gotten back to you by now - ring the other one NOW.
All the best x
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"212","kudosSumWeight":1,"repliesCount":0,"postTime":"2023-12-21T19:49:27.000-08:00","lastPublishTime":"2023-12-21T19:49:27.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55614","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"409","rawBody":"But something is obviously 'going on' if you are in that sort of pain/discomfort & your temp is going up ..... so my motto is always 'IF IN DOUBT, GET CHECKED OUT'! xx
take care and good on your hubby for wanting to check elsewhere - don't leave it too late!! If the clinic hasn't gotten back to you by now - ring the other one NOW.
All the best x
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55614_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:55613":{"__typename":"ModerationData","id":"moderation_data:55613","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55613":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:2591"},"id":"message:55613","revisionNum":1,"uid":55613,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55613"},"body":"I just feel like im making a big deal over nothing because I havent even started treatment or anything","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"102","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-21T19:42:22.000-08:00","lastPublishTime":"2023-12-21T19:42:22.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55613","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"102","rawBody":"I just feel like im making a big deal over nothing because I havent even started treatment or anything","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55613_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:2509":{"__typename":"User","id":"user:2509","uid":2509,"login":"Mareealso","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2023-11-29T16:49:18.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-8.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:2509"},"ModerationData:moderation_data:55612":{"__typename":"ModerationData","id":"moderation_data:55612","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55612":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:2509"},"id":"message:55612","revisionNum":1,"uid":55612,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55612"},"body":"Hi Kirstie...know how you feel now? Basic motto ..If in doubt, shout for help... with the treatment we are on it is wiser to act rather than to \"see what happens\"....told to me by my oncologist..","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"195","kudosSumWeight":1,"repliesCount":0,"postTime":"2023-12-21T19:36:54.000-08:00","lastPublishTime":"2023-12-21T19:36:54.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55612","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"195","rawBody":"Hi Kirstie...know how you feel now? Basic motto ..If in doubt, shout for help... with the treatment we are on it is wiser to act rather than to \"see what happens\"....told to me by my oncologist..","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55612_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:55611":{"__typename":"ModerationData","id":"moderation_data:55611","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55611":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:2591"},"id":"message:55611","revisionNum":1,"uid":55611,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55611"},"body":"My temp is normally 36.9 but since november its been sitting at 37.4 which it is now. My doctors practice is closed until the 2nd. I have called the clinic because i know they are working today and im waiting for my Breast Physician to return my call. Thanks for the advice as well. If i dont hear from the clinic, my husband is going to call the hospital and Dial A Doctor.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-21T19:25:32.000-08:00","lastPublishTime":"2023-12-21T19:25:32.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55611","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"374","rawBody":"My temp is normally 36.9 but since november its been sitting at 37.4 which it is now. My doctors practice is closed until the 2nd. I have called the clinic because i know they are working today and im waiting for my Breast Physician to return my call. Thanks for the advice as well. If i dont hear from the clinic, my husband is going to call the hospital and Dial A Doctor.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55611_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:55610":{"__typename":"ModerationData","id":"moderation_data:55610","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55610":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:55610","revisionNum":1,"uid":55610,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55610"},"body":"@kirstiekoala - definitely ring the clinic asap as it sounds like you may have some sort of infection, even tho you haven't had surgery yet.
Did you use a digital thermometer? It can be easy to misread the old 'stick' ones. If it is over 38˚, you definitely need to ring your GPs office & get an appointment TODAY as you may need antibiotics as many clinics may close down over the Xmas period & the sooner you get checked out, the better.
Ring & Tell them that you have breast cancer & need to see someone TODAY xx
Worst case scenario would be you attending Emergency at your local hospital if you can't get in to see someone this afternoon.
take care - I hope you can be seen today & start to feel better soon - it really sounds like you should be on Antibiotics PRONTO xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-21T19:19:30.000-08:00","lastPublishTime":"2023-12-21T19:19:30.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55610","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"869","rawBody":"@kirstiekoala - definitely ring the clinic asap as it sounds like you may have some sort of infection, even tho you haven't had surgery yet.
Did you use a digital thermometer? It can be easy to misread the old 'stick' ones. If it is over 38˚, you definitely need to ring your GPs office & get an appointment TODAY as you may need antibiotics as many clinics may close down over the Xmas period & the sooner you get checked out, the better.
Ring & Tell them that you have breast cancer & need to see someone TODAY xx
Worst case scenario would be you attending Emergency at your local hospital if you can't get in to see someone this afternoon.
take care - I hope you can be seen today & start to feel better soon - it really sounds like you should be on Antibiotics PRONTO xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55610_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:55609":{"__typename":"ModerationData","id":"moderation_data:55609","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55609":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:2591"},"id":"message:55609","revisionNum":1,"uid":55609,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55609"},"body":"I needed to ask before I take drastic measures and call the clinic...but I have notoced my body has started hurting more and more but this morning I woke up and I felt like my body was ready to explode. The best way to describe it is, its a heated pain. The pain ive had is worse but its hot. Ive taken panadol and nurofen which has done nothing at all but ive checked and i dont have a fever. Any ideas what i should do? I know you all arent doctors but i wanna know if you have suggestions before i call the clinic with an SOS","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-12-21T18:58:00.000-08:00","lastPublishTime":"2023-12-21T18:58:00.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:55593/message:55609","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"528","rawBody":"I needed to ask before I take drastic measures and call the clinic...but I have notoced my body has started hurting more and more but this morning I woke up and I felt like my body was ready to explode. The best way to describe it is, its a heated pain. The pain ive had is worse but its hot. Ive taken panadol and nurofen which has done nothing at all but ive checked and i dont have a fever. Any ideas what i should do? I know you all arent doctors but i wanna know if you have suggestions before i call the clinic with an SOS","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55609_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:55608":{"__typename":"ModerationData","id":"moderation_data:55608","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:55608":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:2313"},"id":"message:55608","revisionNum":1,"uid":55608,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:55593"},"conversation":{"__ref":"Conversation:conversation:55593"},"subject":"Re: Newly Diagnosed Locally Advanced Breast Cancer","moderationData":{"__ref":"ModerationData:moderation_data:55608"},"body":"
Hi @kirstiekoala, We have the same diagnosis and story, but I am much older than you at 64 years old and have no history of breast cancer in my family. I also noticed a large fatty mass on the left side of my left breast. Since I've had a history of breast cysts in the past that were never alarming through mammograms, I thought this might be the same thing. I waited for 2 weeks to see if it would shrink before going for a mammogram. After the callback and an extensive assessment, I was diagnosed with invasive breast cancer stage 3, HR+, PR-, and HER2-. Similar to your diagnosis.
The breast surgeon told me it was urgent and immediately sent me for an MRI/CT/PET scan, which was done after one week, and thankfully, it was all clear. However, everything thereafter was slow. My lumpectomy and removal of involved lymph nodes, initially scheduled in 4 weeks, ended up taking place in 6 weeks due to the public health system. As the margins were not clear, I was scheduled for another re-excision, which I underwent yesterday. I'm still recovering from the anesthesia as it makes me quite sick.
My next appointment to find out if the margins have been cleared after the re-excision is in 2 and a half weeks due to the Christmas holidays. However, my first appointment with the oncologist since the diagnosis on September 29th is scheduled for January 17th. I'm trying to save my breast from a mastectomy, but I'm heavily informed about the possibility in the future. This website has been immensely helpful in understanding my condition and asking the right questions.
I must mention that my GP did not cry. If she did, it would upset me as I don't want anyone to cry. I need positive and brave people around me
Hi @kirstiekoala, We have the same diagnosis and story, but I am much older than you at 64 years old and have no history of breast cancer in my family. I also noticed a large fatty mass on the left side of my left breast. Since I've had a history of breast cysts in the past that were never alarming through mammograms, I thought this might be the same thing. I waited for 2 weeks to see if it would shrink before going for a mammogram. After the callback and an extensive assessment, I was diagnosed with invasive breast cancer stage 3, HR+, PR-, and HER2-. Similar to your diagnosis.
The breast surgeon told me it was urgent and immediately sent me for an MRI/CT/PET scan, which was done after one week, and thankfully, it was all clear. However, everything thereafter was slow. My lumpectomy and removal of involved lymph nodes, initially scheduled in 4 weeks, ended up taking place in 6 weeks due to the public health system. As the margins were not clear, I was scheduled for another re-excision, which I underwent yesterday. I'm still recovering from the anesthesia as it makes me quite sick.
My next appointment to find out if the margins have been cleared after the re-excision is in 2 and a half weeks due to the Christmas holidays. However, my first appointment with the oncologist since the diagnosis on September 29th is scheduled for January 17th. I'm trying to save my breast from a mastectomy, but I'm heavily informed about the possibility in the future. This website has been immensely helpful in understanding my condition and asking the right questions.
I must mention that my GP did not cry. If she did, it would upset me as I don't want anyone to cry. I need positive and brave people around me
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Hi @kirstiekoala, We have the same diagnosis and story, but I am much older than you at 64 years old and have no history of breast cancer in my family. I also noticed a large fatty mass on the left side of my left breast. Since I've had a history of breast cysts in the past that were never alarming through mammograms, I thought this might be the same thing. I waited for 2 weeks to see if it would shrink before going for a mammogram. After the callback and an extensive assessment, I was diagnosed with invasive breast cancer stage 3, HR+, PR-, and HER2-. Similar to your diagnosis.
The breast surgeon told me it was urgent and immediately sent me for an MRI/CT/PET scan, which was done after one week, and thankfully, it was all clear. However, everything thereafter was slow. My lumpectomy and removal of involved lymp nodes, initially scheduled in 4 weeks, ended up taking place in 6 weeks due to the public health system. As the margins were not clear, I was scheduled for another re-excision, which I underwent yesterday. I'm still recovering from the anesthesia as it makes me quite sick.
My next appointment to find out if the margins have been cleared after the re-excision is in 2 and a half weeks due to the Christmas holidays. However, my first appointment with the oncologist since the diagnosis on September 29th is scheduled for January 17th. I'm trying to save my breast from a mastectomy, but I'm heavily informed about the possibility in the future. This website has been immensely helpful in understanding my condition and asking the right questions.
I must mention that my GP did not cry. If she did, it would upset me as I don't want anyone to cry. I need positive and brave people around me
Hi @kirstiekoala, We have the same diagnosis and story, but I am much older than you at 64 years old and have no history of breast cancer in my family. I also noticed a large fatty mass on the left side of my left breast. Since I've had a history of breast cysts in the past that were never alarming through mammograms, I thought this might be the same thing. I waited for 2 weeks to see if it would shrink before going for a mammogram. After the callback and an extensive assessment, I was diagnosed with invasive breast cancer stage 3, HR+, PR-, and HER2-. Similar to your diagnosis.
The breast surgeon told me it was urgent and immediately sent me for an MRI/CT/PET scan, which was done after one week, and thankfully, it was all clear. However, everything thereafter was slow. My lumpectomy and removal of involved lymp nodes, initially scheduled in 4 weeks, ended up taking place in 6 weeks due to the public health system. As the margins were not clear, I was scheduled for another re-excision, which I underwent yesterday. I'm still recovering from the anesthesia as it makes me quite sick.
My next appointment to find out if the margins have been cleared after the re-excision is in 2 and a half weeks due to the Christmas holidays. However, my first appointment with the oncologist since the diagnosis on September 29th is scheduled for January 17th. I'm trying to save my breast from a mastectomy, but I'm heavily informed about the possibility in the future. This website has been immensely helpful in understanding my condition and asking the right questions.
I must mention that my GP did not cry. If she did, it would upset me as I don't want anyone to cry. I need positive and brave people around me
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