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kirstiekoala's avatar
2 years ago

Newly Diagnosed Locally Advanced Breast Cancer

Hello Everyone
I recently got diagnosed with what they thought was DCIS but after all the ultrasounds, MRI, CT, PET scan, and biopsies, the diagnosed me with stage 3, Locally Advanced Breast Cancer. I am 37 years old (hopefully reach level 38 in January), and in June 2023, I found a lump in my left armpit. Not very big. About the size of a grain of rice. I didn't think much of it until a month later, I found a lump under the areola of my left breast. I had found those kind of lumps before in my right breast and got them checked straight away but they all came back as benign cysts. But I did the right thing and went to my GP. Rather than telling her about the breast lump, I mentioned about the lump in my armpit instead. She had a feel and thought it was just a gland until she asked if I had found one in the breast as well. I said yes. Straight away she gave me referrals for a mammogram and ultrasound. But I was so convinced that it would just say it was a benign cyst again, that I put the referrals up on the fridge and left them there....until November. By the beginning of November, the lump in my armpit was big. But the one in my breast didn't feel like it had grown. But I went and got the mammogram and ultrasound done and a few days later my doctor called me back in. I still remember, very clearly, my doctor starting to cry and apologising to me. I should say, my doctor is a strong woman and I have never seen anything phase her but she was crying and I knew straight away the results. Fast forward to now and I am currently waiting to meet my surgeon and oncologist. I'm not expecting to see them until the new year, despite being a priority 1 with the hospital.

My official diagnosis is Stage 3, locally advanced Invasive Ductal Carcinoma. It is ER+, PR- and HER2- (as far as im aware unless i read it wrong). The weird thing is, every female on my mother's side that has had breast cancer (my nanna/mum's mum, nanna's 2 sisters, my aunt/mum's sister) have all had it in their left breast but none of them have had it spread to the left armpit lymph nodes like i have. They were all stage 2. I'm currently trying to get my mum to go and see the doctor because when I got my diagnosis, my stepdad quietly told me that mum hasn't had a mammogram done in 16 years and 18 months ago she noticed the nipple in the left breast has become inverted.

Sorry for the long introduction to my story. I still haven't fully acknowledged what is happening. I hear everything they say and I have read all the reports, looked at the imaging. But I feel like I am numb right now. Nothing is fully registering and I have had some people ask me why its taking me so long to feel something. I honestly don't know.
  • Hello @kirstiekoala,

    First I'm so sorry, I understand how you didn't rush into getting checked out when you found the lumps, I also had cysts removed from my breast and was told I had lots of benign cysts there, it made me "not too concerned" about keeping up with mammograms etc.

    When I did find that a lump ( in fact 3) were cancers it was hard to take in, I also felt "numb" like you.

    My specialist also tried to put me off have a double mastectomy, so I had to go through lumpectomy's which breached the margins anyway so after all that he agreed to do double mastectomy. I should've been more insistent to begin with.

    Please be pushy with them, get on their backs about getting in quickly, ask your GP to again contact them. Push, push ,push. Soon it will be January and specialists, nurses and doctors will all start filtering back to work, so surely they can get you in if you have the energy to keep at them.

    Also after Chemo when the surgery discussion comes up, be insistent that you definitely want a double mastectomy.

    Sending you a big hug <3
    xx



  • Hello @Mareealso and thank you for the kind words. I am wishing you all the best on your journey.

    When my GP sent my urgent referral through to the Breast Clinic at the hospital, they emailed her back saying they received it and then told her my first appointment wouldn't be until the end of January (this was at the beginning of December). I don't know what happened, or if I have my doctor to thank, but 3 hours after she got that information, the Breast Clinic called me in and said to come in the next day. so all the tests/biopsies/imaging got rushed through but because of the Christmas break, the hospital is currently on skeleton staff. I can't be angry or annoyed because I understand. Most businesses will close down over the break and I understand that medical staff also want to spend time with their loved ones. But i also know that there is 12 of us, including myself, that have been listed as priority 1, to see the surgeon oncologist. I'm guessing its just a case of finding a spot open. I was warned i will probably only get about 24 hours notice via phone. I was told I would have to have neoadjuvant chemotherapy before anything else but I actually don't know what that is. I have already told my Breast Clinic physician that I want a full mastectomy as all the women in my family that have had breast cancer, only had lumpectomies and it kept coming back until they did a mastectomy. the physician has been trying to talk me out of because of my age. wait and see, i guess.
  • Hi Kirstie, Sorry to hear about your diagnosis! You will find lots of support and information with this group. Like you, I am relatively new having had my mastectomy in Nov 22. I did have to push to get things done in a timely manner though in the public health system. Like you, my treatment choices werent going to be decided until Late Jan or early Feb next year but I pointed out the timeline that had already lapsed.. My appointment has now been moved forward to before Christmas. Please stay in contact as there is lots of wisdom everyone here can share with you!!