Forum Discussion

Tillsall67's avatar
7 years ago

INF DUCT CA LNODE AXILLA

HI LADIES
i was dx yesterday with infiltrative ductal carcinoma left axilla w no lump yet found in left breast under us.  Having all the tests etc next tues. I am scared out of my mind last night was so bad I was shaking like a leaf all night imagining how long I have left and feeling pains everywhere thinking it’s all through my body. I’m a very strong positive person usually but can’t beleive how scared I am. 
I only would like positive vibes please if anyone can I  couldn’t handle too much right now trying taking it all in. 
Please sime advice to get through this can’t stop crying and feeling like I’m in a bad dream sick to my stomach. Tips on keeping busy and when ur heart races w fear at night what do you do to relax .   I will fight this w everything I got!!!  Much respect and admiration for all you beautiful strong women!!! 
  • Kez thank you u have no idea this has really helped! One minute I got this f###%%er .. next minute legs are jelly! 
    Thankyou so much let’s wait n see. Doing puzzles, washing, kids, hubby! 
  • Hi @Tillsall67,

    Welcome to the forum.  You will find so much information, love and warmth from everybody here.

    It's all a blur at the start and sometimes it takes us by surprise if you are generally a strong positive person.  I didn't know I could react like that.  I remember too well that "yep, I got this to collapsing on the ground in a mess in the blink of an eye". Bloody awful.

    I too found the axilliary lump first.  The breast tumour could never be felt and we chased it for a month.  MRI was the only thing that could track it. Other scans were all clear.

    The short version is,  I ended up with 25mm l/node tumour with 5 positive and 19mm breast tumour.  So Lumpectomy, axilliary node clearance, chemo and radiation. 

    Surgery went well,  I had full strength back in my arm after about 6wks, no problems with lymphodema or anything else.  I handled chemo pretty good, kept my hair with a cold cap, worked, help run my farm and did all my normal things.  No problems with radiation either a few little skin problems but that was it and no fatigue.  Sometimes it's nowhere near as bad as what our brains like to conjure up for us.  Try not to DR Google too much.  

    You are going to get bombarded with information from here on.  It's all going to sound scary.  However,  once you have a treatment plan in action you will fell somewhat more in control.  I think that is one of the hardest things, the feeling of a lack of control.

      It is perfectly normal to be up and down and all over the place.  It's also normal to think that every little ache and pain is IT.
    Distract yourself as much as you can for the moment.

    We are all here to listen, help, encourage and hold your hand the whole way if you need us.  We've felt it, we get it.  

    Keep in touch lovley.

    xoxoxo


  • With such a surprising shock it is hard to settle about what is and what might be. If you have been fine with toileting, menstruating, eating, energy levels fine then chances are the rest of you is fine as well. We all sort of live in a twilight zone of what if it comes back somewhere but eventually you get sick and tired of living in fear and just say what ever, and get on with life. It takes a few tests to "stage" your cancer treatment. Bone scans etc. Its all about planning an action treatment and what is best to stamp out the cancer. It is worrying but you will get through it just fine and you will also get very good at sitting in boring doctors waiting rooms. Biggest tip is drink plenty of water. I imagine it also flushing out the bad feelings I have too. <3 
  • @Tillsall67 

    Our @SoldierCrab has put this list together - I hope it helps you to understand where you are at and to get resources to help you

    Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet. 

    It can be a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time. 

    The what and how thread.

    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information or support please call 1800 500 258.  The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST.

     

     

    How to understand your pathology reports

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

     

    This link you can click on the type that matches your diagnosis and hopefully gives you a better understanding and helps with questions or to formulate questions for your next visit

    https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/

    Take care

  • Thank you so much Sister! Appreciate ur words.. it’s the unknown ! I will try to relax and keep busy ...have a great hubby and friends thank god.  I just watched tv last night Without  really watching it !! Thank god for Netflix .....I will forge ahead and do what I gotta do!!   Gotta Breathe ! 
    As all of the ladies on here have done xx

  • It's a terrible shock when you're first diagnosed and don't have much real information.  It's all so much white noise.  Try to breathe and take it one step at a time.  Has your GP given you anything to help you calm and sleep?  Now's when you need some help with this if you're happy to do so.  Try to arrange for someone you trust to be with you for your appointments - it's always good to have a second pair of ears.  Write down your questions as you think of them so that you don't forget when you're seeing the doctor. Lot's of people gave distraction tips - I walked the anxiety off in the early days.  Take care and don't be shy about coming here for support, information and the odd laugh.